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Pain below buttocks both sides. Rheumatologist says could be from PMR but who knows.
PMR diagnosed 2017. My CRP — which always aligned with my PMR pain— has been normal for over a year now. I’m on 2mg prednisone. — To see whether I may be in actual PMR remission, I started a slow 7-week reduction to 1.5 mg pred (from 2mg) three weeks ago. I see my endocrinologist soon and will ask
PMR diagnosed 2017. My CRP — which always aligned with my PMR pain— has been normal for over a year now. I’m on 2mg prednisone. — To see whether I may be in actual PMR remission, I started a slow 7-week reduction to 1.5 mg pred (from 2mg) three weeks ago. I see my endocrinologist soon and will ask
SusanEleven
in
PMRGCAuk
1 year ago
Have you heard of '#gamification'? 🎮
Whether you have rheumatoid arthritis or not - if you are in need of a little helping hand to hit your new year resolutions, take a read of our NEW blog. Find out about this modern trend and discover 5 of our favourite smartphone apps that gamify your wellbeing! 👉 https://nras.org.uk/resource/gamify-apps-wellbeing
Whether you have rheumatoid arthritis or not - if you are in need of a little helping hand to hit your new year resolutions, take a read of our NEW blog. Find out about this modern trend and discover 5 of our favourite smartphone apps that gamify your wellbeing! 👉 https://nras.org.uk/resource/gamify-apps-wellbeing
Aribah-NRAS
NRAS
in
NRAS
1 year ago
my poor feet!!
thanks so much for your reply’s I have orthotic insoles to, water tablets, naproxen, Pregablin co-codamol & pain patch, & my happy pill sertraline. I’ve endured injections in my spine neck & ribs for 5-6 yrs never again!! I think it’s osteoarthritis/ or polymyalgia or just about everything thing…. Been
thanks so much for your reply’s I have orthotic insoles to, water tablets, naproxen, Pregablin co-codamol & pain patch, & my happy pill sertraline. I’ve endured injections in my spine neck & ribs for 5-6 yrs never again!! I think it’s osteoarthritis/ or polymyalgia or just about everything thing…. Been
Spongebob1
in
Fibromyalgia Action UK
1 year ago
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Request - Real time experience Reco for the best haematologists in Portugal please
Implicated by Giant Cell
ARTERITIS
. I am on Hydroxyurea dose of 2.5 mg and stable at the moment with both my monsters. You may please reply privately to me in case reco are not acceptable on this group. Thankyou
Implicated by Giant Cell
ARTERITIS
. I am on Hydroxyurea dose of 2.5 mg and stable at the moment with both my monsters. You may please reply privately to me in case reco are not acceptable on this group. Thankyou
Iwillwin123
in
PMRGCAuk
2 years ago
Fed up
Hi guys me again after seeing the rheumatologist nurse last week and stopping the methotrexate I got my follow up letter. I was saying about my lower back pain getting worse and it going round to my hips. So she has booked me in next week for xrays on my lumbar spine and si joints. Anyway it says she
Hi guys me again after seeing the rheumatologist nurse last week and stopping the methotrexate I got my follow up letter. I was saying about my lower back pain getting worse and it going round to my hips. So she has booked me in next week for xrays on my lumbar spine and si joints. Anyway it says she
Brian1977
in
NRAS
1 year ago
Moderate osteoarthritic sacroiliac?
I had back fusion surgery a year ago and just had an xray for a follow up before I see the surgeon. It stated the S1 joint arthritis ?
I had back fusion surgery a year ago and just had an xray for a follow up before I see the surgeon. It stated the S1 joint arthritis ?
Jeaniem130
in
Arthritis Action
1 year ago
Very low iron at same time as previously controlled rheumatoid arthritis is now very much out of control.
I've been diagnosed with RA and Lupus for over 35 years. I went through most of the known drugs over many years before being accepted on Enbrel which was amazing and gave me back a quality of life I never thought I regain. However I was switched to Benopali under the assumption it was the same generic
I've been diagnosed with RA and Lupus for over 35 years. I went through most of the known drugs over many years before being accepted on Enbrel which was amazing and gave me back a quality of life I never thought I regain. However I was switched to Benopali under the assumption it was the same generic
Alberta69
in
NRAS
1 year ago
I'm realy stuck on this one
all started 3 months ago with some right side groin pain then something jumped out my back pounding my left foot. at moment i got a knee that wont track proper on that leg and its affecting the other. and the opposite hip to the bad leg is hurting cos I'm compensating which is also causing and ankle
all started 3 months ago with some right side groin pain then something jumped out my back pounding my left foot. at moment i got a knee that wont track proper on that leg and its affecting the other. and the opposite hip to the bad leg is hurting cos I'm compensating which is also causing and ankle
minka
in
Cure Arthritis Community
1 year ago
Toe pain
I am currently down to almost 2.5mg daily. I take 3.75 about 3 days a week (cutting a 2.5 in half). For a few weeks I have had a bit of pain in my right big toe joint and now all the toes on my left foot are tingly/achy too! Do you think this is PMR related or the start of arthritis?
I am currently down to almost 2.5mg daily. I take 3.75 about 3 days a week (cutting a 2.5 in half). For a few weeks I have had a bit of pain in my right big toe joint and now all the toes on my left foot are tingly/achy too! Do you think this is PMR related or the start of arthritis?
Sandyowl
in
PMRGCAuk
1 year ago
vastly different perspective of different rheumatologist: so am I terribly controlled after all?
hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional. It’s been well over two years since I saw a rheumatologist face to face - or indeed any kind of hospital medic. All that time my lovely learned consultant told me that although the arthritis was
hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional. It’s been well over two years since I saw a rheumatologist face to face - or indeed any kind of hospital medic. All that time my lovely learned consultant told me that although the arthritis was
Bon1
in
NRAS
1 year ago
what to take for inflammation when we have afib.
Hello to everyone, I am reaching out to you again. I have inflammation in my leg. I have arthritis in my knee and hip but it doesnt bother me, but the inflammation I have could be from this. I used to take an advil a couple of times a year. I know you cant take anti inflammatory medication when
Hello to everyone, I am reaching out to you again. I have inflammation in my leg. I have arthritis in my knee and hip but it doesnt bother me, but the inflammation I have could be from this. I used to take an advil a couple of times a year. I know you cant take anti inflammatory medication when
kitttycat
in
AF Association
1 year ago
Wondering if this is worth going back to my GP for
Hello everyone, I'm Zo I'm 27 and last year I was not diagnosed per say, but my GP 'suspected' or said it 'may be' early osteoarthritis as tests for rheumatoid arthritis came back negative (my mother has it). I've had joint pain since I was 18, started in my left knee and has since progressed to my
Hello everyone, I'm Zo I'm 27 and last year I was not diagnosed per say, but my GP 'suspected' or said it 'may be' early osteoarthritis as tests for rheumatoid arthritis came back negative (my mother has it). I've had joint pain since I was 18, started in my left knee and has since progressed to my
BonnieLass13
in
Arthritis Action
1 year ago
FREE Joint Pain Programme for people with chronic pain provided by Nuffield Health
Nuffield Health, the UK's largest healthcare charity, has launched a new Joint Pain Programme designed to help people better self-manage their chronic joint pain. The programme is available at all Nuffield Health gyms across the UK and is a FREE 12-week programme.
[u]
What is the Join Pain
Nuffield Health, the UK's largest healthcare charity, has launched a new Joint Pain Programme designed to help people better self-manage their chronic joint pain. The programme is available at all Nuffield Health gyms across the UK and is a FREE 12-week programme.
[u]
What is the Join Pain
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
1 year ago
Arthritis, PMR or both.
I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still get shoulder pain but it manifests in a different way to when I first got PMR. I had shoulder problems for some years before I got PMR. I found it difficult to tie up my blood parameters, which were fine, with the shoulder
I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still get shoulder pain but it manifests in a different way to when I first got PMR. I had shoulder problems for some years before I got PMR. I found it difficult to tie up my blood parameters, which were fine, with the shoulder
Hughie1951
in
PMRGCAuk
1 year ago
MRI Scan result
Well I guess this could have been better and I have to admit it's probably worse than I anticipated. I'll sort out a chat with the doc to see where/if we go from here. Hopefully my DEXA scan in a couple of weeks will be more cheerful. [i]The scan shows he has sciatica with neuropathic pain and if the
Well I guess this could have been better and I have to admit it's probably worse than I anticipated. I'll sort out a chat with the doc to see where/if we go from here. Hopefully my DEXA scan in a couple of weeks will be more cheerful. [i]The scan shows he has sciatica with neuropathic pain and if the
Bcol
in
PMRGCAuk
1 year ago
PMR shoulder pain?
I’m wondering if anyone else’s shoulder pain is worse in the evening. When first diagnosed I had the classic morning symptoms. As I also have inflammatory arthritis, scoliosis and spinal stenosis I am finding it difficult (as are the doctors) to match the symptoms to the conditions.
I’m wondering if anyone else’s shoulder pain is worse in the evening. When first diagnosed I had the classic morning symptoms. As I also have inflammatory arthritis, scoliosis and spinal stenosis I am finding it difficult (as are the doctors) to match the symptoms to the conditions.
Rachmaninov2
in
PMRGCAuk
1 year ago
What pain medication is a good replacement for Tramadol that can be taken with clonazapam? I take clonazapam for sleep behavior disorder.
this is my first time posting.
this is my first time posting.
Shadowperson
in
Pain Concern
1 year ago
PMR or arthritis update.
Just over a week ago I posted the question PMR or arthritis because my hips and back had flared up. I got great advice on here as usual which meant I increased my pred from 4mg to 7mg. It took two days to give me good pain relief but I felt a bit fed up cos I’d got down to 4mg and now gone backwards.
Just over a week ago I posted the question PMR or arthritis because my hips and back had flared up. I got great advice on here as usual which meant I increased my pred from 4mg to 7mg. It took two days to give me good pain relief but I felt a bit fed up cos I’d got down to 4mg and now gone backwards.
MiloCollie
in
PMRGCAuk
1 year ago
First weigh in of this year!!
I really need to lose weight this year, my health depends on it. I'm now 11st 5lbs but I'm only 5ft tall so very overweight ! Used to be 7st which was the right weight for my height. I really need so much help and support. Any suggestions to help would be greatly appreciated . I have osteoarthritis ,
I really need to lose weight this year, my health depends on it. I'm now 11st 5lbs but I'm only 5ft tall so very overweight ! Used to be 7st which was the right weight for my height. I really need so much help and support. Any suggestions to help would be greatly appreciated . I have osteoarthritis ,
pixielou
in
Weight Loss Support
1 year ago
thyroid elevated
Happy new year to all M upset n disappointed that my thyroid has been elevated I m doing my best regarding food exercise meds Also have high blood pressure Fibromyalgia arthritis Sjogens osteoarthritis Just venting out sorry
Happy new year to all M upset n disappointed that my thyroid has been elevated I m doing my best regarding food exercise meds Also have high blood pressure Fibromyalgia arthritis Sjogens osteoarthritis Just venting out sorry
Mystik
in
LUPUS UK
1 year ago
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