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JAK2 V617F Allele Burden and Thrombotic Events in Patients w/ JAK2 V617F Positive PCV/ET @ High Risk of Thrombosis
The cumulative incidence of
thrombosis
at 7 years was 35.5%.
Arterial
thrombosis
(93.8%) predominated. Median overall survival was 103.6 months (95% CI 68.8–138.4). Median thrombosis-free survival was 86 months (95% CI 68.4–103.6).
The cumulative incidence of
thrombosis
at 7 years was 35.5%.
Arterial
thrombosis
(93.8%) predominated. Median overall survival was 103.6 months (95% CI 68.8–138.4). Median thrombosis-free survival was 86 months (95% CI 68.4–103.6).
PhysAssist
in
MPN Voice
5 months ago
results
good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷♀️ meld score down to 12, so all is good news, am done with google I honestly
good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷♀️ meld score down to 12, so all is good news, am done with google I honestly
Kingbilly3
in
British Liver Trust
2 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
4 months ago
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How long for platelets to go back up?
Hello Since the start of my husband's cirrhosis journey last August, with a variceal bleed, his platelets went as low as 2700. Since then they rose to 6000 at one point and are now back down to 5000. I thought they would have gone much more by now but he is also on blood thinners because he has portal
Hello Since the start of my husband's cirrhosis journey last August, with a variceal bleed, his platelets went as low as 2700. Since then they rose to 6000 at one point and are now back down to 5000. I thought they would have gone much more by now but he is also on blood thinners because he has portal
looby24
in
British Liver Trust
7 months ago
Immunoglobulin tests
Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels checked as I like to keep a handle on those parameters which can indicate the status of my immune system. To be honest, I thought this would be done without question and routinely. However, my doc prefers that my CLL haematologist
Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels checked as I like to keep a handle on those parameters which can indicate the status of my immune system. To be honest, I thought this would be done without question and routinely. However, my doc prefers that my CLL haematologist
Fogey
in
CLL Support
7 months ago
difference between portal vein thrombosis and portal hypertension?
Good evening. New here. Husband in hospital with liver cirrhosis. Having scope on Monday and we were told today that he has portal vein thrombosis. I understand what that is but I’m confused after doing some research as to the difference between portal vein thrombosis and portal vein hypertension? Or
Good evening. New here. Husband in hospital with liver cirrhosis. Having scope on Monday and we were told today that he has portal vein thrombosis. I understand what that is but I’m confused after doing some research as to the difference between portal vein thrombosis and portal vein hypertension? Or
Lvbv
in
British Liver Trust
7 months ago
Polycythemia vera: 2024 update on diagnosis, risk-stratification, and management
Additional predictors for
arterial
thrombosis
include cardiovascular risk factors and for venous thrombosis higher absolute neutrophil count and JAK2V617F allele burden. Treatment Current goal of therapy is to prevent thrombosis.
Additional predictors for
arterial
thrombosis
include cardiovascular risk factors and for venous thrombosis higher absolute neutrophil count and JAK2V617F allele burden. Treatment Current goal of therapy is to prevent thrombosis.
Manouche
in
MPN Voice
1 year ago
The role of JAK2V617F allele burden in PV
Conclusion « The knowledge of the JAK2V617F mutation in relation to PV has allowed both physicians and patients to understand that risk is not inherently based on blood counts alone but also due to the effects of JAK2V617F VAF on thrombosis and disease progression. Prospective trials are now highlighting
Conclusion « The knowledge of the JAK2V617F mutation in relation to PV has allowed both physicians and patients to understand that risk is not inherently based on blood counts alone but also due to the effects of JAK2V617F VAF on thrombosis and disease progression. Prospective trials are now highlighting
Manouche
in
MPN Voice
11 months ago
Necrosing spleen
Does anyone have any experience of having a spleen embolisation? If so, did their spleen carry on necrosis 5 months later? Has anyone had a drain for 5 months outputting necrosing puss? How long were they in hospital for? My bother has PV and portal vein thrombosis and was directed to have radical
Does anyone have any experience of having a spleen embolisation? If so, did their spleen carry on necrosis 5 months later? Has anyone had a drain for 5 months outputting necrosing puss? How long were they in hospital for? My bother has PV and portal vein thrombosis and was directed to have radical
DeKa
in
MPN Voice
1 year ago
Purpura on w&w?
Since diagnosis 3 years ago, while on W&W, I have had presume purpura spots come and go on my left arm, but today, after reaching in to tomato cages to capture the best and presumably scraping my arm, I have developed a whole big area of what I assume to be purpura, spread over about 3 inches and not
Since diagnosis 3 years ago, while on W&W, I have had presume purpura spots come and go on my left arm, but today, after reaching in to tomato cages to capture the best and presumably scraping my arm, I have developed a whole big area of what I assume to be purpura, spread over about 3 inches and not
Vlaminck
in
CLL Support
1 year ago
Spleen embolisation gone wrong
Hello, Does anyone have any experience of why anyone with Polycythemia Vera and Portal Vein Thrombosis, with a 22cm spleen would be offered a partial splenectomy, a spleen embolisation through the groin? Has anyone been through this? My 48 year old brother went through this on 3rd April 2023 and
Hello, Does anyone have any experience of why anyone with Polycythemia Vera and Portal Vein Thrombosis, with a 22cm spleen would be offered a partial splenectomy, a spleen embolisation through the groin? Has anyone been through this? My 48 year old brother went through this on 3rd April 2023 and
DeKa
in
MPN Voice
1 year ago
TB diagnosis
I have recently been diagnosed with TB after being very ill in hospital with Covid. My immune system was so low that latent TB led to active TB, I would be interested to know of anyone also suffering from TB and in particular related to Covid.
I have recently been diagnosed with TB after being very ill in hospital with Covid. My immune system was so low that latent TB led to active TB, I would be interested to know of anyone also suffering from TB and in particular related to Covid.
cheeseaddict
in
TB Alert
10 days ago
post ablation pneumonia
twelve days post ablation and I have been back in hospital for four days with a bit of stubborn pneumonia w fluid in lungs. Care is great. Facilities lovely and comfortable, but I am weak and ready to feel well, please. no one seems surprised that I got pneumonia from breathing tube during procedure
twelve days post ablation and I have been back in hospital for four days with a bit of stubborn pneumonia w fluid in lungs. Care is great. Facilities lovely and comfortable, but I am weak and ready to feel well, please. no one seems surprised that I got pneumonia from breathing tube during procedure
37Polly
in
Atrial Fibrillation Support
15 days ago
Whooping cough
Hello. I have been struggling to recover from whooping cough which I've had since May. I am still bringing up phlegm. Sorry to be disgusting. My throat also feels like there is broken glass at the back of it. Has anyone else had problems this long after first symptoms?
Hello. I have been struggling to recover from whooping cough which I've had since May. I am still bringing up phlegm. Sorry to be disgusting. My throat also feels like there is broken glass at the back of it. Has anyone else had problems this long after first symptoms?
Clare1711
in
Lung Conditions Community Forum
16 days ago
It's A Mans World : Fibromyalgia/Prostatitis Bad Body Smells
[i]Hyper embarrassing question but my whole body smells like urine constantly.[/i]
[i]I wash 3 times daily & use 48 hour deodorant & I'm smelling like a skunk 🦨 [/i]
[i]My only medication is Buprenorphine 20 mg patches which you have to change every 7 days.[/i]
[i] [/i]
[b
[i]Hyper embarrassing question but my whole body smells like urine constantly.[/i]
[i]I wash 3 times daily & use 48 hour deodorant & I'm smelling like a skunk 🦨 [/i]
[i]My only medication is Buprenorphine 20 mg patches which you have to change every 7 days.[/i]
[i] [/i]
[b
Fibroguy66
in
Fibromyalgia Action UK
19 days ago
I stood up for myself-amazing
I am not really sure where I should put this as all my ailments seem to roll into one. Anyway I have been feeling unwell and extremely fatigued for well over a year and as many on here just trying to get help from the wonderful people who write with compassion on these threads. I can say in all truth
I am not really sure where I should put this as all my ailments seem to roll into one. Anyway I have been feeling unwell and extremely fatigued for well over a year and as many on here just trying to get help from the wonderful people who write with compassion on these threads. I can say in all truth
Nonameme
in
Pernicious Anaemia Society
20 days ago
Tetanus vaccination
Hi all, I'm sorry if I'm being repetitive here, but I can't see any info on vaccination against tetatus specifically for us pmr sufferers. I'm well overdue a booster but am hesitant, especially as where I live the practice is to give a combined diphtheria, whooping cough, tetanus and polio jab. On the
Hi all, I'm sorry if I'm being repetitive here, but I can't see any info on vaccination against tetatus specifically for us pmr sufferers. I'm well overdue a booster but am hesitant, especially as where I live the practice is to give a combined diphtheria, whooping cough, tetanus and polio jab. On the
11541stella
in
PMRGCAuk
21 days ago
Another Vaccine Dilemma! To have, or not to have a Tetanus Booster.
I've previously learnt on here that live vaccines are not recommended whilst on long term steroid medication, and that in many situations, alternative vaccines are available... as with the shingles vaccination program. Well, yesterday, whilst trimming my Wisteria, I accidentally pruned the tip of my
I've previously learnt on here that live vaccines are not recommended whilst on long term steroid medication, and that in many situations, alternative vaccines are available... as with the shingles vaccination program. Well, yesterday, whilst trimming my Wisteria, I accidentally pruned the tip of my
Kendrew
in
PMRGCAuk
1 month ago
Pneumococcal pneumonia vaccine - any link with PMR?
I have just realised that my recent flare, which led to the cancellation of my holiday, started the day after I had the pneumonia vaccine. I'm wondering if there could be a link?
I have just realised that my recent flare, which led to the cancellation of my holiday, started the day after I had the pneumonia vaccine. I'm wondering if there could be a link?
Broseley
in
PMRGCAuk
1 month ago
Link between cellulitis and thyroid
This is more of an academic question. About 8 years before I was diagnosed I had cellulitis 2 years running. The doctors and hospital were really confused why I'd got it. I was doing some training today around infection and sepsis and it mentioned to that certain conditions made you more liable to infection
This is more of an academic question. About 8 years before I was diagnosed I had cellulitis 2 years running. The doctors and hospital were really confused why I'd got it. I was doing some training today around infection and sepsis and it mentioned to that certain conditions made you more liable to infection
Annoynomice
in
Thyroid UK
1 month ago
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