Experiences with

Arterial thrombosis

From our friends ay MyMPNTeam. The interview with Dr. Kuykendall is informative and easily understood. There is an article based on the interview too. [i]“This association between high platelets and thrombotic events has been looked at in a variety of fashions over the past 50 years now, and really

Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It

Is there such a thing as a thrombosis score? I see it mentioned in the odd article? If so what affects this risk. I have a follow up appointment next week. At the moment I am on watch and wait for primary MF intermediate 1, with mutations JAK 2, 32% and DNMT3A 20%. Abnormaility in chromosome 9 and

hi everyone I’m about to start taking jakafi due to tomorrow, any input/suggestions for pmf patient like me, with splenomegaly and portal vein thrombosis (monthly ligation since march last year), jak2+, dmm3ta+ Hope to get feedback from the community! thanks a bunch!

Neutrophil-to-Lymphocyte Ratio May Predict Thrombotic Events in Polycythemia Vera Vicki Moore, PhD A new study suggests that the neutrophil-to-lymphocyte ratio (NLR) in patients with polycythemia vera (PV) at the time of diagnosis may serve as a predictor of thrombotic events. The study’s findings

leg pain bilaterally in ET treated with Hydra ( diagnosed 2014) Does anyone else have this?

Hello I have been diagnosed with ET jak2+ for 5 years following a heart attack where they found my platelets were at 1 million. The hospital did not alert me but my GP did at my 1 month follow up visit. I was sent to a hematologist/oncologist. I was put on Hydrea 500mg 7 tabs a week eventually increased

Hey fellow liver sufferers and carers. I hope life is manageable for you all! Basically I have Cirrhosis that decompensated liver nearly 2 years ago. Symptoms were jaundice, ascites ,sarcopenia, HE but got through this near death experience. I am now compensated. I went to the Royal Free last year

As platelet is a critical player in arterial thrombosis leading to ischemic pathologies like coronary heart disease and stroke, and intracellular calcium being a major determinant of platelet reactivity, any therapeutic use of melatonin should be monitored under intense caution."

My husband, now 84 has been on and off here since his cirrhosis diagnosis post AIH January 2014. He has gone from compensated to decompensated with a 6 month prognosis back to compensated, problems with a large portal vein thrombosis and varices but otherwise remarkably fit and pretty stable. However

hi, I have a diagnosis of portal vein thrombosis, portal hypertension, enlarged spleen, grade 3 esophageal varices all due to auto immune blood disorder. Am on warfarin, omeprazole, propranalol. I booked a holiday to Greece 4 months ago and was waiting for esophageal banding therefore did not book

Hi Everyone, I've started taking desogestrel as treatment for endometriomas and fibroids. I've only been taking it for a couple of weeks but I'm getting terrible back and leg pain every morning. It wears off a bit during the day but comes back in the evening. Also I'm having to get up every night

Hi Everyone, I know I don’t post on here all the time but I do think it helps me to rationalise my thoughts My story - April 2020 I found out: - I had Varices Grade 4 - Portal Vein Thrombosis and collaterals - Jax2 Positive I was then treated for ET MPN as my platelet count was high. After over 12

Good Afternoon Is any able to explain to me other than APS is their any reason why I should have a below range in immunoglobulin G,A,M The reason I am asking is that I am usually seen at St Thomas’s Hospital who I have excellent care with Now following a blood test from a local surgery ( who I don’t

I’ve been a ‘lurker’ here on the forum, writing very few posts but very much learning about liver disease, it’s complications and it’s effects on the patient, but also on those who care. I wanted to thank both the British Liver Trust for a fantastic resource of information on the liver and it’s complications

. ---- Here is more on the main point of the study: My focus was elsewhere but a few details some of us may like to know about that I learned: 1- Arterial Thrombosis concerns stroke or heart attack, Venous Thromb is for <<deep vein thrombosis, DVT (has been called economy class syndrome) , and pulmonary

In this thread I made summaries of some of the videos that Hunter kindly provided. A top stand out item seems worth its own discussion. Raajit Rampal showed prior and current ET risk rating factors, see image. Here is my note: "New ET thrombosis risk ratings: PLT counts are no longer in there. Used

Dear all,I am from Germany but I did not find any useful forums where I can read about similar syptoms and post meningitis peoblems! I had meningitis and was brought in hospital on 16.3 with a painful headache and fever.luckily the next day a doctor said he wants to do a „puncture“ to be sure it is not

Earlier this year, I posted my concerns regarding a forthcoming procedure where I had been informed that the dentist would remove four teeth and fit a cosmetic denture at the same time. All of the teeth were upper situated - one right in the front (which was a leaking abscess) and three, all close together

I was diagnosed with stage 0 breast cancer and went through two lumpectomies in April 2022, and 21 radiation treatments in May 2022, ending early June 2022. By the end of July 2022, I knew something was not right with my left lung with constant coughing, shortness of breath. In fall of 2022 I was diagnosed