Experiences with

Arterial thrombosis

The cumulative incidence of thrombosis at 7 years was 35.5%. Arterial thrombosis (93.8%) predominated. Median overall survival was 103.6 months (95% CI 68.8–138.4). Median thrombosis-free survival was 86 months (95% CI 68.4–103.6).

In September I went to the ED with acute abdominal pain which continued to worsen for 20 hours. After several tests I was taken by ambulance to the hospital where I stayed having tests for 3 days. In the hospital stay one of the tests was an Abdominal Dupex Complete Study which showed a a high grade

good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷‍♀️ meld score down to 12, so all is good news, am done with google I honestly

Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like

Hello Since the start of my husband's cirrhosis journey last August, with a variceal bleed, his platelets went as low as 2700. Since then they rose to 6000 at one point and are now back down to 5000. I thought they would have gone much more by now but he is also on blood thinners because he has portal

Hi again. Yesterday I asked my GP if I could have my blood immunoglobulin levels checked as I like to keep a handle on those parameters which can indicate the status of my immune system. To be honest, I thought this would be done without question and routinely. However, my doc prefers that my CLL haematologist

Good evening. New here. Husband in hospital with liver cirrhosis. Having scope on Monday and we were told today that he has portal vein thrombosis. I understand what that is but I’m confused after doing some research as to the difference between portal vein thrombosis and portal vein hypertension? Or

Additional predictors for arterial thrombosis include cardiovascular risk factors and for venous thrombosis higher absolute neutrophil count and JAK2V617F allele burden. Treatment Current goal of therapy is to prevent thrombosis.

Conclusion « The knowledge of the JAK2V617F mutation in relation to PV has allowed both physicians and patients to understand that risk is not inherently based on blood counts alone but also due to the effects of JAK2V617F VAF on thrombosis and disease progression. Prospective trials are now highlighting

Hi all, first post on here but have watched from a distance for last couple of years and have gained much insight and knowledge from the community, thank you. My question is probably aimed to those that have suffered from GCA and what the early signs were. I have had PMR for 3.5 years and am steady

Currently at 4 mg prednisone. Started feeling sick 6 days ago and think this is much more than a cold (fever at about 100 F every day plus sinus congestion, dry cough and extreme fatigue). Fear it may be pneumonia as I'm way more miserable than I've ever been with a cold. Tested for COVID twice and

Finally, I have been diagnosed, Active non Bacterium Tuberculosis. Apparently had this over a year ! It's treatable and curable, TB must have become active just after the first Broncoscopy, PET scan didnt pick Up due to continued infection and inflammation., a further Broncoscopy last week picked

Hi I have been taking Nariparib for around a year. I am going to Thailand for Xmas and am booked in to get the hepatitis A, hep B, tetanus and typhoid jab. Does anyone know if it is safe for me to get these jabs? I’ve just read that I should avoid live vaccinations while on Nariparib….

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I just learned about the Epcoritimab trial. The results are extraordinary. We are moving closer to a functional cure. The author said that if we combine a btk inhibitor, bcl-2, and CAR T, we could be looking at a CURE. https://cllsociety.org/2024/10/solid-results-for-epcoritimab-for-relapsed-refractory-cll

Hi Peeps, I hope this post finds you as well as you can be today 😊 I have a question: I have sinusitis and can't shift it. I have Tocilizumab and Metoject injections weekly. Has anyone had antibiotics that shifts sinusitis? I know we're limited to which antibiotics we can take, but this is really

I’ve been in hospital with severe pneumonia and treated for sepsis. Temp 39-41.4, rapid heart rate, low blood pressure. - I didn’t have sepsis but they proactively treated for it given the infection markers in my blood. I was looked after very well. I’ve had pneumonia since mid July but my chest

Yes, more good news!! This morning I woke up because my feet were cold; they were cold and wet. There was a 15 x 18-inch puddle of soaked bedding under my ankles and feet. My left ankle had been red for about a week, and I outlined the red area with a permanent marker to see if it shrank or got larger

Those of you who suffer COP, and infection , how do you manage with antibiotics? As COP is resistant to most, I would like to know if any work My last antibiotic was IV due to this. Thank you

hello to all who were so encouraging as began my recovery, late August. I sadly missed my grandsons wedding but have lovely photos. No one predicted double pneumonia and three return trips to the hospital, one in loud ambulance, (a first in my 84 yrs)….but no one at the hospital seemed surprised either