My dad: Hello, Everyone: I haven't posted here in... - ICUsteps

ICUsteps

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My dad

ForMyPapa profile image
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Hello, Everyone:

I haven't posted here in a while, but a year ago, my dad who was in his late 70s then had severe pneumonia (ARDS) in the hospital and had been in the ICU for almost 3 months.

I just wanted to share that since then he has been discharged and has been home since last June. In the beginning, he couldn't walk for long, eat normal food, or drink water, but thanks to all the amazing therapy he received at home and due to his resilience and efforts, he is now walking and going to work, practicing golf at a golf range and eats and drinks almost everything (except very sticky mochi). :) We feel so lucky and grateful.

However, at his last follow-up appointment this week, the doctor said the bottom of his lungs developed fibrosis and now it's like he has interstitial pneumonia and inflation makers are up again, so he has to be back on a higher dosage of steroids. I am just wondering if anyone had persistent pneumonia like this? At the moment, my dad feels good and his oxygen level is like 98 if he is sitting. But he needs a break periodically when walking very fast. When I look up interstitial pneumonia, it says there is no cure and it sounds very scary. He continues to do PT twice a week and takes all the medications his doctor prescribes. Is there anything else I can do to help improve his condition? Anyone's experience and advice will be appreciated.

Thank you!

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