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Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
1 month ago
delivery day: Body’s ‘message in a bottle’ delivers targeted cancer treatment
“Researchers at Karolinska Institutet in Sweden have succeeded in delivering targeted cancer treatment via small membrane bubbles that our cells use to communicate. A new study published in Nature Biomedical Engineering shows that the treatment reduces tumour growth and improves survival in mice.”
“Researchers at Karolinska Institutet in Sweden have succeeded in delivering targeted cancer treatment via small membrane bubbles that our cells use to communicate. A new study published in Nature Biomedical Engineering shows that the treatment reduces tumour growth and improves survival in mice.”
Maxone73
in
Advanced Prostate Cancer
1 month ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
1 month ago
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Skull met!
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
I am receiving radiation on a skull med on my left side, just passed my optical nerve area. I am wondering if I should have another MRI after the fifth or sixth radiation treatment to see if the med has been eliminated or should they continue on with the complete 10 treatments? any suggestions would
docbulldog
in
Advanced Prostate Cancer
1 month ago
PSA Roller Coaster ride!
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
JD-guy
in
Advanced Prostate Cancer
6 months ago
Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
1 month ago
Companies that test liver biospy tissue to see what immunotherapy, parp inhibitors or ATK inhibitors would work?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
Shorehousejam
in
Advanced Prostate Cancer
1 month ago
Worsening back pain after treatment?
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
I’ve had back pain before, and even had surgery to relieve it, but this is different. I’ve brought this up with my RO and my plain oncologist, but wanted to see if anyone here has experienced this. Next week I’ll be talking to my GP. A reminder of my DX: Gleason 9, spread to local lymph nodes. Treated
Jpburns
in
Advanced Prostate Cancer
1 month ago
Scared of the Future.....
My husband (42M) has been having the feeling of needing to use the bathroom 7-10 times a day, and it always comes out as gas or diarrhea, loose watery stools. I had him to our primary doctor and get some tests run. All of his bloodwork has come back ok, his platelets are a little high, but his iFOBT
My husband (42M) has been having the feeling of needing to use the bathroom 7-10 times a day, and it always comes out as gas or diarrhea, loose watery stools. I had him to our primary doctor and get some tests run. All of his bloodwork has come back ok, his platelets are a little high, but his iFOBT
MisSchulte
in
Colon Cancer Connected
1 month ago
Disappointed
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
After Lupron, NUBEQA and Zytega … and a recent FDG Cat scan Several nodes lit up in the periodonal aorta area of his abdomen. Being totally right up against the aorta, a decision was made to remove them robotically. Surgery went well. All lymph’s were removed that lit up on the scan. docs felt PSA
JolleySprings
in
Advanced Prostate Cancer
1 month ago
Thank you Angela for sharing your story!
“I have never really been a sun worshipper but I have used sunbeds in the past. I used to hire one for use at home in my late teens/early 20’s then used the stand-up ones on and off at tanning salons a few years after that. I never thought there was any harm in using sunbeds and I can’t remember seeing
“I have never really been a sun worshipper but I have used sunbeds in the past. I used to hire one for use at home in my late teens/early 20’s then used the stand-up ones on and off at tanning salons a few years after that. I never thought there was any harm in using sunbeds and I can’t remember seeing
SkcinHQ
Partner
in
Skin Cancer UK
1 month ago
Disgusted with Healthcare
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
Vangogh1961
in
Advanced Prostate Cancer
1 month ago
Androlic acid
8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me to start androlic acid to help my bones after a dexa scan showed I had oastiopenia . I really do not want to start the meds and am very anxious
8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me to start androlic acid to help my bones after a dexa scan showed I had oastiopenia . I really do not want to start the meds and am very anxious
SjDexDolly
in
PMRGCAuk
1 month ago
ERLEADA brain dead
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
icanwintwice
in
Advanced Prostate Cancer
6 months ago
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, [i][b] also developing for neuroendocrine prostate cancer[/b][/i]
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
The FDA on Thursday approved Amgen’s bispecific T-cell engager tarlatamab, which will now carry the brand name Imdelltra, for the treatment of extensive-stage small lung cancer in patients with disease progression on or after platinum chemotherapy. Imdelltra is approved under the regulator’s accelerated
Scout4answers
in
Advanced Prostate Cancer
1 month ago
Running post cancer
So a shock diagnosis of colon cancer last year, surgery and chemo and I'm now doing c25k for a second time hoping that exercise can have some beneficial effect in keeping me healthy. Anyone else in this situation?
So a shock diagnosis of colon cancer last year, surgery and chemo and I'm now doing c25k for a second time hoping that exercise can have some beneficial effect in keeping me healthy. Anyone else in this situation?
RamblingMe
Graduate
in
Couch to 5K
1 month ago
Update on Failing Pirtobrutinib
After 8 months on pirto, my specialist confirmed the drug is indeed no longer working. We discussed 2 options, CAR-T (not a trial) and a BTK degrader trial at Penn. After a long explanation of how they handle the CAR-T procedure, (it is done on an outpatient basis). Along with all the major risks and
After 8 months on pirto, my specialist confirmed the drug is indeed no longer working. We discussed 2 options, CAR-T (not a trial) and a BTK degrader trial at Penn. After a long explanation of how they handle the CAR-T procedure, (it is done on an outpatient basis). Along with all the major risks and
ReneeSusan
in
CLL Support
1 month ago
Prostate-Kidney and BPH Decision for treatment.
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Seminole0412
in
Advanced Prostate Cancer
6 months ago
reduced doseage of ibrance
Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg. This makes me very nervous, though she says there should be no reduction in effectiveness . Has anybody had this happen and what were the results? Did the smaller dose still work for you? I have been on ibrance and letrozole
Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg. This makes me very nervous, though she says there should be no reduction in effectiveness . Has anybody had this happen and what were the results? Did the smaller dose still work for you? I have been on ibrance and letrozole
Dragonfighter
in
SHARE Metastatic Breast Cancer
6 months ago
Moving on from Xeloda
sadly my markers have been rising and I have been having belly pain plus my neck node doubled in size since before my 2 months in New Zealand… weirdly but typical for lobular my CT scan showed practically disease… such that then I had to get a PET scan to confirm that… that seems also not to show anything
sadly my markers have been rising and I have been having belly pain plus my neck node doubled in size since before my 2 months in New Zealand… weirdly but typical for lobular my CT scan showed practically disease… such that then I had to get a PET scan to confirm that… that seems also not to show anything
Bettybuckets
in
SHARE Metastatic Breast Cancer
1 month ago
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