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Our Stories: being diagnosed with a rarer ovarian cancer - Monday 22 January, 3pm - 4pm
Good morning everyone We wanted to let you all know that next week, we will be hosting another session of the 'Our Stories' member-led series. In this new series, the Ovacome team will be joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis of
Good morning everyone We wanted to let you all know that next week, we will be hosting another session of the 'Our Stories' member-led series. In this new series, the Ovacome team will be joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis of
OvacomeSupport
My Ovacome Team
in
My Ovacome
6 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
HELP WITH SIDE EFFECTS FROM ENZALUTAMIDE
In 2019 after a prolonged bout of diarrhea a blood test was ordered, the cause of the diarrhea was not discovered but the test indicated bone cancer. From there tests showed extensive bone mets and grade 9 Gleason APC. Chemotherapy radiation and firmagon followed. My psa went way down for about 18 months
In 2019 after a prolonged bout of diarrhea a blood test was ordered, the cause of the diarrhea was not discovered but the test indicated bone cancer. From there tests showed extensive bone mets and grade 9 Gleason APC. Chemotherapy radiation and firmagon followed. My psa went way down for about 18 months
Desrochers
in
Advanced Prostate Cancer
6 months ago
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PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
6 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
6 months ago
PSA Response From Broccoli Sprout Extract (Sulforaphane) May Due To Just Being Moderate ADT
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
jazj
in
Advanced Prostate Cancer
6 months ago
AS is over:-(
On second biopsy GG 2 lesion found. :-( Thoughts welcome on next steps. ----------Biopsy results----------------------------------------- A. Right Apex Prostate: Needle Core Biopsy: Benign prostatic tissue B. Right Mid Prostate: Needle Core Biopsy: Benign prostatic tissue C. Right Base
On second biopsy GG 2 lesion found. :-( Thoughts welcome on next steps. ----------Biopsy results----------------------------------------- A. Right Apex Prostate: Needle Core Biopsy: Benign prostatic tissue B. Right Mid Prostate: Needle Core Biopsy: Benign prostatic tissue C. Right Base
witantric
in
Fight Prostate Cancer
20 hours ago
plural effusion
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
Green999
in
My Ovacome
1 day ago
Mays Cancer Center seeks HCC survivors/caregivers in South Texas
The
Mays Cancer Center
would like to speak with survivors and caregivers of cervical cancer,
liver cancer
, and pediatric leukemia
[i]
living in South Texas
[/i]
to identify, describe, and reflect on experiences around the delivery of care, care needs, and participating
The
Mays Cancer Center
would like to speak with survivors and caregivers of cervical cancer,
liver cancer
, and pediatric leukemia
[i]
living in South Texas
[/i]
to identify, describe, and reflect on experiences around the delivery of care, care needs, and participating
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 days ago
results of nail biopsy
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
artydutch
in
MPN Voice
2 days ago
MRI prior to HDR Brachy and HDR intensity.
Hi Friends, Hey, I'm doing well to date in coping with HT and have just had 10 of my 23 VMAT radiation sessions. So far so good. BUT recently I was told that the radiation sessions are nothing compared to the "Brutal" HDR Brachy Boost I am having in mid-August. That wasn't what I wanted to hear, so
Hi Friends, Hey, I'm doing well to date in coping with HT and have just had 10 of my 23 VMAT radiation sessions. So far so good. BUT recently I was told that the radiation sessions are nothing compared to the "Brutal" HDR Brachy Boost I am having in mid-August. That wasn't what I wanted to hear, so
Mike58
in
Advanced Prostate Cancer
2 days ago
father psa 7 right after surgery
Hello! My father (61) was diagnosed with prostate cahcer in August with PSA 13 and Gleason 7.... - we are in Boston - he couldn't be seen for several months - had his prostate removed about 6 weeks ago - surgeon and pathologist thought they got it all, told us they took out an extra lymph to be safe
Hello! My father (61) was diagnosed with prostate cahcer in August with PSA 13 and Gleason 7.... - we are in Boston - he couldn't be seen for several months - had his prostate removed about 6 weeks ago - surgeon and pathologist thought they got it all, told us they took out an extra lymph to be safe
Ccullen91011
in
Advanced Prostate Cancer
6 months ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
3 days ago
Metastatic pathway discovered???
Well, this may be a long shot but a friend of mine listened to a radio broadcast on BBC radio 4? about a pathologists discovery of a previously unidentified circulatory system! My understanding of what was said The abstract version - When tissue is prepared for slicing in a microtome the end result
Well, this may be a long shot but a friend of mine listened to a radio broadcast on BBC radio 4? about a pathologists discovery of a previously unidentified circulatory system! My understanding of what was said The abstract version - When tissue is prepared for slicing in a microtome the end result
Aardvark4
in
Advanced Prostate Cancer
3 days ago
Any Herceptin / Prejeta long term survivors? I really need to hear from you.
The death of Shannon Doherty has made me think about my own journey. It is not like I was a huge fan, but she was diagnosed with MBC the same time as I was- Feb 2020. so I have followed her and her open dialogue about her cancer. Her death of course has made me go to the darkest of places.I have been
The death of Shannon Doherty has made me think about my own journey. It is not like I was a huge fan, but she was diagnosed with MBC the same time as I was- Feb 2020. so I have followed her and her open dialogue about her cancer. Her death of course has made me go to the darkest of places.I have been
Onedayatatime60
in
SHARE Metastatic Breast Cancer
3 days ago
Please join us Tuesday, July 16th, for our Living Room discussion on The Best of ASCO 2024!
Hello, Please join us in our San Carlos office Tuesday July 16th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Dr. Roy S.Herbst, MD, Yale Cancer Center. Learn about the new discoveries and clinical advancements shared
Hello, Please join us in our San Carlos office Tuesday July 16th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Dr. Roy S.Herbst, MD, Yale Cancer Center. Learn about the new discoveries and clinical advancements shared
Michelezeh
Administrator
in
Lung Cancer Support
3 days ago
MBC and diet
Hi everyone I was first diagnosed with BC in 2000. I had a recurrence (2nd primary) 17 years later. 6 years later I was diagnosed with MBC. I had a small tumor present in my dermis at the masectomy scar sight. They followed with surgery (a lumpectomy to the reconstructed breast and targeted radiation
Hi everyone I was first diagnosed with BC in 2000. I had a recurrence (2nd primary) 17 years later. 6 years later I was diagnosed with MBC. I had a small tumor present in my dermis at the masectomy scar sight. They followed with surgery (a lumpectomy to the reconstructed breast and targeted radiation
CalGal56
in
SHARE Metastatic Breast Cancer
4 days ago
Metathesized Breast Cancer after 28 years
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
Notofu4me
in
SHARE Metastatic Breast Cancer
5 days ago
UpdateUpdateTO MY BREAST CANCER
Seen tthe Oncologist My lump has grown it's now 22mm so the tamoxifen wasn't doing its work. So we are going to try another drug called anastrozole, for two months then back to the Oncologist to see if it worked if it hasn't then look at other options. The tamoxifen has been stopped.
Seen tthe Oncologist My lump has grown it's now 22mm so the tamoxifen wasn't doing its work. So we are going to try another drug called anastrozole, for two months then back to the Oncologist to see if it worked if it hasn't then look at other options. The tamoxifen has been stopped.
Redier
in
Male Breast Cancer
5 days ago
Next weeks medical treats
Hi everyone the clocks counting down , Radiotherapy starts next Tuesday. I have a problem already they don't give you the timetable of appointments till you go so if I have to go back on Thursday not enough warning (i.e 48hrs notice required for transport) Even the cancer centre requires 48 hrs notice
Hi everyone the clocks counting down , Radiotherapy starts next Tuesday. I have a problem already they don't give you the timetable of appointments till you go so if I have to go back on Thursday not enough warning (i.e 48hrs notice required for transport) Even the cancer centre requires 48 hrs notice
katieoxo60
in
Lung Conditions Community Forum
5 days ago
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