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Aortic dissection
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Being warned of deterioration
She and I realised she'd suffered an
aortic
dissection
. We got her into Bristol Royal Infirmary (BRI) and try as they did they couldn't save her. We lost her in the early hours of the following morning, aged 29.
She and I realised she'd suffered an
aortic
dissection
. We got her into Bristol Royal Infirmary (BRI) and try as they did they couldn't save her. We lost her in the early hours of the following morning, aged 29.
TooLate4Daughter
in
British Heart Foundation
2 years ago
Should we be warned we in danger?
She and I realised she'd suffered an
aortic
dissection
. We got her into Bristol Royal Infirmary (BRI) and try as they did they couldn't save her. We lost her in the early hours of the following morning, aged 29.
She and I realised she'd suffered an
aortic
dissection
. We got her into Bristol Royal Infirmary (BRI) and try as they did they couldn't save her. We lost her in the early hours of the following morning, aged 29.
TooLate4Daughter
in
British Heart Foundation
2 years ago
Expiration date
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
EiCa
in
Pernicious Anaemia Society
2 years ago
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Besremi has (No?) Preservative
This is info is just for curious types, nothing of concern or worry for us Bes users. -Most injectables have some means for preserving. Refrigerating is a 1st line of defense. For Besremi there is confusing info on whether and what type of preservative beyond keeping it cold Besremi uses. In the
This is info is just for curious types, nothing of concern or worry for us Bes users. -Most injectables have some means for preserving. Refrigerating is a 1st line of defense. For Besremi there is confusing info on whether and what type of preservative beyond keeping it cold Besremi uses. In the
EPguy
in
MPN Voice
2 years ago
I’m new here, but wanted to share a positive message and touch on post heart attack mental health
I’m 58 and suffered a heart attack (STEMI), on a plane followed by cardiogenic shock in April 2022. I have 5 stents fitted to two arteries supplying my heart. I went into cardiogenic shock shortly after the first 4 stents were inserted during the heart attack. I was taken into intensive care and had
I’m 58 and suffered a heart attack (STEMI), on a plane followed by cardiogenic shock in April 2022. I have 5 stents fitted to two arteries supplying my heart. I went into cardiogenic shock shortly after the first 4 stents were inserted during the heart attack. I was taken into intensive care and had
CyclingRich
in
British Heart Foundation
2 years ago
5 months after aortic dissection repair
Hi I had an emergency repair of a type A
aortic
dissection
in November '21 after being blue lighted up to Kings.
Hi I had an emergency repair of a type A
aortic
dissection
in November '21 after being blue lighted up to Kings.
Joanna66
in
British Heart Foundation
2 years ago
Potassium!
Part of the reason I did this was from a hospital stay 4 years ago when my AF restarted due to an
aortic
dissection
. The hospital said my K levels were in range, but that "we like you up the top end of the range" and gave me some horrible tasting K supplementation (sachets).
Part of the reason I did this was from a hospital stay 4 years ago when my AF restarted due to an
aortic
dissection
. The hospital said my K levels were in range, but that "we like you up the top end of the range" and gave me some horrible tasting K supplementation (sachets).
Cliff_G
in
AF Association
2 years ago
My mum had an Type A aortic dissection
So yes- as said in the title, my mum had a very unexpected type A
aortic
dissection
on Boxing Day. She managed to recover (had some fluid around lungs+heart/irregular heart beats but was reassured that this is very common after huge surgeries).
So yes- as said in the title, my mum had a very unexpected type A
aortic
dissection
on Boxing Day. She managed to recover (had some fluid around lungs+heart/irregular heart beats but was reassured that this is very common after huge surgeries).
refrigerated6
in
British Heart Foundation
3 years ago
IBS general: my experience
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Stuart24
in
IBS Network
2 years ago
Is my FT4 too high to add T3?
I’m from the USA and glad I found this group. So I had a thyroidectomy for papillary cancer. I’ve been on T4 synthroid for 3 years. Various dose changes throughout. The goal is to suppress the TSH. No matter the dose change, my FT4 hangs at the higher range. In July 2021 I had central left neck dissection
I’m from the USA and glad I found this group. So I had a thyroidectomy for papillary cancer. I’ve been on T4 synthroid for 3 years. Various dose changes throughout. The goal is to suppress the TSH. No matter the dose change, my FT4 hangs at the higher range. In July 2021 I had central left neck dissection
Thyca63
in
Thyroid UK
3 years ago
Heart conditions and jab?
Sibling had an
aortic
dissection
type a and b April this year 6 months after 1st jab, requiring 6 hour open heart operation, thankfully survived! 6 months later parent has
aortic
dissection
type b can’t operate as has COPD told to enjoy every day!!!!
Sibling had an
aortic
dissection
type a and b April this year 6 months after 1st jab, requiring 6 hour open heart operation, thankfully survived! 6 months later parent has
aortic
dissection
type b can’t operate as has COPD told to enjoy every day!!!!
Louiselou13
in
AF Association
3 years ago
Aortic dissection and travel
I had an unplanned emergency
aortic
dissection
at the start of the year, and am luckily recovering well. Still on beta blockers and warfarin. I'm not having 'ongoing treatment' just taking the medication, so what should I answer on travel insurance questions pls?
I had an unplanned emergency
aortic
dissection
at the start of the year, and am luckily recovering well. Still on beta blockers and warfarin. I'm not having 'ongoing treatment' just taking the medication, so what should I answer on travel insurance questions pls?
esro
in
British Heart Foundation
3 years ago
Daily struggle with anxiety
She had
aortic
dissection
, and I constantly worry that I have that too since it’s genetic. I recently got a divorce from my husband when we were together 10 years. It was painful and Although I am dating someone new, it hurts and I miss him all the time.
She had
aortic
dissection
, and I constantly worry that I have that too since it’s genetic. I recently got a divorce from my husband when we were together 10 years. It was painful and Although I am dating someone new, it hurts and I miss him all the time.
Nm8547
in
Anxiety Support
3 years ago
Abdominal pain from shots?
I have had constant upper abdominal pain for two weeks. I had been titrating my sc injections because of side effects. I use hydroxy. When I did a 500 mcg. dose the abdominal pain started that day. I waited ten days to do my next shot and only too 250 mcg. My abdominal pain is the same. Nothing else
I have had constant upper abdominal pain for two weeks. I had been titrating my sc injections because of side effects. I use hydroxy. When I did a 500 mcg. dose the abdominal pain started that day. I waited ten days to do my next shot and only too 250 mcg. My abdominal pain is the same. Nothing else
EiCa
in
Pernicious Anaemia Society
3 years ago
Cll and skin cancer - An update and a warning.
You may recall I had a neck dissection followed by 6 weeks of intensive radiotherapy which finished about 6 weeks ago. This was to treat SCC of the parotid gland which had spread to lymph nodes in my neck I got through all of that ok and managed the side effects from the RT. Even my CLL was in remission
You may recall I had a neck dissection followed by 6 weeks of intensive radiotherapy which finished about 6 weeks ago. This was to treat SCC of the parotid gland which had spread to lymph nodes in my neck I got through all of that ok and managed the side effects from the RT. Even my CLL was in remission
aloneifly
in
CLL Support
3 years ago
Parasympathetic Nervous System - Vagus Nerve
As many of you know along with AF I suffer from a relatively rare (we think?) condition called Myasthenia gravis which is a neuro muscular condition which most people haven’t heard of but has a similar affect to MS but through a different mechanism. For over 7 years I have been chasing missing bits
As many of you know along with AF I suffer from a relatively rare (we think?) condition called Myasthenia gravis which is a neuro muscular condition which most people haven’t heard of but has a similar affect to MS but through a different mechanism. For over 7 years I have been chasing missing bits
CDreamer
in
Atrial Fibrillation Support
3 years ago
Looking for correct group
Can anyone please advise if there is an HU group for my circumstances. I have SCC from parotid gland which has spread to neck lymph nodes. It's been removed by neck dissection and I'm on day 2 of Radio Therapy. Looking for support for the side effects of RT as well as recovery from the surgery. Thanks
Can anyone please advise if there is an HU group for my circumstances. I have SCC from parotid gland which has spread to neck lymph nodes. It's been removed by neck dissection and I'm on day 2 of Radio Therapy. Looking for support for the side effects of RT as well as recovery from the surgery. Thanks
aloneifly
in
Thyroid UK
4 years ago
Who else waiting too long for time critical surgery?
Just lost our 29 year old daughter to an
aortic
dissection
. Surgeons that night did their best I am sure but she was awaiting aortic surgery delayed since March - too long! How many others are out there that are not getting their needed surgery?
Just lost our 29 year old daughter to an
aortic
dissection
. Surgeons that night did their best I am sure but she was awaiting aortic surgery delayed since March - too long! How many others are out there that are not getting their needed surgery?
TooLate4Daughter
in
British Heart Foundation
4 years ago
Advice on levothyroxine, supplements and possible T3 addition after thyroid cancer and treatment
Advice on levothyroxine dose, supplements and possible T3 addition after thyroid cancer and treatment I’m looking for some guidance/advice on a few issues if possible as feeling pretty lost and a bit overwhelmed on what to do next. I’ve been reading a lot of posts and information on here for a few months
Advice on levothyroxine dose, supplements and possible T3 addition after thyroid cancer and treatment I’m looking for some guidance/advice on a few issues if possible as feeling pretty lost and a bit overwhelmed on what to do next. I’ve been reading a lot of posts and information on here for a few months
rosegold-rockchick
in
Thyroid Cancer Support
4 years ago
Advice on levothyroxine dose, supplements and possible T3
Advice on levothyroxine dose, supplements and possible T3 addition I’m looking for some guidance/advice on a few issues if possible as feeling pretty lost and a bit overwhelmed on what to do next. I’ve been reading a lot of posts and information on here for a few months since joining and finally plucked
Advice on levothyroxine dose, supplements and possible T3 addition I’m looking for some guidance/advice on a few issues if possible as feeling pretty lost and a bit overwhelmed on what to do next. I’ve been reading a lot of posts and information on here for a few months since joining and finally plucked
rosegold-rockchick
in
Thyroid UK
4 years ago
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