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Experiences with
Aortic dissection
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Aortic valve replacement
I had an A-type
Aortic
dissection
in 2017 - emergency open heart surgery followed, with a replacement tissue aortic valve as well. I was told the valve would need replacing in 10 to 15 years. I'm 7 years in now, and my question is how will I know when the valve needs replacing?
I had an A-type
Aortic
dissection
in 2017 - emergency open heart surgery followed, with a replacement tissue aortic valve as well. I was told the valve would need replacing in 10 to 15 years. I'm 7 years in now, and my question is how will I know when the valve needs replacing?
Petercat1
in
British Heart Foundation
26 days ago
acute pericarditis
Swift, great workup, no coronary disease, no pulmonary embolism, no
Aortic
dissection
. Pericardial effusion, CRP of 22, turns out I have Pericarditis. Not fun. No vigorous exercise for 3 months/ Colchicine, Naproxyn. Interacts with Ibrutanib, so have stopped it.
Swift, great workup, no coronary disease, no pulmonary embolism, no
Aortic
dissection
. Pericardial effusion, CRP of 22, turns out I have Pericarditis. Not fun. No vigorous exercise for 3 months/ Colchicine, Naproxyn. Interacts with Ibrutanib, so have stopped it.
Roll0verRover1
in
CLL Support
8 months ago
Aortic dissection
I just wanted to hear some recovery stories from you all and definitely if there's any
aortic
dissection
people recovering. Many thanks 😊
I just wanted to hear some recovery stories from you all and definitely if there's any
aortic
dissection
people recovering. Many thanks 😊
Farawaytree
in
British Heart Foundation
1 year ago
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Aortic Dissection
6 weeks ago I was unexpectedly diagnosed with an
aortic
dissection
and had key hole surgery to put in a stent. I have had no aftercare whatsoever as I was discharged from ICU and not the Cardio ward. As such I have fallen between the gaps. I have no idea about what I can and can't do.
6 weeks ago I was unexpectedly diagnosed with an
aortic
dissection
and had key hole surgery to put in a stent. I have had no aftercare whatsoever as I was discharged from ICU and not the Cardio ward. As such I have fallen between the gaps. I have no idea about what I can and can't do.
Twinnyducks
in
British Heart Foundation
1 year ago
HRT after Thyroid Cancer
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
DarkStar85
in
Thyroid UK
7 months ago
Enlarged heart
My mum passed away from
aortic
dissection
a short while ago and as a result I have been referred for genetic tests. It appears I now also have mild dilation of the thoracic aorta.Â
My mum passed away from
aortic
dissection
a short while ago and as a result I have been referred for genetic tests. It appears I now also have mild dilation of the thoracic aorta.Â
Maple_cakes
in
British Heart Foundation
1 year ago
Stiff chest
13 weeks ago to fix an
aortic
dissection
. I, stupidly, fell over on some black ice last Saturday and since then my chest in various places has been really stiff almost sore.
13 weeks ago to fix an
aortic
dissection
. I, stupidly, fell over on some black ice last Saturday and since then my chest in various places has been really stiff almost sore.
witchcraft
in
British Heart Foundation
2 years ago
where can I find info on thyroid function tests
thanks to those who replied to my question the other day about my gp wanting to reduce my meds (I have no thyroid following removal along with neck dissection due to papillary thyroid cancer). I that issue is resolved for now but I realised I am poorly informed about thyroid function tests and interactions
thanks to those who replied to my question the other day about my gp wanting to reduce my meds (I have no thyroid following removal along with neck dissection due to papillary thyroid cancer). I that issue is resolved for now but I realised I am poorly informed about thyroid function tests and interactions
Didntexpectthis
in
Thyroid UK
1 year ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
1 year ago
post Papillary Thyroid Cancer
had full thyroidectomy and neck dissection in May 2022 which removed 24 lymph nodes and 2 parathyroid glands as well. All good, apparently now cancer free. Was not able to have RAI as had apparently had thyroiditis (picked up when thyroid examined post op). Was on 100 mg levothyroxine and felt
had full thyroidectomy and neck dissection in May 2022 which removed 24 lymph nodes and 2 parathyroid glands as well. All good, apparently now cancer free. Was not able to have RAI as had apparently had thyroiditis (picked up when thyroid examined post op). Was on 100 mg levothyroxine and felt
Didntexpectthis
in
Thyroid UK
1 year ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
1 year ago
Holding very low stable usPSA - 0.03X range for six years; no ADT, no chemo.
The nanoMRI lite up suspicious pelvic lymph nodes so had salvage extended pelvic lymph node
dissection
surgery. Cancer confirmed at the para-
aortic
nodes. Today, six years hence, holding very low stable usPSA, 0.03X range, no ADT, no chemo.
The nanoMRI lite up suspicious pelvic lymph nodes so had salvage extended pelvic lymph node
dissection
surgery. Cancer confirmed at the para-
aortic
nodes. Today, six years hence, holding very low stable usPSA, 0.03X range, no ADT, no chemo.
NanoMRI
in
Advanced Prostate Cancer
7 months ago
Marfans - Aortic Dissection
... ...
... ...
TooLate4Daughter
in
British Heart Foundation
2 years ago
Stiff neck post OHS
On the 10th-11th September I had a sternumectomy (as used in bypass surgery) for an
aortic
dissection
repair and had my
aortic
valve replaced. I'm really on the way back now and feel fantastic and am back to 50 min, 5.5km walks and even gentle running.
On the 10th-11th September I had a sternumectomy (as used in bypass surgery) for an
aortic
dissection
repair and had my
aortic
valve replaced. I'm really on the way back now and feel fantastic and am back to 50 min, 5.5km walks and even gentle running.
witchcraft
in
British Heart Foundation
2 years ago
osteoporosis No!
got 3 spontaneous fractures 2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump. Plain X-ray cause osteoporosis same mri with nerve impact impaction, GP sure Osteoporosis Can anyone help answer this question Can you have osteoporosis
got 3 spontaneous fractures 2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump. Plain X-ray cause osteoporosis same mri with nerve impact impaction, GP sure Osteoporosis Can anyone help answer this question Can you have osteoporosis
Slum
in
Bone Health and Osteoporosis UK
2 years ago
osteoporosis No!
got 3 spontaneous fractures 2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump. Plain X-ray cause osteoporosis same mri with nerve impact impaction, GP sure Osteoporosis Can anyone help answer this question Can you have osteoporosis
got 3 spontaneous fractures 2 thoracic t 8 t10 and 1 C5. My bone scan of lumber spine was normal. Lost 4 inches in height huge belly & dowager hump. Plain X-ray cause osteoporosis same mri with nerve impact impaction, GP sure Osteoporosis Can anyone help answer this question Can you have osteoporosis
Slum
in
Bone Health and Osteoporosis UK
2 years ago
Update to Chest Pain
Bloodwork, Cat Scans (to rule out
aortic
dissection
), xrays, echocardiograms, and stress tests revealed that my heart is actually in excellent shape -- I must have either pulled a muscle (very possible), or the high dosage of prednisone has irritated my esophagus (although I take it with PLENTY of food
Bloodwork, Cat Scans (to rule out
aortic
dissection
), xrays, echocardiograms, and stress tests revealed that my heart is actually in excellent shape -- I must have either pulled a muscle (very possible), or the high dosage of prednisone has irritated my esophagus (although I take it with PLENTY of food
montebello
in
PMRGCAuk
2 years ago
Aortic Disease Guideline for 2022 from the ACC/AHA is out!
The third change is a strong recommendation that first-degree relatives of anyone with an aneurysm of the
aortic
root or ascending aorta, or with an
aortic
dissection
, should be screened with
aortic
imaging.
The third change is a strong recommendation that first-degree relatives of anyone with an aneurysm of the
aortic
root or ascending aorta, or with an
aortic
dissection
, should be screened with
aortic
imaging.
JulianM
in
British Heart Foundation
2 years ago
I lost hope and can’t do this anymore
I just want a good night sleep I just want to feel okay I’m tired of worrying so much like the doctors missed something not even a heart attack I’m now worried that I have an
aortic
dissection
because of such weird pains I get in my chest back stomach being able to lay there and feel my heart beat in
I just want a good night sleep I just want to feel okay I’m tired of worrying so much like the doctors missed something not even a heart attack I’m now worried that I have an
aortic
dissection
because of such weird pains I get in my chest back stomach being able to lay there and feel my heart beat in
Adamj
in
Anxiety and Depression Support
2 years ago
Aortic Dissection - new publication
To anyone here who has been affected by
aortic
dissection
- whether as a patient, family or carer - the charity
Aortic
Dissection
Awareness UK & Ireland recently published specific post-event guidance around AD. This is something that has generally been missing from the care pathways.
To anyone here who has been affected by
aortic
dissection
- whether as a patient, family or carer - the charity
Aortic
Dissection
Awareness UK & Ireland recently published specific post-event guidance around AD. This is something that has generally been missing from the care pathways.
Cliff_G
in
British Heart Foundation
2 years ago
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