Experiences with

Anaemia

On 3 February 23 I had an iron infusion (at a private clinic), and I have finally been able to get a blood test (on the NHS) to see what my serum ferritin and transferrin levels are now. My serum ferritin level has increased from 50.0 to 406.7. My transferrin level is down from 2.26 to 1.74. I was

https://pernicious-anaemia-society.org/articles/cobalamin-news-spring-2023/ There's also a story on page 5 about a young man fundraising for the society who developed PA as a teenager and who had a parent with PA. Scroll down page and it should show up the footer with page numbers.

After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a

Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but

I have just received my blood results taken last week when I saw the endocrinologist..... Mean cell heamoglobin conc, blood 313 g/L Low 😗 I cant help but wonder why considering I am prescribed folic acid plus I take gentle iron. I had a full blood count done when I saw the reumatologist but as

Are there any marked differences between diabetes tingling and pernicious anaemia.? Thanks for any help.

hello everyone. I’m in the U.S. and completed BR in 11/18 and am in remission according to my labs so I have been getting all my screenings done. A month ago a skin cancer (basal cell) was removed from my right cheek just below my eye. In 4 weeks I have to have Mohs surgery to the site which means

Someone here suggested it low & I might benefit from a pernicious anaemia test (I do have symptoms) & vitamins. The trouble is, my GP is being a little short with me, so I am reluctant to ask for test, & instead opted for a week on sublingual B12 spray, & then an addition of B complex.

have not posted in a while. Posting for my husband who is 73yr male diagnosed with MF JAK2 back in 2020 He has seen an MPN Dr since 2020 when first diagnosed. End of March he felt dizzy lightheaded, sweaty and shortness of breath We went to the ER and WBC was high 17 they did all sorts of tests but

I have b12 injections every 3 months for pernicious anaemia which I was diagnosed with a couple of years ago. I had breathlessness issues and gastic issues. However my feet have felt stiff and tight before that. I also get more clumsy when my injection is due.

On 21st June I had some tests done by GP early morning and fasting. Results were: IRON = 13 umol/l (6-35) SERUM TRANSFERRIN =2.52g/l (2-3.6) TRANSFERRIN SATURATION= 21% No range given FERRITIN = 69ug/l (13-150 or 13-300 if post meno) I am past meno

Has anyone experienced stomach issues with this booster? I have had aches and felt tired which I have experienced with past boosters and have now, but I haven’t felt nausea and had trips to the loo before. Thank you!

Good morning, I was wondering whether it is normal for those of us with UAT/Hashimotos to have low counts on these things? Whenever I get a full test done they come back slightly low or borderline. These are the ones I'm generally low or borderline on (since around 2012) : Lymphocyte count - last

Another research paper showing iron infusions of Ferric Carboxymaltose improves RLS. We now have the uphill battle of convincing our GPs and neurologists. If you are trying to persuade your medical team to follow the Mayo Clinic Algorithm and increase serum ferritin as first line treatment for RLS,

Just had my latest NHS Full Blood Count report and I noticed when putting them into my spreadsheet 😇 that there is always a big difference in my MCV results between these two? NHS... Mean cell volume (42A..) 92.1 fL [80 - 100] Medichecks... 97.9fL (81-98) Always taken under same conditions, within

I was diagnosed with Jak2+ PV back in January 2020. At that time, I didn't have high RBC, Hemaglobin, or hematocrit. I had high platelets, high WBC, basophilia, and eosinophilia. My hematologist said she was calling it PV rather than ET due to the high counts other than my platelets. She was completely

I have read often that B12 in the blood stream is not important and all that is important is the B12 available at the cellular level. I have not read as of yet that it is possible to experience both PA and an inborn transcobalamin error. It seems to be a one or the other method. With an inborn transcobalamin

Hi everyone, I got back my third major blood panel. The only things that have been (slightly) high each time since starting the pred were my WBC and hemoglobin. Is this the normal for 25mg pred? Or something I should worry more about? Also, I haven't gotten a blood test for IL-6 yet. If I do, and if

So, on the one hand it looks like I have iron saturation, and on the other hand possible anaemia / vitamin B12 or B9 deficiency anaemia??

Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.