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Megaloblastic anemia and very low b12
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
Plumpudding
in
Pernicious Anaemia Society
1 month ago
B12 injections
can we have B12 injections to lower MCV and MCH.? My RBC is below range my hct is below range. Folate low B12 in serum shows in range but as we know people with myloproliferative disorders will get B12 results in range but it’s not getting to cellular level
can we have B12 injections to lower MCV and MCH.? My RBC is below range my hct is below range. Folate low B12 in serum shows in range but as we know people with myloproliferative disorders will get B12 results in range but it’s not getting to cellular level
130396
in
MPN Voice
1 month ago
does everyone who uses methylB12 also use adenosylcobalamin as well with it
hello All, so I was looking in to cyanocobalamin as I take methyl B12 for now and trying to decide if I want to try cyano, and I came across on healthline.com that if you take methyl B12 you should use adenosylcobalamin with it. I have been wondering if anyone on here uses both. also is taking a small
hello All, so I was looking in to cyanocobalamin as I take methyl B12 for now and trying to decide if I want to try cyano, and I came across on healthline.com that if you take methyl B12 you should use adenosylcobalamin with it. I have been wondering if anyone on here uses both. also is taking a small
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
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Dr. Hospital Notes
Just read other MPN patients in the UK can get results on line. I live in Wales... UK but not. If that makes sense. I have tried for over a year to get my notes from the Dr. On line. To see how long my bloods have been anemic. I do know I was put on iron tablets over 10 years ago, taken of and put on
Just read other MPN patients in the UK can get results on line. I live in Wales... UK but not. If that makes sense. I have tried for over a year to get my notes from the Dr. On line. To see how long my bloods have been anemic. I do know I was put on iron tablets over 10 years ago, taken of and put on
mag123ben
in
MPN Voice
1 month ago
IV Iron Infusion for RLS
Have any of you gotten worse after an IV Iron Infusion? I got Infed 1,000mg iron. For the past 2 weeks my RLS has been worse and I'm getting up to pee 4 times during the night. (No, I haven't changed my liquid intake). Is this a normal reaction? Will things improve ? Is it temporary or am I permanently
Have any of you gotten worse after an IV Iron Infusion? I got Infed 1,000mg iron. For the past 2 weeks my RLS has been worse and I'm getting up to pee 4 times during the night. (No, I haven't changed my liquid intake). Is this a normal reaction? Will things improve ? Is it temporary or am I permanently
pages2tx
in
Restless Legs Syndrome
1 month ago
abnormal pre and postop blood counts TT
update on pcp visit Thursday august 8, 2024. Labs drawn, calcium now 9.7 range 8.8-10.3. Headaches! BP 150/100, started on HCTZ 25mg, did not effect BP and I broke out in mild hives! I have my appointment with the surgeon this Wednesday the 14th, I sure hope I’m not going to be on a roller coaster! Pathology
update on pcp visit Thursday august 8, 2024. Labs drawn, calcium now 9.7 range 8.8-10.3. Headaches! BP 150/100, started on HCTZ 25mg, did not effect BP and I broke out in mild hives! I have my appointment with the surgeon this Wednesday the 14th, I sure hope I’m not going to be on a roller coaster! Pathology
bo62
in
Thyroid UK
1 month ago
support the Pernicious Anaemia Society
you can donate here: https://www.justgiving.com/page/leannenivenruns and if you are not already, please become a member of the Pernicious
Anaemia
Society via our website. Our March newsletter will be out soon! thank you to those who consistently support us here and in other media.
you can donate here: https://www.justgiving.com/page/leannenivenruns and if you are not already, please become a member of the Pernicious
Anaemia
Society via our website. Our March newsletter will be out soon! thank you to those who consistently support us here and in other media.
PAScomms
in
Pernicious Anaemia Society
7 months ago
Lercandipine
I've been taking Lercandipine for about 5 months and my ability to walk short distances is torturous and general weakness/shortness of breath. I put it down to a back injury I sustained 6 months ago and thought that this has been causing the walking problem! I'm now thinking that it could well be the
I've been taking Lercandipine for about 5 months and my ability to walk short distances is torturous and general weakness/shortness of breath. I put it down to a back injury I sustained 6 months ago and thought that this has been causing the walking problem! I'm now thinking that it could well be the
Leejones
in
Thyroid UK
2 months ago
Withdrawal of Pramipex ER 0.75
My Mom is 76 years old suffering from RLS since 2013. She is on Pramipex ER 0.75 from last 5 years. Please suggest how should she take withdrawal from this medicine. I feel very scary of her augmentation if at all she encounters. Also I don't know any good Neurologist who is specialized in this management
My Mom is 76 years old suffering from RLS since 2013. She is on Pramipex ER 0.75 from last 5 years. Please suggest how should she take withdrawal from this medicine. I feel very scary of her augmentation if at all she encounters. Also I don't know any good Neurologist who is specialized in this management
rakeshlmotwani
in
Restless Legs Syndrome
2 months ago
Tips for a clean and clear blood test
Dear All, I'm asking you as I know you will have answers. I have a blood test arranged, not for Thyroid, I know those does and don'ts (thanks to HealthUnlocked). This test is to differentiate between Type 1 and Type 2 Diabetes. I can go at a time I want, would it be best first thing, lunchtime
Dear All, I'm asking you as I know you will have answers. I have a blood test arranged, not for Thyroid, I know those does and don'ts (thanks to HealthUnlocked). This test is to differentiate between Type 1 and Type 2 Diabetes. I can go at a time I want, would it be best first thing, lunchtime
rosiebones
in
Thyroid UK
2 months ago
A bit of a meltdown
Hi again, I haven't posted for a while hope your're all coping. I'm having a bit of a meltdown it happens now and again, most of the time I try not to dwell on it and stay positive about the extensive Intestinal Metaplasia, raging Gastrin levels and everything else that is Pernicious anemia and my last
Hi again, I haven't posted for a while hope your're all coping. I'm having a bit of a meltdown it happens now and again, most of the time I try not to dwell on it and stay positive about the extensive Intestinal Metaplasia, raging Gastrin levels and everything else that is Pernicious anemia and my last
Helliborous
in
Pernicious Anaemia Society
2 months ago
ferritin level suddenly jumped.. can this happen??
hello forum friends. I went to my gp last week and requested a referral for an iron infusion. I said I’d pay for a private haematology initial consultation if necessary. he’s referred me via nhs but I had to have up to date iron tests.. My ferritin mid June was 32. I had been taking three arrows
hello forum friends. I went to my gp last week and requested a referral for an iron infusion. I said I’d pay for a private haematology initial consultation if necessary. he’s referred me via nhs but I had to have up to date iron tests.. My ferritin mid June was 32. I had been taking three arrows
Starseed56
in
Thyroid UK
2 months ago
ET symptoms
Hi, hoping someone on this forum may be able to assist in obtaining peer reviewed information that states that symptoms are not dependent on platelet counts. Husband is ET, JAK2 positive and has severe fatigue, concentration problems and brain fog.He has followed all the advice of exercise and diet
Hi, hoping someone on this forum may be able to assist in obtaining peer reviewed information that states that symptoms are not dependent on platelet counts. Husband is ET, JAK2 positive and has severe fatigue, concentration problems and brain fog.He has followed all the advice of exercise and diet
Ona54
in
MPN Voice
2 months ago
switching/alternating Hydroxocobalamin and cyanocobalamin?
excuse my ignorance but I thought I’d check with those that know before I blindly go doing something silly. I was reading the NHS B12 pages and saw they only offer hydroxcobalamin and they suggest this lasts longer. So I’ve ordered some Pascoe to try. I have stock of cyanocobalamin and use that twice
excuse my ignorance but I thought I’d check with those that know before I blindly go doing something silly. I was reading the NHS B12 pages and saw they only offer hydroxcobalamin and they suggest this lasts longer. So I’ve ordered some Pascoe to try. I have stock of cyanocobalamin and use that twice
Regenallotment
in
Pernicious Anaemia Society
2 months ago
Does anyone have idea or notice a pattern why fingerprick blood tests work sometimes & not others& why easier to get blood sometimes please?
Hello...anyone wuth similar issues please?I do what I thinks the same everytime, keep well hydrated, warm shower, move abt, circle arms, stand up. Wash hands warm water, drank cup water at 5am, then 6am, then 7, & tested at 7.30, yet last wks which took 4 fingers to get enough for advanced thyroid check
Hello...anyone wuth similar issues please?I do what I thinks the same everytime, keep well hydrated, warm shower, move abt, circle arms, stand up. Wash hands warm water, drank cup water at 5am, then 6am, then 7, & tested at 7.30, yet last wks which took 4 fingers to get enough for advanced thyroid check
Jo5454
in
Thyroid UK
2 months ago
Follow-up with haematologist
I saw my (private) haematologist last night and confessed my B12 EOD habit. It took him several minutes to come down off the ceiling and have a proper discussion with me as I made my argument: that, if I'd followed the NICE protocol I wouldn't be where I am today (mostly functioning well), I wouldn't
I saw my (private) haematologist last night and confessed my B12 EOD habit. It took him several minutes to come down off the ceiling and have a proper discussion with me as I made my argument: that, if I'd followed the NICE protocol I wouldn't be where I am today (mostly functioning well), I wouldn't
Orchard33
in
Pernicious Anaemia Society
2 months ago
Been told "no longer need injections"
So I had my latest b12 injection yesterday. I just received a text from the doctor saying that "I no longer need B12 injections and can have oral supplements from October". I don't understand this as initially when I was first diagnosed I was given oral supplements to try for 2 months initially. My serum
So I had my latest b12 injection yesterday. I just received a text from the doctor saying that "I no longer need B12 injections and can have oral supplements from October". I don't understand this as initially when I was first diagnosed I was given oral supplements to try for 2 months initially. My serum
Dfthbhjj
in
Pernicious Anaemia Society
2 months ago
On 60 mgs, potassium low, magnesium low, cramps, dizzy, fatigue ,the runs etc...
Due to reduce to 40mgs tomorrow but really feeling very strange, balance off, BP low for me, I'm on 2 x meds for BP which are contraindicated with steroids as should increase BP?? The symptoms are consistent with low potassium levels (call from hospital to tell me that) but worsening. Eating everything
Due to reduce to 40mgs tomorrow but really feeling very strange, balance off, BP low for me, I'm on 2 x meds for BP which are contraindicated with steroids as should increase BP?? The symptoms are consistent with low potassium levels (call from hospital to tell me that) but worsening. Eating everything
Fatsiajaponica
in
PMRGCAuk
2 months ago
Help with iron results
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Posting again as for some reason had no replies last time. Recently had an iron panel and ferritin blood test with following results. Ferritin - 46 (13-150) Iron - 21.6 (6.6-26) Unsaturated iron binding - 21.3 LOW (24.2-70.1) Total iron binding capacity - 43 (41-77) Iron binding saturation
Becsf
in
Thyroid UK
2 months ago
Blood Test Questions
I've been looking at the last lot of blood tests that my doctor did and was wondering if the serum ferritin level is low or ok. I had the blood tests a couple of months ago and have had no feedback from the doctor at all.On the NHS app for some things it seems to show where your level sits against the
I've been looking at the last lot of blood tests that my doctor did and was wondering if the serum ferritin level is low or ok. I had the blood tests a couple of months ago and have had no feedback from the doctor at all.On the NHS app for some things it seems to show where your level sits against the
Dfthbhjj
in
Pernicious Anaemia Society
2 months ago
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