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Introducing Better Together for Healthy Bone Marrow
With heartfelt thanks to players of the National Lottery and TNL Community Fund, and our partners The Aplastic
Anaemia
Trust, Congenital
Anaemia
Network CAN, DBAUK, Fanconi Hope, PNH Support and SDS UK. #nationallottery #partnerships #rarediseases
With heartfelt thanks to players of the National Lottery and TNL Community Fund, and our partners The Aplastic
Anaemia
Trust, Congenital
Anaemia
Network CAN, DBAUK, Fanconi Hope, PNH Support and SDS UK. #nationallottery #partnerships #rarediseases
JayKayPee
Administrator
in
DC Action
2 years ago
Intrinsic Factor Test
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Sean2310
in
Pernicious Anaemia Society
1 year ago
Slightly raised ferritin, any advice please
Iron 31.0 (5.8-34.5)TIBC 51.3 (45-81) UIBC 20.6 (24.2-70.1) Transferring saturation 60.6 (20-50) Ferritin 203 (13-150) Crp 4.15 (0-5) Can I ask your advice please? As advised on here a few months ago I rechecked my iron levels in December, hoping to have some reason for continuing ectopic heartbeats.
Iron 31.0 (5.8-34.5)TIBC 51.3 (45-81) UIBC 20.6 (24.2-70.1) Transferring saturation 60.6 (20-50) Ferritin 203 (13-150) Crp 4.15 (0-5) Can I ask your advice please? As advised on here a few months ago I rechecked my iron levels in December, hoping to have some reason for continuing ectopic heartbeats.
Baggiesfan
in
Thyroid UK
1 year ago
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Any comments on slightly high haemoglobin in relation to other numbers in this report
She’s now on 75mcg of levo and her thyroid function is improving. I’ve read that Hashi hypos benefit from ferritin being high, ditto all nutrients, so are her folate and B12 a little compromised? Test done according to protocol advised here.
She’s now on 75mcg of levo and her thyroid function is improving. I’ve read that Hashi hypos benefit from ferritin being high, ditto all nutrients, so are her folate and B12 a little compromised? Test done according to protocol advised here.
musicaljune
in
Thyroid UK
2 years ago
Follow-up EOD injections
Hi Guys and Gals: The response and advice to my last post, should I continue EOD B12 1ml. Was so helpful, encouraging and educational more than my GP, ever, I cannot thank you guys enough for all your help and guidance. GOD BLESS AND HEAL YOU ALL. The medical profession in this area is woefully lacking
Hi Guys and Gals: The response and advice to my last post, should I continue EOD B12 1ml. Was so helpful, encouraging and educational more than my GP, ever, I cannot thank you guys enough for all your help and guidance. GOD BLESS AND HEAL YOU ALL. The medical profession in this area is woefully lacking
RisingOne
in
Pernicious Anaemia Society
2 years ago
iron related help
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
Racheeeel78
in
Thyroid UK
1 year ago
RA and bruising.
I'm wondering if it's the
anaemia
causing the easy bruising. Anyone have any similar experiences/tips? Thanks.
I'm wondering if it's the
anaemia
causing the easy bruising. Anyone have any similar experiences/tips? Thanks.
mjrminor
in
NRAS
2 years ago
blood test results help! Haemoglobin, RBC low but iron in range?
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
Racheeeel78
in
Pernicious Anaemia Society
1 year ago
Iron panel now in
Hi all I wonder if you could give me some advice on my iron panel from medichecks. All are within range but the ferritin is low and the transferrin saturation is very low
Iron Status
Iron 13.7 umol/L (Range: 5.8 - 34.5) TIBC 66.3 umol/L (Range: 45 - 81) UIBC 52.6 umol/L (Range: 24.2 - 70.1
Hi all I wonder if you could give me some advice on my iron panel from medichecks. All are within range but the ferritin is low and the transferrin saturation is very low
Iron Status
Iron 13.7 umol/L (Range: 5.8 - 34.5) TIBC 66.3 umol/L (Range: 45 - 81) UIBC 52.6 umol/L (Range: 24.2 - 70.1
Souzy
in
Thyroid UK
2 years ago
Peg and anaemia update
hi folks just another update on my Peg journey End of July I went from every 11 days to 14 days for Peg. Haemoglobin 105 A few days ago I had more bloods Platelets still decreasing so now I’m moving to every 3 weeks!!!!🤗🤗🤗 Unfortunately the haemoglobin hasn’t increased. Is this because I’m having
hi folks just another update on my Peg journey End of July I went from every 11 days to 14 days for Peg. Haemoglobin 105 A few days ago I had more bloods Platelets still decreasing so now I’m moving to every 3 weeks!!!!🤗🤗🤗 Unfortunately the haemoglobin hasn’t increased. Is this because I’m having
Wyebird
in
MPN Voice
2 years ago
anxiety
hi guys, i was diagnosed with pernicious
anaemia
last may- prior to that i had some anxiety issues and also went through separation from my wife during lockdown before pernicious diagnosis- feel im more anxious now- wandering if condition has made me more anxious?
hi guys, i was diagnosed with pernicious
anaemia
last may- prior to that i had some anxiety issues and also went through separation from my wife during lockdown before pernicious diagnosis- feel im more anxious now- wandering if condition has made me more anxious?
dolphin66stag
in
Pernicious Anaemia Society
2 years ago
I'M AT STAGE 4
I'm at stage 4 of kidney disease Three months ago my kidneys functioned at 20 per cent. Now at this appointment they are at 24 per cent . The lab work showed that my hemoglobin was at only 6.0 .They put me in the hospital for two days and gave me 2 units of blood.Got it up to 7.4 They also
I'm at stage 4 of kidney disease Three months ago my kidneys functioned at 20 per cent. Now at this appointment they are at 24 per cent . The lab work showed that my hemoglobin was at only 6.0 .They put me in the hospital for two days and gave me 2 units of blood.Got it up to 7.4 They also
MSTAUF
in
Early CKD Support
2 years ago
Zoladex and Anaemia
These are all typical signs of
anaemia
, just wondered if anyone else has suffered with this whilst being on the injections? I'm staring to feel very poorly and weak, any ideas of what I can do to help? Thanks so much x
These are all typical signs of
anaemia
, just wondered if anyone else has suffered with this whilst being on the injections? I'm staring to feel very poorly and weak, any ideas of what I can do to help? Thanks so much x
Spangalow07
in
Endometriosis UK
2 years ago
Nearly there,a little more help please
Hi everyone, I've just had retrospective confirmation that I was B12 deficient. After 6 injections have improved my RBC, MCH, WCC and heamoglobin. My heamotoligist wants to test me for MMA and intrinsic factor. How long do I need to leave the tests after an injection? Will the MMA be skewed from
Hi everyone, I've just had retrospective confirmation that I was B12 deficient. After 6 injections have improved my RBC, MCH, WCC and heamoglobin. My heamotoligist wants to test me for MMA and intrinsic factor. How long do I need to leave the tests after an injection? Will the MMA be skewed from
Rockerfella
in
Pernicious Anaemia Society
2 years ago
Anaemia, blood pressure and Amlodipine
However, just recently I have experienced various symptoms including breathlessness, and iron-deficient
anaemia
has been diagnosed. The underlying cause of this is being investigated. My question is this - will this
anaemia
be reducing my blood pressure?
However, just recently I have experienced various symptoms including breathlessness, and iron-deficient
anaemia
has been diagnosed. The underlying cause of this is being investigated. My question is this - will this
anaemia
be reducing my blood pressure?
Alunrhys
in
High Blood Pressure Support
2 years ago
When to switch from EOD to weekly or twice weekly?
Hi Family, this site has been more helpful than my GP and anyone else! Thank you all.. I’ve been injecting 1ml methylcobalamin EOD, for 3 months, the days that I inject and the days that I don’t inject my symptoms are about the same, numbness in hands, arm, some in legs, weak muscles. Should I try
Hi Family, this site has been more helpful than my GP and anyone else! Thank you all.. I’ve been injecting 1ml methylcobalamin EOD, for 3 months, the days that I inject and the days that I don’t inject my symptoms are about the same, numbness in hands, arm, some in legs, weak muscles. Should I try
RisingOne
in
Pernicious Anaemia Society
2 years ago
High Dose Niacin (Nicotinic Acid) and Hashimoto's?
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Bolt_Upright
in
Thyroid UK
1 year ago
IBS followed by gallbladder removal followed by a mystery condition. Help appreciated! I’m new here
I don’t know what is IBS-d and what is diarrhoea caused by not having a gallbladder The GP has tested me for
anaemia
, diabetes, blood sugar and other standard tests but is not coming up with any other next steps.
I don’t know what is IBS-d and what is diarrhoea caused by not having a gallbladder The GP has tested me for
anaemia
, diabetes, blood sugar and other standard tests but is not coming up with any other next steps.
GwinBlue
in
IBS Network
1 year ago
HELP Low B12 low ferretin, low folate and low iron
I have had issues with my iron levels for quite a few years. I have tried several supplements and am on iron liquid ferrous fumurate at the moment but still causing me stomach discomfort. I am trying to increase my doses slowly, currently taking 6ml twice a day, i know its not enough but i cant tolerate
I have had issues with my iron levels for quite a few years. I have tried several supplements and am on iron liquid ferrous fumurate at the moment but still causing me stomach discomfort. I am trying to increase my doses slowly, currently taking 6ml twice a day, i know its not enough but i cant tolerate
mabs79
in
Pernicious Anaemia Society
1 year ago
Ferinject to correct iron deficiency and strange clicking in throat when swollowing
So I had very bad iron deficiency anemia for some time now. Iron tablets did not work well. So an internist decided to give me ferinject 1000 to correct it. I had 30 minutes of iron infusion and I was fine. Then after couple of days my throat was swollen and I start to have strange sensations. It's like
So I had very bad iron deficiency anemia for some time now. Iron tablets did not work well. So an internist decided to give me ferinject 1000 to correct it. I had 30 minutes of iron infusion and I was fine. Then after couple of days my throat was swollen and I start to have strange sensations. It's like
NatDeer
in
Thyroid UK
1 year ago
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