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Recently diagnosed -Hello!
Good evening everyone. Ive been recently diagnosed with PMR, been looking on this site prior to joining, and found it very interesting and informative. I am a 78 year old woman, until recently fit and healthy, other than having full knee replacement 10 months ago, and having a stressful couple of
Good evening everyone. Ive been recently diagnosed with PMR, been looking on this site prior to joining, and found it very interesting and informative. I am a 78 year old woman, until recently fit and healthy, other than having full knee replacement 10 months ago, and having a stressful couple of
Rrdance
in
PMRGCAuk
8 months ago
Mepacrine?? Alternative to Hydroxychoroquine
Hi everyone (ladies and men out there) ,Hope your are not too busy and rush preparing for Christmas holidays ✨. So I have a few questions a bit of run down about yesterday. Saw eye Consultant yesterday not so good news . Though there showed no toxicity in my eyes there was more thinned lining(which
Hi everyone (ladies and men out there) ,Hope your are not too busy and rush preparing for Christmas holidays ✨. So I have a few questions a bit of run down about yesterday. Saw eye Consultant yesterday not so good news . Though there showed no toxicity in my eyes there was more thinned lining(which
KnitSewPurl
in
LUPUS UK
8 months ago
Update
Well been a while since I personally posted something about my health, why ? Because to be honest it hasn't really changed. We've dropped the Tranexamic Acid tablets but kept going with the Fostamatinib tablets the consultant has tried with alternating the Romoplosim injections to 250mcg one week 500mcg
Well been a while since I personally posted something about my health, why ? Because to be honest it hasn't really changed. We've dropped the Tranexamic Acid tablets but kept going with the Fostamatinib tablets the consultant has tried with alternating the Romoplosim injections to 250mcg one week 500mcg
Mesd
in
ITP Support Association
8 months ago
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vitamins what’s good to take
hello I’m new to page I’ve just been diagnosed with osteoporosis score is -2.8. I asked the nurse was this good or bad she had no idea. I’m on alendronic acid and calcium but I also take vitamin d. I tried to take magnesium as well but i stopped do you think magnesium is ok to take. I also take
hello I’m new to page I’ve just been diagnosed with osteoporosis score is -2.8. I asked the nurse was this good or bad she had no idea. I’m on alendronic acid and calcium but I also take vitamin d. I tried to take magnesium as well but i stopped do you think magnesium is ok to take. I also take
Dizzy-home-life
in
Osteoporosis Support
8 months ago
Unlocking the Maze of B Complexes: A Handy List for Safe Dosages and Bioactive Vitamins
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
Esperanto
in
Cure Parkinson's
7 months ago
dr Chris woolams
I have locally advanced prostate cancer t3b no mo finished treatment rt/ht and now I have severe osteoporosis because my testosterone has never recovered I have had 1 infusion of zoledronic acid for my bones, and now I have been reading dr Chris woolams bio-chemist on canceractive that bishonates make
I have locally advanced prostate cancer t3b no mo finished treatment rt/ht and now I have severe osteoporosis because my testosterone has never recovered I have had 1 infusion of zoledronic acid for my bones, and now I have been reading dr Chris woolams bio-chemist on canceractive that bishonates make
Radars
in
Advanced Prostate Cancer
8 months ago
Dental work and alendronate
I need a tooth extraction after a tooth has completely collapsed and became infected. The dentist has tried root canal treatment with the hope of adding a crown but it is still infected in the gum and he says it must come out due to a sepsis risk. He sent me to my consultant for permission as I have
I need a tooth extraction after a tooth has completely collapsed and became infected. The dentist has tried root canal treatment with the hope of adding a crown but it is still infected in the gum and he says it must come out due to a sepsis risk. He sent me to my consultant for permission as I have
Pawscat11
in
PMRGCAuk
8 months ago
QoL to the World
Day 2 in Hawaii Got half moons, Pork Hash, baked Char siu Baos, and Chow mein from Royal Kitchen. Goodwill shopping Poke run at Foodland Chillin at Ala Moana Beach Bulgogi dinner for Mom from Mama Woo's BBQ https://photos.app.goo.gl/cwKvJTpPvCkTzRv98
Day 2 in Hawaii Got half moons, Pork Hash, baked Char siu Baos, and Chow mein from Royal Kitchen. Goodwill shopping Poke run at Foodland Chillin at Ala Moana Beach Bulgogi dinner for Mom from Mama Woo's BBQ https://photos.app.goo.gl/cwKvJTpPvCkTzRv98
dockam
in
Advanced Prostate Cancer
8 months ago
Dexa Scan Results
Hi, can anyone translate these test results for me please? My GP has put me on Alendronic Acid one per week, 70mg and l am taking Vitamin K2, Vitamin D but unfortunately l cannot seem to tolerate the calcium supplements that we have tried, they give me terrible stomach problems even in small doses.
Hi, can anyone translate these test results for me please? My GP has put me on Alendronic Acid one per week, 70mg and l am taking Vitamin K2, Vitamin D but unfortunately l cannot seem to tolerate the calcium supplements that we have tried, they give me terrible stomach problems even in small doses.
Legsandmore
in
PMRGCAuk
8 months ago
Ursodeoxycholic Acid (UDCA)
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Anyone on here involved with the trial of Urso, a liver drug that showed so promise to treatment of PD Drug: ursodeoxycholic acid Subjects will be provided ~50mg/kg/day (based on the use of 250 and 500mg capsules) of UDCA to be divided into 3 equal daily doses and titrated up over ~2 weeks to a stable
Furch
in
Cure Parkinson's
9 months ago
side effects Alendronic acid
I have had really bad neck pain for about 3 months, it is a lot worse in the night. My rheum consultant thinks it is osteoarthritis, but I haven’t had an X-ray or anything to confirm this. I was diagnosed with osteoporosis in August and started Alendronic acid in September. I was wondering if the neck
I have had really bad neck pain for about 3 months, it is a lot worse in the night. My rheum consultant thinks it is osteoarthritis, but I haven’t had an X-ray or anything to confirm this. I was diagnosed with osteoporosis in August and started Alendronic acid in September. I was wondering if the neck
Olliechops
in
NRAS
9 months ago
Laurie Mischley on Using High DHA Fish Oil to Reduce Levodopa-Induced Dyskinesia (Updated)
https://youtu.be/piDgzpD7oOQ?si=hZfSiPMEqAAg_Kbc Dr Mischley also recommends citicoline. I strongly discourage anyone who is not already using citicoline from starting, because: "patients treated with citicoline experienced a significant worsening 45 days after the medication was discontinued". For
https://youtu.be/piDgzpD7oOQ?si=hZfSiPMEqAAg_Kbc Dr Mischley also recommends citicoline. I strongly discourage anyone who is not already using citicoline from starting, because: "patients treated with citicoline experienced a significant worsening 45 days after the medication was discontinued". For
park_bear
in
Cure Parkinson's
8 months ago
I think I have endometriosis
Hi,I am a 25 year-old teacher and I think I may have endometriosis. I thought I would post my story on here in the hope that somebody may have had something similar and maybe let me know how the rest of their journey to diagnosis went. I started my periods at the age of 10, they were always heavy
Hi,I am a 25 year-old teacher and I think I may have endometriosis. I thought I would post my story on here in the hope that somebody may have had something similar and maybe let me know how the rest of their journey to diagnosis went. I started my periods at the age of 10, they were always heavy
PinkButterfly25
in
Endometriosis UK
9 months ago
PVCS and bigeminy
Hello, new here. Not sure if I’ve posted on the right thread but I was just looking for anyone going through the same thing. I’ve suffered with PVCS since about 2014, had 2 normal echos in the past, numerous ECG and Holter monitors and blood tests. Everything was normal apart from these PVCS which they
Hello, new here. Not sure if I’ve posted on the right thread but I was just looking for anyone going through the same thing. I’ve suffered with PVCS since about 2014, had 2 normal echos in the past, numerous ECG and Holter monitors and blood tests. Everything was normal apart from these PVCS which they
Bec2610
in
AF Association
8 months ago
anyone used myovvii device ?
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
hello everyone, curious to find out if any of you have used the myovvii device that is promoted on instagram for period pain and endo pains? Apparently it sends signals to your brain to change where the pain is being detected. A little bit like acupuncture which I have also read about. I’m currently
Virginia10
in
Endometriosis UK
8 months ago
PMR/Prednisolone and dental implants
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Hi, I’m enquiring as to whether anyone else has experienced issues with their dental implants since being diagnosed with PMR and taking Prednisolone. I’ve been having trouble with one of my dental implants for a couple of weeks and on seeing the dentist today have been told that the implant has loosened
Tiggy70
in
PMRGCAuk
9 months ago
was it the wrong time to take myself off ibandronic acid?
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
Hello folks, feeling a bit out of my depths at the moment. I am now 5 years on prednisolone and, after discovering this wonderful forum was on a very slow tapering, got to 6.5 mgs but a bad cold followed by stressful events and I’m back to 7.5 mgs. My husband has recently been diagnosed with non-hodgkins
allofaquandry
in
PMRGCAuk
9 months ago
Zolendroic acid after discovering compression fractures. Osteoporosis.
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
Ebiker
in
PMRGCAuk
9 months ago
Waiting for laperoscopy
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
LUCY001
in
Endometriosis UK
9 months ago
Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
9 months ago
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