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Just and update
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Thought I'd update...many of you are familiar with my clinical history (attached). In April, I met with my radiologist and oncologist, we agreed to come off Orgovyx after 12 months plus SBRT to a single PLN node identified in a March 2023 scan. My oncologist favored six more months, well, pretty sure
Hawk56
in
Advanced Prostate Cancer
1 month ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
1 month ago
Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
1 month ago
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Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
1 month ago
Zometa and Dexa scan
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Onco has suggested Zometa as husband has been on ADT for several years. I am reluctant to throw another med at him if it's not definitely necessary. So would you recommend Dexa scan to check for problems before simply accepting Zometa? [Further info: He has never had bone mets show on regular nuclear
Proflac
in
Advanced Prostate Cancer
1 month ago
A maternal brain hormone that builds bone - Nature - Published: 10 July 2024
[i]This recent research paper in Nature is potentially ground-breaking for the understanding of essential mechanisms involved with bone health. It's findings are related to hormonal changes during the start of mid-pregnancy lactation and early newborn nurturing that could possibly lay the foundation
[i]This recent research paper in Nature is potentially ground-breaking for the understanding of essential mechanisms involved with bone health. It's findings are related to hormonal changes during the start of mid-pregnancy lactation and early newborn nurturing that could possibly lay the foundation
cujoe
in
Fight Prostate Cancer
1 month ago
Building Bones and Shrinking Moobs
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Flydad
in
Advanced Prostate Cancer
1 month ago
Metathesized Breast Cancer after 28 years
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
Notofu4me
in
SHARE Metastatic Breast Cancer
1 month ago
Taxol-Anyone had experience with Taxol
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
DinNorCal
in
SHARE Metastatic Breast Cancer
1 month ago
primary tumor
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
muttonman
in
Advanced Prostate Cancer
1 month ago
Slight PSA rise and MO discontinuing ADT due to fatigue
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Superbfloor
in
Advanced Prostate Cancer
1 month ago
A 4 Year Journey
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
lockerroombuddy
in
Prostate Cancer And Gay Men
1 month ago
looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
1 month ago
A technical question on Radiation
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
Sushupthi
in
Advanced Prostate Cancer
1 month ago
ADT side effects
Which has worse side effects : Bacalumatide or Lupron ?
Which has worse side effects : Bacalumatide or Lupron ?
Bacalutamide
in
Prostate Cancer Network
1 month ago
Chemo Docetaxel
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
JolleySprings
in
Advanced Prostate Cancer
1 month ago
ADT prior to RT
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
FredNick
in
Prostate Cancer Network
1 month ago
Does HBOT stimulate cancerous tissue?
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
SongofFred
in
Advanced Prostate Cancer
1 month ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
Advanced Prostate Cancer
1 month ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
PCOS UK (Verity)
1 month ago
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