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Was there ever really a chance for a cure?
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
duxlubber
in
Advanced Prostate Cancer
4 months ago
Brain Fog or Dimentia?
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Keeper70
in
Advanced Prostate Cancer
4 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
4 months ago
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PSA on the way up again
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
ParrotY
in
Prostate Cancer Network
4 months ago
Dutasteride Monotherapy is effective for Newly Diagnosed PCa men not on ADT
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
janebob99
in
Prostate Cancer Network
4 months ago
High PSA upon diagnosis, treatment , and outcome
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Yokohama2023
in
Prostate Cancer Network
4 months ago
First MO visit
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
RedBird713
in
Advanced Prostate Cancer
4 months ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
4 months ago
5 year diagnosis anniversary!
I just passed my 5 years diagnosis anniversary, and I’m happy to report that my treatment has been durable and my PSA remains < 0.01. At diagnosis, I had a PSA of 211, an alk phos above 900, multiple Mets, a Gleason of 9 (5+4), and a wonky, non-hereditary PTEN gene. My treatment from day 1 has been
I just passed my 5 years diagnosis anniversary, and I’m happy to report that my treatment has been durable and my PSA remains < 0.01. At diagnosis, I had a PSA of 211, an alk phos above 900, multiple Mets, a Gleason of 9 (5+4), and a wonky, non-hereditary PTEN gene. My treatment from day 1 has been
catbus
in
Advanced Prostate Cancer
1 year ago
Hormonal treatment for Endometriosis
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
Tigerlily34
in
Women's Health
4 months ago
Hormonal treatment for Endometriosis
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
Tigerlily34
in
Endometriosis UK
4 months ago
post radiation. Currently on ADT. PSA slight increase ?
Hey all, My father who started at 226PSA has finished radiation treatment about a year ago.: and remains on ADT. his PSA was sitting 0.03 but has jumped to 0.08. Is this any cause for concern? I took it as a positive as it sounds extremely low but now second guessing ..
Hey all, My father who started at 226PSA has finished radiation treatment about a year ago.: and remains on ADT. his PSA was sitting 0.03 but has jumped to 0.08. Is this any cause for concern? I took it as a positive as it sounds extremely low but now second guessing ..
FormulaRob
in
Advanced Prostate Cancer
4 months ago
Sexual function
I am post ADT 20 months! Still have very to to no seamen on ejaculation and can get erection but certainly not has hard as before ADT. Has anyone experienced this?
I am post ADT 20 months! Still have very to to no seamen on ejaculation and can get erection but certainly not has hard as before ADT. Has anyone experienced this?
Stecruz
in
Advanced Prostate Cancer
4 months ago
Persistent PSA
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
Nonno
in
Prostate Cancer Network
4 months ago
Hormonal therapy ?
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Hi, I was diagnosed with extended DCIS with ER+, PR+.I had a total mastectomy with a diep flap 2 weeks ago, My surgeon referred me to medical oncology for hormonal therapy. I am curious do I still need hormonal therapy as I already had a mastectomy, as far as cancer recurrence and preventing cancer
Rarlod
in
SHARE Breast Cancer Support
4 months ago
Tri modality conclusion end of ADT nervous
A long journey.. Lutron , bicalutamide .. from start last year in June .. brachytherapy.. in October… 15 booster LiNac in Dec/Jan .. doctor ..in Japan said can stop hormone treatment but he sort of front loaded the ADT before radiation 5 months.My second opinion initially said to embrace adjuvant ADT
A long journey.. Lutron , bicalutamide .. from start last year in June .. brachytherapy.. in October… 15 booster LiNac in Dec/Jan .. doctor ..in Japan said can stop hormone treatment but he sort of front loaded the ADT before radiation 5 months.My second opinion initially said to embrace adjuvant ADT
Yokohama2023
in
Advanced Prostate Cancer
4 months ago
Proton Treatment - When to start the ADT relative to simulation and CT of the prostate
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
CBRD
in
Advanced Prostate Cancer
4 months ago
Lupus and Radiotherapy
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
jamesroybuck
in
LUPUS UK
4 months ago
MO recommendations at Mayo, Moffitt?
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
jackwfrench
in
Advanced Prostate Cancer
4 months ago
Which Estrogen Patch dose to use?
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
janebob99
in
Prostate Cancer Network
4 months ago
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