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Lupus diagnosis
Hi, I don't have any questions but just wanted to share with you my experience with Lupus. I got diagnosed with SLE on March 2017, i was 40 years old then. I did not have severe symptoms, most of my tests were negative other then my ANA test and Complement 3 (C3). The rheumatologist described Plaquenil
Hi, I don't have any questions but just wanted to share with you my experience with Lupus. I got diagnosed with SLE on March 2017, i was 40 years old then. I did not have severe symptoms, most of my tests were negative other then my ANA test and Complement 3 (C3). The rheumatologist described Plaquenil
Douny
in
LUPUS UK
6 years ago
Nere
Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59) Ordered lab tests. It turned out I'm ANA positive, centomers number also high. Gp diagnosis is Crest and refered me to the rheumatologist. His next appointment is in a month!!! I'm in absolute distress. Having terrible
Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59) Ordered lab tests. It turned out I'm ANA positive, centomers number also high. Gp diagnosis is Crest and refered me to the rheumatologist. His next appointment is in a month!!! I'm in absolute distress. Having terrible
Nereyda
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
I have sle lupus
I don’t understand how the Drs call it mild lupus my bones and back of my legs hurt so bad I get real bad memory loss confusion chest pain the Drs Don’t find nothing besides my ana positive they came up with a number of 140 I can’t even walk up the stair I applied for ssi/disability since December haven
I don’t understand how the Drs call it mild lupus my bones and back of my legs hurt so bad I get real bad memory loss confusion chest pain the Drs Don’t find nothing besides my ana positive they came up with a number of 140 I can’t even walk up the stair I applied for ssi/disability since December haven
Vanessaperez102214
in
LUPUS UK
6 years ago
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New to Lupus.... possibly!
Hi, my diagnosis was ANA positive without any clinical features of SLE. However I saw the specialist nurse 2 weeks ago as I started to have increased fatigue and joint pains. She discussed with Consultant and agreed hydroxychloroquine which I started on 3rd April, On 11th April I developed v itchy facial
Hi, my diagnosis was ANA positive without any clinical features of SLE. However I saw the specialist nurse 2 weeks ago as I started to have increased fatigue and joint pains. She discussed with Consultant and agreed hydroxychloroquine which I started on 3rd April, On 11th April I developed v itchy facial
Scubes
in
LUPUS UK
6 years ago
Lupus/UCTD, Chemotherapy and Research
Hi all, I'm just wondering if anyone here has had a similar experience of developing a connective tissue disease (Undifferentiated, Lupus, Sjogrens or otherwise) about 5 years after chemotherapy for any kind of cancer? My GP referred me to a neurologist as my first port of call last year when my fingers
Hi all, I'm just wondering if anyone here has had a similar experience of developing a connective tissue disease (Undifferentiated, Lupus, Sjogrens or otherwise) about 5 years after chemotherapy for any kind of cancer? My GP referred me to a neurologist as my first port of call last year when my fingers
panda2
in
LUPUS UK
6 years ago
New to Lupus and need advise
Hi All, I am 32 and have been recently been diagnosed with Lupus. I am still in denial about this and haven't fully accepted it and keep holding out that the doctors have got it wrong. I guess I have known for a long while that something was not quite right but chose to ignore the symptoms and carry
Hi All, I am 32 and have been recently been diagnosed with Lupus. I am still in denial about this and haven't fully accepted it and keep holding out that the doctors have got it wrong. I guess I have known for a long while that something was not quite right but chose to ignore the symptoms and carry
Jacpat
in
LUPUS UK
6 years ago
Behçet and positive ANA. Anyone?
Isn’t common, but some people have ANA positive. I would like to know who has and the standard. thanks
Isn’t common, but some people have ANA positive. I would like to know who has and the standard. thanks
Anne_08
in
Behçet's UK
6 years ago
Professor Graham RV Hughes Blog: March 2018
March 2018 01 March 2018 by Professor Graham R V Hughes MD FRCP Wet, wet, wet. March this year, at least here in the South-East, has been dreadful – rain, cold winds, snow and most of all, grey skies. I swear that we have had less than 10 hours of sun this month. I hate to think what the nation’s
March 2018 01 March 2018 by Professor Graham R V Hughes MD FRCP Wet, wet, wet. March this year, at least here in the South-East, has been dreadful – rain, cold winds, snow and most of all, grey skies. I swear that we have had less than 10 hours of sun this month. I hate to think what the nation’s
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Negative ANA tests
At 14, I first went to a rheumatologist to get an ANA test done, because all but 3 women in my family have lupus and and/or rheumatoid arthritis, and I had been experiencing all of the common lupus symptoms. The test came back negative. At 15, I went to another rheumatologist to get the test done again
At 14, I first went to a rheumatologist to get an ANA test done, because all but 3 women in my family have lupus and and/or rheumatoid arthritis, and I had been experiencing all of the common lupus symptoms. The test came back negative. At 15, I went to another rheumatologist to get the test done again
0EmilyWanamaker0
in
LUPUS UK
6 years ago
Is it for sure lupus?
If I had a positive Ana test and then a negative does it mean I have lupus for sure? I have never really had any other symptoms besides recently my body is very achy?
If I had a positive Ana test and then a negative does it mean I have lupus for sure? I have never really had any other symptoms besides recently my body is very achy?
Jobuddy
in
Anxiety Support
6 years ago
Is it lupus?
Good morning all I was diagnosed with CNS lupus over a year ago. I know lupus can take years to fully diagnose. I have been very lucky and seen highly regarded lupus specialists but....I don't think I have lupus. I have been battling this with myself for a long time. I know a lot of you amazing people
Good morning all I was diagnosed with CNS lupus over a year ago. I know lupus can take years to fully diagnose. I have been very lucky and seen highly regarded lupus specialists but....I don't think I have lupus. I have been battling this with myself for a long time. I know a lot of you amazing people
ange726
in
LUPUS UK
6 years ago
Positive and speckled ANA
Hi all. I was wondering if anyone here has a positive ANA or speckled ANA? I had to go to another rhmy in December, my gyno wanted to see if I could have an op and it would be safe, so I had a full assessment with a new Dr. Funnily enough he did a full examination, really thorough. My Beighton score
Hi all. I was wondering if anyone here has a positive ANA or speckled ANA? I had to go to another rhmy in December, my gyno wanted to see if I could have an op and it would be safe, so I had a full assessment with a new Dr. Funnily enough he did a full examination, really thorough. My Beighton score
rosesinbloom
in
Ehlers-Danlos Support UK
6 years ago
When can I stop the B12 and Vitamin D
I have had low vitamin B12 for a year once a week for the first month and now montlhy I've been on the injections for over a year and it has gone up from 163 to 359. Am I able to stop taking them? I also am on vitamin D for 2 years and this now normal range. Am I able to stop taking that too? Is it possible
I have had low vitamin B12 for a year once a week for the first month and now montlhy I've been on the injections for over a year and it has gone up from 163 to 359. Am I able to stop taking them? I also am on vitamin D for 2 years and this now normal range. Am I able to stop taking that too? Is it possible
tralyn
in
Pernicious Anaemia Society
6 years ago
ANA POSITIVE
I’ve recently been referred to a specialist clinic due to my high antibodies & prescribed Hydroxychloroquine, I’m not sure what these are for as I was just left a prescription to pick up, in the meantime waiting for an appointment, not sure how long I will be waiting as it’s been over a month now. My
I’ve recently been referred to a specialist clinic due to my high antibodies & prescribed Hydroxychloroquine, I’m not sure what these are for as I was just left a prescription to pick up, in the meantime waiting for an appointment, not sure how long I will be waiting as it’s been over a month now. My
Lisas_tired
in
LUPUS UK
6 years ago
Can lupus disappear?
Hi! I was diagnosed with SLE in December 2000. I had positive dsDNA, ANA, high ESR, low C3/C4 complement levels, elevated liver enzymes, elevated serum globulin levels, protein in urine etc. along with recurring fevers, weight loss, swollen/painful joints, arthritis, Raynaud's, and features of Sjogrens
Hi! I was diagnosed with SLE in December 2000. I had positive dsDNA, ANA, high ESR, low C3/C4 complement levels, elevated liver enzymes, elevated serum globulin levels, protein in urine etc. along with recurring fevers, weight loss, swollen/painful joints, arthritis, Raynaud's, and features of Sjogrens
Jenn22M
in
LUPUS UK
6 years ago
Help with understanding my results please
Hi, finally had my blood work results. GP says my results are not normal but they’re fine... Any help/advice/analysis would be greatly appreciated; Serum Creatinine 56 umol/L (60-100) CRP 20mg/L (0-6) FT4 16.6 (12.0-22.0) TSH 0.76mU/L (0.27-4.20) Vitamin D 31 nmol/L (30-170) ANA positive low titre 1/
Hi, finally had my blood work results. GP says my results are not normal but they’re fine... Any help/advice/analysis would be greatly appreciated; Serum Creatinine 56 umol/L (60-100) CRP 20mg/L (0-6) FT4 16.6 (12.0-22.0) TSH 0.76mU/L (0.27-4.20) Vitamin D 31 nmol/L (30-170) ANA positive low titre 1/
Pepperpatty
in
Thyroid UK
6 years ago
Negative test results but very positive
Hi! I'm new here. First post. I was told to reach out to you the NRAS Community for help. Here goes-I've seen two or three Rheumatologist, two Orthopedist, and my Nurse Practioner for help. No one can or will help me as long as I continue to produce negative labs. My right hand chronically hurts
Hi! I'm new here. First post. I was told to reach out to you the NRAS Community for help. Here goes-I've seen two or three Rheumatologist, two Orthopedist, and my Nurse Practioner for help. No one can or will help me as long as I continue to produce negative labs. My right hand chronically hurts
Tessie62
in
NRAS
6 years ago
Positive ANA, dsDNA and Scl70 IgG
Stumbled onto this site doing research. I am in the US. Been ill for years. Just had labs done and ANA came back positive, dsDNA positive at 14 (normal<5) and positive Scl79 IgG at >8 (normal <1.0) Cant see the rheumatologist until April. can you have Lupus as well as scleroderma?
Stumbled onto this site doing research. I am in the US. Been ill for years. Just had labs done and ANA came back positive, dsDNA positive at 14 (normal<5) and positive Scl79 IgG at >8 (normal <1.0) Cant see the rheumatologist until April. can you have Lupus as well as scleroderma?
AngelaKay
in
LUPUS UK
6 years ago
ANA keeps changing
New to this but here goes. Short version - 2009 I had a positive ANA and high dsdna. Was seen by rheumatologist who retested and said they were normal. I remained ill and was retested in 2011 -again positive ANA and high dsdna. But they decided I was ok as and just 'keeping an eye on me'. In 2012
New to this but here goes. Short version - 2009 I had a positive ANA and high dsdna. Was seen by rheumatologist who retested and said they were normal. I remained ill and was retested in 2011 -again positive ANA and high dsdna. But they decided I was ok as and just 'keeping an eye on me'. In 2012
wendyhoney
in
LUPUS UK
6 years ago
Red to purple feet that stay cold
I showed my Dr my feet and how cold they were and red.She did blood work and my Ana test came back positive. I don't go back to the Dr until the end of Mar. She said it could be poor circulation or an auto-immune disease called something. I can't remember what it is called. Since I can't remember w0hat
I showed my Dr my feet and how cold they were and red.She did blood work and my Ana test came back positive. I don't go back to the Dr until the end of Mar. She said it could be poor circulation or an auto-immune disease called something. I can't remember what it is called. Since I can't remember w0hat
cljones
in
My MSAA Community
6 years ago
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