Search
Search
About
Log in
Join
Experiences with
Alna
Posts
Communities
937 public posts
Filter results
Intro
Evening all! I have not been diagnosed w/ MS, but I do have Lupus. I've been having some different issues lately that don't really line up with the Lupus. Originally before being diagnosed my pcp & I were wondering if it was MS, but after positive ANA & dsDNA they went with Lupus. lol That was about
Evening all! I have not been diagnosed w/ MS, but I do have Lupus. I've been having some different issues lately that don't really line up with the Lupus. Originally before being diagnosed my pcp & I were wondering if it was MS, but after positive ANA & dsDNA they went with Lupus. lol That was about
redhood246
in
My MSAA Community
5 years ago
Concerned by Raynaud symptoms and positive ANA
I’m 41 and have developed Raynaud symptoms. Not painful. But cold and a multitude of colours. Also hands flare when stressed. Coupled with that I was getting some hard, red spots on left hand. Went to doctor who carried out some blood tests. In the meantime the spots went away. Blood tests revealed
I’m 41 and have developed Raynaud symptoms. Not painful. But cold and a multitude of colours. Also hands flare when stressed. Coupled with that I was getting some hard, red spots on left hand. Went to doctor who carried out some blood tests. In the meantime the spots went away. Blood tests revealed
Booboos0330
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Confused!
Hi All, new to this platform. Goid to see so much support. I have been under investigation for 4 years, first for MS now lupus. Positive ANA , facial rash, flair ups when stressed or tired. Extreme fatigue. Most days i woke feeling like I had done a heavy session at the gym. When i have flairs my
Hi All, new to this platform. Goid to see so much support. I have been under investigation for 4 years, first for MS now lupus. Positive ANA , facial rash, flair ups when stressed or tired. Extreme fatigue. Most days i woke feeling like I had done a heavy session at the gym. When i have flairs my
Sallmell
in
LUPUS UK
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Please help
Hi everyone, I'm in desperate need of help. Last year in June I was sent to Rheumatology as I had hand and wrist pain and a low positive ANA test result. The conclusion was that there was no rheumatic findings, which I agreed with. At the end of my letter from consultant it states that if any more
Hi everyone, I'm in desperate need of help. Last year in June I was sent to Rheumatology as I had hand and wrist pain and a low positive ANA test result. The conclusion was that there was no rheumatic findings, which I agreed with. At the end of my letter from consultant it states that if any more
Elephantmad
in
NRAS
5 years ago
Anti-Nuclear Antibodies May Confuse Lupus Diagnosis
Patients who may have lupus typically undergo an “ANA” test to detect anti-nuclear antibodies (ANAs). Lupus Research Alliance Distinguished Innovator Award recipient Dr. Shu Man Fu of the University of Virginia and colleagues found that people who don’t have lupus also produce ANAs. This suggests that
Patients who may have lupus typically undergo an “ANA” test to detect anti-nuclear antibodies (ANAs). Lupus Research Alliance Distinguished Innovator Award recipient Dr. Shu Man Fu of the University of Virginia and colleagues found that people who don’t have lupus also produce ANAs. This suggests that
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Second Opinion Update
Before I would go to the rheumatologist, I visited another primary doctor for a second opinion. She... Reviewed my lab results one by one Reviewed my current symptoms from 6 weeks ago through now (mouth sores, swollen lymph nodes, one swollen tonsil, mild fatigue, on and off pain in ribs, one week headaches
Before I would go to the rheumatologist, I visited another primary doctor for a second opinion. She... Reviewed my lab results one by one Reviewed my current symptoms from 6 weeks ago through now (mouth sores, swollen lymph nodes, one swollen tonsil, mild fatigue, on and off pain in ribs, one week headaches
GhostfaceMcGee
in
LUPUS UK
5 years ago
Hi- Have fatigue, joint pain, swollen glands, mouth ulcers, scaly red rash on face when in sun since Xmas but ANA test just back negative?
I’m 57 and realised I’ve had periods like this for over 20 years. Only when I developed the rash that I considered Lupus - it’s like reading about myself -
I’m 57 and realised I’ve had periods like this for over 20 years. Only when I developed the rash that I considered Lupus - it’s like reading about myself -
cathART
in
LUPUS UK
5 years ago
Did your loved ones want you to get a second opinion?
I recently told my parents about my primary doctor referring me to a rheumatologist for further evaluation, because I may need to switch back onto their health insurance for now since my current health insurance does not cover specialists (I am almost 24). Before I would go to a rheumatologist, though
I recently told my parents about my primary doctor referring me to a rheumatologist for further evaluation, because I may need to switch back onto their health insurance for now since my current health insurance does not cover specialists (I am almost 24). Before I would go to a rheumatologist, though
GhostfaceMcGee
in
LUPUS UK
5 years ago
Lupus or something else? Guidance please :)
Hi all, I've been reading many posts on here but yet to write myself. I'm in a bit of a pickle. As a child I was always getting sick. Pneumonia twice, constant throat and chest infections. I've always been pale and slight in frame. Then when I hit 14 (probably puberty related) I had to get tonsils out
Hi all, I've been reading many posts on here but yet to write myself. I'm in a bit of a pickle. As a child I was always getting sick. Pneumonia twice, constant throat and chest infections. I've always been pale and slight in frame. Then when I hit 14 (probably puberty related) I had to get tonsils out
Wardlow
in
LUPUS UK
5 years ago
Was it worth it for you to take advantage of a referral to a Rheumatologist?
My primary doctor just referred me to a rheumatologist to go over my lab work. I am hesitant, because I'm my symptoms are not drastically affecting my daily life, however, my lab work showed a positive ANA with titer of 640 homogenous and 2560 centromere. Did you wait until symptoms got worse, to see
My primary doctor just referred me to a rheumatologist to go over my lab work. I am hesitant, because I'm my symptoms are not drastically affecting my daily life, however, my lab work showed a positive ANA with titer of 640 homogenous and 2560 centromere. Did you wait until symptoms got worse, to see
GhostfaceMcGee
in
LUPUS UK
5 years ago
Should I be concerned about my high ANA titer?
I am not diagnosed with anything, but doctor has ordered blood work to figure out why I have had fatigue, mouth sores, headaches, swollen lymph nodes and a rash on my neck. WBC was 4.3 Positive ANA, with a mixed pattern (640 homogenous and 2560 centromere). All the other blood tests which follow a positive
I am not diagnosed with anything, but doctor has ordered blood work to figure out why I have had fatigue, mouth sores, headaches, swollen lymph nodes and a rash on my neck. WBC was 4.3 Positive ANA, with a mixed pattern (640 homogenous and 2560 centromere). All the other blood tests which follow a positive
GhostfaceMcGee
in
LUPUS UK
5 years ago
Pain all over, can’t take it anymore
Hello, I am desperate for answers... it all started almost 2 years ago. I began having horrible chest pain out of the blue, same story as many, went through all the tests on my heart and its all came up excellent. i'm a 26 year old male in pretty good shape so that wasnt a surprise. Doc said it was
Hello, I am desperate for answers... it all started almost 2 years ago. I began having horrible chest pain out of the blue, same story as many, went through all the tests on my heart and its all came up excellent. i'm a 26 year old male in pretty good shape so that wasnt a surprise. Doc said it was
tim_15
in
Fibromyalgia Action UK
5 years ago
Newbie with a rash
Hi all been lurking for a while.53yrs old diagnosed SS Feb 19, also stage 3 IGa kidney disease in July 18. Started on hydroxychloraquine a month ago on the last day of the first month(30th) day came out rash on back of arms and over chest saw the consultant coincidently the same day he said allergic
Hi all been lurking for a while.53yrs old diagnosed SS Feb 19, also stage 3 IGa kidney disease in July 18. Started on hydroxychloraquine a month ago on the last day of the first month(30th) day came out rash on back of arms and over chest saw the consultant coincidently the same day he said allergic
Catpuss66
in
The Australian Sjögren's Syndrome Association
5 years ago
Letter given to Rheumatologist w labs and an article
Hi all, I typed up a letter to the Rheumatologist whom I was referred to and included my lab work along with a government article on the Hep 2 cell ANA test. All my questions were included and I requested that he respond via email. He was out of town last week and its been 3 days since he got back and
Hi all, I typed up a letter to the Rheumatologist whom I was referred to and included my lab work along with a government article on the Hep 2 cell ANA test. All my questions were included and I requested that he respond via email. He was out of town last week and its been 3 days since he got back and
JennaShi
in
LUPUS UK
5 years ago
Positive ANA/negative ENA update!
I had a positive ANA test and was referred for an ENA panel. It has come back negative, as well as C3 and C4 being negative too. I’m feeling as bad as ever. Does anyone know what this means or does not mean? I can’t find too much specific information online. UPDATE - Saw rheumatologist today and he
I had a positive ANA test and was referred for an ENA panel. It has come back negative, as well as C3 and C4 being negative too. I’m feeling as bad as ever. Does anyone know what this means or does not mean? I can’t find too much specific information online. UPDATE - Saw rheumatologist today and he
Wee1kirby
in
LUPUS UK
5 years ago
Tortured by a Butterfly -- Dermatology and extreme sun reactions
Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple directions (and upset me about the breast explant situation again -- but I'll save that for another day). Because forefront on my mind is my Dermatology appt this afternoon. Yesterday, I provoked 2 bright red, painful burns
Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple directions (and upset me about the breast explant situation again -- but I'll save that for another day). Because forefront on my mind is my Dermatology appt this afternoon. Yesterday, I provoked 2 bright red, painful burns
panda2
in
LUPUS UK
5 years ago
Blood Test Today - Advice needed
Morning Everyone, I have another blood test today and wanted to ask if anyone has some advice for my next steps. This will be the 4th blood test to see in positive ANA are present but I think they are going to check inflammation levels too - is it okay to ask the nurse what she is testing for? I figured
Morning Everyone, I have another blood test today and wanted to ask if anyone has some advice for my next steps. This will be the 4th blood test to see in positive ANA are present but I think they are going to check inflammation levels too - is it okay to ask the nurse what she is testing for? I figured
Leenie0811
in
LUPUS UK
5 years ago
GP visit - shocked at response
Hello everyone this is my first time posting on this community although I have been reading for advice and info for some time and you are all very helpful. My journey started in 2014 with investigations for possible PBC (positive Anti-mitochobdrial antibody and elevated liver function tests). I was
Hello everyone this is my first time posting on this community although I have been reading for advice and info for some time and you are all very helpful. My journey started in 2014 with investigations for possible PBC (positive Anti-mitochobdrial antibody and elevated liver function tests). I was
Happy43
in
LUPUS UK
5 years ago
Mom of 15 year old. Still no diagnosis. New to group
Primary care. What a waste of precious time. My daughter remains undiagnosed since the age of 6. At 6 she had symptoms of a MILD? "auto immune inflammatory disease" they said at Great Ormond. I begged the GP to send her as he wouldn't initially. Great Ormond stabilised her on 3 months worth of broad
Primary care. What a waste of precious time. My daughter remains undiagnosed since the age of 6. At 6 she had symptoms of a MILD? "auto immune inflammatory disease" they said at Great Ormond. I begged the GP to send her as he wouldn't initially. Great Ormond stabilised her on 3 months worth of broad
Mom2Danni
in
LUPUS UK
5 years ago
Lupus and oral biopsy
Hi could anyone help me? I've just been told I had lupus anticoagulant in blood. DVRRT 1.31 (three months ago 1.22) with positive ANA weakly diffuse 1:80 titre. I'm supposed have oral biopsy under general anaesthesia. My rheum. Said I did not need to be on any meds but I thought lupus increases chance
Hi could anyone help me? I've just been told I had lupus anticoagulant in blood. DVRRT 1.31 (three months ago 1.22) with positive ANA weakly diffuse 1:80 titre. I'm supposed have oral biopsy under general anaesthesia. My rheum. Said I did not need to be on any meds but I thought lupus increases chance
Sangu1
in
LUPUS UK
5 years ago
1
...
15
16
17
...
47
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
495 results
Thyroid UK
76 results
Scleroderma & Raynaud's UK (SRUK)
46 results
View top 10 communities
Sort by
Most Relevant
Newest