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Hi everyone, I haven't been here for a while!
I've got about a year or so history of blood tests showing my thyroid levels not being quite right; I have been discharged by the endocrinology department and my GP has said she is unable to get me medication as it goes against NHS guidelines. My latest blood tests were: TSH 1.18 (range 0.27 - 4.2) T4
I've got about a year or so history of blood tests showing my thyroid levels not being quite right; I have been discharged by the endocrinology department and my GP has said she is unable to get me medication as it goes against NHS guidelines. My latest blood tests were: TSH 1.18 (range 0.27 - 4.2) T4
saltylu
in
Thyroid UK
4 years ago
Hypo to Hyper Thyroid readings - what’s happening ?
Hi guys , I’m a 46 year old female, very over weight and on Amlodipine 10mg and Thyroxine 75mg for hypertension / hashimotos. I’ve been feeling awful lately : Nausea / vomiting , Very swollen feet, ankles & shins, cellulitis type rash all over my lower legs, conjunctivitis, blepharitis and orbital
Hi guys , I’m a 46 year old female, very over weight and on Amlodipine 10mg and Thyroxine 75mg for hypertension / hashimotos. I’ve been feeling awful lately : Nausea / vomiting , Very swollen feet, ankles & shins, cellulitis type rash all over my lower legs, conjunctivitis, blepharitis and orbital
Ex111
in
Thyroid UK
4 years ago
On bone marrow biopsy (BMB)?
Hello everyone, People with PV/ET regularly (e.g., per month) test their blood to keep track of cell counts and other things. How about bone marrow biopsy (BMB)? Are there repeats of BMB test to check changes after the first one that was performed to detect any mutation like JK2 ? If yes, how the results
Hello everyone, People with PV/ET regularly (e.g., per month) test their blood to keep track of cell counts and other things. How about bone marrow biopsy (BMB)? Are there repeats of BMB test to check changes after the first one that was performed to detect any mutation like JK2 ? If yes, how the results
samiris
in
MPN Voice
4 years ago
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Hurrah an appointment with rheumatologist, but I’ve got a fever
Hi all, Thanks so much to those who welcomed me here just over a week ago, I have taken all advice and info onboard and have managed to get a private referral appointment this weekend. I’m preparing all my symptoms notes. However, like most places during Covid they don’t want you to go in if you have
Hi all, Thanks so much to those who welcomed me here just over a week ago, I have taken all advice and info onboard and have managed to get a private referral appointment this weekend. I’m preparing all my symptoms notes. However, like most places during Covid they don’t want you to go in if you have
SWinNorfolk
in
LUPUS UK
4 years ago
What does ANA positive mean?
If you are ANA positive does it mean you have Lupus, or can it mean something else? New to the group and so glad I found you
If you are ANA positive does it mean you have Lupus, or can it mean something else? New to the group and so glad I found you
katiebey
in
LUPUS UK
4 years ago
Newly positive S.L.E. test
Hi all, just joined. I’ve had a number of symptoms of lupus over the years, but not the butterfly rash or joint swelling or pain. I recently had the ana test which came back positive and have been referred to a rheumatologist. There aren’t any appointments currently and with waiting lists I may not be
Hi all, just joined. I’ve had a number of symptoms of lupus over the years, but not the butterfly rash or joint swelling or pain. I recently had the ana test which came back positive and have been referred to a rheumatologist. There aren’t any appointments currently and with waiting lists I may not be
SWinNorfolk
in
LUPUS UK
4 years ago
Help please
Hello, I need a small help. I've been struggling with a strange sensation in my left foot for about 2 months. It felt like there's a feather in between my toes. Went to doctor & got blood work done. It showed ferritin -16, Vit B12: 315, Folate: 7.9, Vit D: 35, TSH:0.85, ANA: positive 1:320 speckled.
Hello, I need a small help. I've been struggling with a strange sensation in my left foot for about 2 months. It felt like there's a feather in between my toes. Went to doctor & got blood work done. It showed ferritin -16, Vit B12: 315, Folate: 7.9, Vit D: 35, TSH:0.85, ANA: positive 1:320 speckled.
HiMax
in
Pernicious Anaemia Society
4 years ago
Got blood work results back today
My naturopath drew blood for my thyroid and ANA test last week. Got the results today and no surprise but thyroid's way out of wack. New prescriptions should help get me closer to where I need to be. BUT the surprise, to me anyway, is that my ANA is negative. I asked the doc then about my PMR since it
My naturopath drew blood for my thyroid and ANA test last week. Got the results today and no surprise but thyroid's way out of wack. New prescriptions should help get me closer to where I need to be. BUT the surprise, to me anyway, is that my ANA is negative. I asked the doc then about my PMR since it
Dydee
in
PMRGCAuk
4 years ago
Granuloma Annulare? Mis diagnosed rash? Anyone else?
Hello, Hope you’re all well, managing symptoms and keeping safe. I was just wondering if anyone else had this experience... I’ve had all the symptoms of lupus the past 2 years, my bloods have shown inflammation, and a weakly positive Ana, then fluctuates, to normal and raised. Rhuemy said this ain’t
Hello, Hope you’re all well, managing symptoms and keeping safe. I was just wondering if anyone else had this experience... I’ve had all the symptoms of lupus the past 2 years, my bloods have shown inflammation, and a weakly positive Ana, then fluctuates, to normal and raised. Rhuemy said this ain’t
Cazza_dow
in
LUPUS UK
4 years ago
Well! I just don't know what I have.
Over the last few months I have been on the NRAS forum - chatting away as it was the site I was directed to. Diagnosed with inflammatory arthritis, with moderate disease activity and later Sicca and a positive Schirmar test. Have been on MTX injections, Leflunomide and now HYD and PRED. The first two
Over the last few months I have been on the NRAS forum - chatting away as it was the site I was directed to. Diagnosed with inflammatory arthritis, with moderate disease activity and later Sicca and a positive Schirmar test. Have been on MTX injections, Leflunomide and now HYD and PRED. The first two
RosieA
in
LUPUS UK
4 years ago
AIH diagnoses with asymptomatic patients, questions and my story
Thought I'd write here, I've been googling for a few weeks now about AIH and it's pretty hard to find support group forums other than this. I'm not from the UK, but cant find anything in my own country. I'd love to hear some stories how one got diagnosed with mild lft elevations and how long it took
Thought I'd write here, I've been googling for a few weeks now about AIH and it's pretty hard to find support group forums other than this. I'm not from the UK, but cant find anything in my own country. I'd love to hear some stories how one got diagnosed with mild lft elevations and how long it took
SKPike
in
British Liver Trust
4 years ago
Do I need increase in NDT or Liothyronine? Advice much appreciated!
Hello everyone, I was diagnosed hypo many years ago, surviving on ever increasing Levo, insomnia, weight gain and high BP before seeing a private Endo 9months ago. I already had full tests for folate, B12, ferritin etc and all were good. I am a poor converter ( homozygous fault for DiO2) and now, thankfully
Hello everyone, I was diagnosed hypo many years ago, surviving on ever increasing Levo, insomnia, weight gain and high BP before seeing a private Endo 9months ago. I already had full tests for folate, B12, ferritin etc and all were good. I am a poor converter ( homozygous fault for DiO2) and now, thankfully
Warwickian
in
Thyroid UK
4 years ago
Getting a diagnosis?
Hi SRUK, I've been following the work and updates of SRUK for a few years now with great interest. My physical health declined in 2008 and after various appointments with different departments (neurology, orthopaedics and lastly Chronic Pain Services) it was suggested I most likely have Fibromyalgia
Hi SRUK, I've been following the work and updates of SRUK for a few years now with great interest. My physical health declined in 2008 and after various appointments with different departments (neurology, orthopaedics and lastly Chronic Pain Services) it was suggested I most likely have Fibromyalgia
Cazie50
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
55 year old man follow up question
Hi I wrote a couple of weeks ago regarding my fears I may have Lupas. I’ve had stacks of blood tests. I get the results tomorrow. Does a negative ANA test mean Lupas is unlikely? I have another recent problem. My hands and feet are on fire they feel like they are burning and nothing helps. This has
Hi I wrote a couple of weeks ago regarding my fears I may have Lupas. I’ve had stacks of blood tests. I get the results tomorrow. Does a negative ANA test mean Lupas is unlikely? I have another recent problem. My hands and feet are on fire they feel like they are burning and nothing helps. This has
reo747
in
LUPUS UK
4 years ago
Getting a diagnosis
Hello everyone, I am new here and would like some opinions from you all if that’s alright. I have Raynaud’s syndrome and vitiligo, it just started suddenly a few years ago. However recently I have become pretty tired most times and my joints and feet started aching badly. I called the GP and she arranged
Hello everyone, I am new here and would like some opinions from you all if that’s alright. I have Raynaud’s syndrome and vitiligo, it just started suddenly a few years ago. However recently I have become pretty tired most times and my joints and feet started aching badly. I called the GP and she arranged
fgade
in
LUPUS UK
4 years ago
Diagnosis
I was wondering if I have Lupus and hoping some of you kind people might be able to help me. I'm going to do a really brief summary of my health life, that might be relevant. Late 20's Both knees suddenly stopped bending, clear up on its own. Pain in groin area, continued for 20 years. Weird headaches
I was wondering if I have Lupus and hoping some of you kind people might be able to help me. I'm going to do a really brief summary of my health life, that might be relevant. Late 20's Both knees suddenly stopped bending, clear up on its own. Pain in groin area, continued for 20 years. Weird headaches
Treesl
in
LUPUS UK
4 years ago
Feel like im moaning
Since my last visit to scleroderma clinic I as a female have been taken off viagra 3td to a 38 hr sustained release tidilafil (viagra) but lost a lot of weight achy but due to covid I’ve not been able to question it also I’m ana positive uctd servere raynauds ichemic finger but feel my disease is invisible
Since my last visit to scleroderma clinic I as a female have been taken off viagra 3td to a 38 hr sustained release tidilafil (viagra) but lost a lot of weight achy but due to covid I’ve not been able to question it also I’m ana positive uctd servere raynauds ichemic finger but feel my disease is invisible
leighlfc
in
LUPUS UK
4 years ago
Update on diagnosis with ANA + symptoms only!
hi guys, i posted a week ago on here about how i was confused about my lupus diagnosis since my doctor diagnosed me on symptoms and positive ANA alone and started me on treatment right away. She did give me more blood tests, MRI, and ultrasound but she said even if those come back normal shed still
hi guys, i posted a week ago on here about how i was confused about my lupus diagnosis since my doctor diagnosed me on symptoms and positive ANA alone and started me on treatment right away. She did give me more blood tests, MRI, and ultrasound but she said even if those come back normal shed still
aimenkhattak27
in
LUPUS UK
4 years ago
Lupus diagnosis
Hello I've been suffering with a long and multiplying list of seemingly random symptoms for a good few years now, and I'm desperate to find out what's going on so that I can feel better. GPs have been pretty dismissive although I've had some tests/treatments. GP yesterday mentioned Lupus but then said
Hello I've been suffering with a long and multiplying list of seemingly random symptoms for a good few years now, and I'm desperate to find out what's going on so that I can feel better. GPs have been pretty dismissive although I've had some tests/treatments. GP yesterday mentioned Lupus but then said
BlackInk
in
LUPUS UK
4 years ago
Diagnosis based on ANA and symptoms only?
hi everyone, I was just recently diagnosed with what as of rn my doctor is calling lupus since i seem to have a lupus-like disease. Im just a bit worried and confused about my diagnosis bc many people seem to have such extensive blood results however my doctor diagnosed me based on clinical symptoms
hi everyone, I was just recently diagnosed with what as of rn my doctor is calling lupus since i seem to have a lupus-like disease. Im just a bit worried and confused about my diagnosis bc many people seem to have such extensive blood results however my doctor diagnosed me based on clinical symptoms
aimenkhattak27
in
LUPUS UK
4 years ago
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