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And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
9 months ago
Webinar on financial planning with lupus
Monday 20th November at 5:30pm we are hosting a webinar with specialist financial planners from the Stonewood Group. They will talk through some information, and you will have the opportunity to ask them questions. The topics discussed will come directly from what people highlighted was important in
Monday 20th November at 5:30pm we are hosting a webinar with specialist financial planners from the Stonewood Group. They will talk through some information, and you will have the opportunity to ask them questions. The topics discussed will come directly from what people highlighted was important in
Debbie_kinsey
Administrator
in
LUPUS UK
7 months ago
So fed up
I keep getting a pain in the bottom of my chest / top of stomach area. I ended up in a&e last week after 2 hours of pain. I had an ecg, blood tests, chest xray, ct scan & an ultrasound on my stomach, after initial worries everything seems fine apart from 1 dr wanting me to have an echocardiogram & 24
I keep getting a pain in the bottom of my chest / top of stomach area. I ended up in a&e last week after 2 hours of pain. I had an ecg, blood tests, chest xray, ct scan & an ultrasound on my stomach, after initial worries everything seems fine apart from 1 dr wanting me to have an echocardiogram & 24
Gilly61
in
Anxiety Support
6 months ago
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Orgovyx stopped woking.
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
woppaginny
in
Advanced Prostate Cancer
9 months ago
Rash on Feet
hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in my feet and ankles. I’ve been diagnosed with Lupus earlier this year as well as raynauds and sjogrens. I’m starting to get concerned with my current
hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in my feet and ankles. I’ve been diagnosed with Lupus earlier this year as well as raynauds and sjogrens. I’m starting to get concerned with my current
Hidden
in
LUPUS UK
7 months ago
VETEBRAL PLASTY SURGERY FINALLY SCHED FOR NEXT WEEK
At long last. Vetebral surgery scheduled for Sept. 21.
PMRPRo,
can you please tell me about hydrocortisone cover (during surgery) and doubling up on regular Pred for a couple of days afterward? This, so I can sound intelligent when the Nurse calls. Lol. It is a local anesthetic, not being put
At long last. Vetebral surgery scheduled for Sept. 21.
PMRPRo,
can you please tell me about hydrocortisone cover (during surgery) and doubling up on regular Pred for a couple of days afterward? This, so I can sound intelligent when the Nurse calls. Lol. It is a local anesthetic, not being put
Missus835
in
PMRGCAuk
9 months ago
Decongestant ingredient in popular products does not work, FDA concludes
There have long been questions about those with thyroid issues taking phenylephrine, in any form. Including used by ophthalmologists during operations. The latest news suggests not being able to take phenylephrine might not make much, if any, difference! Note: The brand names mentioned might well contain
There have long been questions about those with thyroid issues taking phenylephrine, in any form. Including used by ophthalmologists during operations. The latest news suggests not being able to take phenylephrine might not make much, if any, difference! Note: The brand names mentioned might well contain
helvella
Thyroid UK
in
Thyroid UK
9 months ago
cirrhosis and high kidney levels!
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
Cfmol
in
British Liver Trust
9 months ago
Advice
I'm seeing a neurologist for balance problems and occasional slurring of words. I was diagnosed with Pernicious Anaemia (currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been
I'm seeing a neurologist for balance problems and occasional slurring of words. I was diagnosed with Pernicious Anaemia (currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been
Mark2027
in
Thyroid UK
7 months ago
Oligomets and SBRT: "Whack a Mole"?
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
FrankyB4
in
Advanced Prostate Cancer
9 months ago
ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
RupertW-SUMS
in
LUPUS UK
7 months ago
Lupus information and stories
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
MrsMarigold
in
LUPUS UK
7 months ago
good morning everyone. Saw my doctor the other day and I am so confused. He said I have fatty liver but not liver disease. What does he mean
I haven’t got much faith in my doctor really as he has overlooked my enlarged bile duct in the past. I noticed the report so I requested another ultrasound 12 months later. The size had stayed the same but they noticed fatty liver. The doctor isn’t concerned at all but I am having problems dealing with
I haven’t got much faith in my doctor really as he has overlooked my enlarged bile duct in the past. I noticed the report so I requested another ultrasound 12 months later. The size had stayed the same but they noticed fatty liver. The doctor isn’t concerned at all but I am having problems dealing with
Bettina2023
in
British Liver Trust
9 months ago
What is the best app for lupus diet.
I’m struggling with my weight and what to avoid .
I’m struggling with my weight and what to avoid .
Gabriel8
in
LUPUS UK
7 months ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
9 months ago
Ascites and edema gone. Belly remains.
Hope all of you are well. Quick question. Have any of you had ascites substantially decline and yet your belly remains hard and round? Will this ever go away? Walking and exercising strenuously. Lifting weights , sit-ups and walking approximately 10 miles a week. Eating much healthier. Haven’t drink
Hope all of you are well. Quick question. Have any of you had ascites substantially decline and yet your belly remains hard and round? Will this ever go away? Walking and exercising strenuously. Lifting weights , sit-ups and walking approximately 10 miles a week. Eating much healthier. Haven’t drink
juneblue
in
British Liver Trust
9 months ago
Do anyone have a movement disorder?
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
I haven't got lupus but have aps and from what I've been told you can have a movement disorder with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements. It's
Charts
in
LUPUS UK
7 months ago
Cholesterol and Statins
I am looking for some advice around taking a Statin for borderline high Cholesterol. I recently had a blood test for Cholesterol and the headline figures were:- Total Cholesterol 6.6 HDL 1.27 Triglycerides 1.86 LDL 4.5 10 year Cardiovascular risk score 14.6% I started taking a Statin as advised
I am looking for some advice around taking a Statin for borderline high Cholesterol. I recently had a blood test for Cholesterol and the headline figures were:- Total Cholesterol 6.6 HDL 1.27 Triglycerides 1.86 LDL 4.5 10 year Cardiovascular risk score 14.6% I started taking a Statin as advised
Hightower62
in
NRAS
6 months ago
Echcardio report finally.....after 3 months wait!
Hi all. Some of my AF friends on here may recall I had an echocardiogram way back on 14th August, as i was getting a bit SOB on stairs and slopes. I finally got the report on this Friday, 24th NOVEMBER....I almost can't believe I have had to wait THAT long. Anyway there has indeed been a change
Hi all. Some of my AF friends on here may recall I had an echocardiogram way back on 14th August, as i was getting a bit SOB on stairs and slopes. I finally got the report on this Friday, 24th NOVEMBER....I almost can't believe I have had to wait THAT long. Anyway there has indeed been a change
Wightbaby
in
AF Association
6 months ago
Advice please 😌
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Hi everybody, It’s nice to meet you all! So I’m sure you have loads of people posting on here about their frustrations with the NHS/GPs etc. therefore I won’t bore you with all of the details. My journey began in Dec 22 with what I thought was a bout of viral infection-induced joint pain in my hands
Rocinante_89
in
LUPUS UK
7 months ago
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