Search
Search
About
Log in
Join
Experiences with
Alexander disease
Posts
Communities
43,087 public posts
Filter results
seeking feedback on my case
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
tmscat
in
Advanced Prostate Cancer
9 months ago
CATCH Up CORNER...WEEK 4... Time to kick off the running shoes, and Slow things down...
Hello.... Welcome to the Corner... It is warm and cosy and hopefully, many of you will have escaped the reaches of the latest storm! It is so good to be here welcoming you all, for another week of running... or if you are unlucky enough to be out if it for a while ,another day or so of. Self care
Hello.... Welcome to the Corner... It is warm and cosy and hopefully, many of you will have escaped the reaches of the latest storm! It is so good to be here welcoming you all, for another week of running... or if you are unlucky enough to be out if it for a while ,another day or so of. Self care
Oldfloss
Administrator
in
Couch to 5K
6 months ago
Kardiamobile says sinus rhythm but Galaxy watch says AFib
Just wondering if anyone's had this experience I have both the Kardia mobile and a Samsung smartwatch Samsung says afib but kardiamobile normal. heart rate in the 70s does anyone know one could be trusted more than the other
Just wondering if anyone's had this experience I have both the Kardia mobile and a Samsung smartwatch Samsung says afib but kardiamobile normal. heart rate in the 70s does anyone know one could be trusted more than the other
easygoer13
in
Atrial Fibrillation Support
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hypereosinofilia with Pbc,ursofalk side effects.
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Alina8004
in
PBC Foundation
9 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
9 months ago
AST/ALT Ratio
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
Mack89
in
British Liver Trust
5 months ago
New meta-analysis shows docetaxel benefits those having high grade/low PSA prostate cancer
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
HikerWife
in
Advanced Prostate Cancer
9 months ago
Waiting for ablation
I started in Afib June 2022 after covid, was diagnosed in August and put on Edoxaban and bisoprolol by my GP. In October I was seen by a specialist and put on Amiodarone (I've mentioned the side effects before.. thanks for the responses) and put on the waiting list for a cardioversion. That was done
I started in Afib June 2022 after covid, was diagnosed in August and put on Edoxaban and bisoprolol by my GP. In October I was seen by a specialist and put on Amiodarone (I've mentioned the side effects before.. thanks for the responses) and put on the waiting list for a cardioversion. That was done
JoDogBlue
in
Atrial Fibrillation Support
6 months ago
Cause of extremely low ALP on Liver Function Tests
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
African1
in
British Liver Trust
9 months ago
road to diagnosis
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
RA_123
in
LUPUS UK
7 months ago
lowering prednisolone
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
I have had pmg since last September and have very gradually lowered my dose from 15mg to 1mg. which I have been on for the last six weeks. I decided to try to go without steroids for the last two days and apart from the usual shoulder ach when getting up, so far so good, I am now worried about getting
Guilluame
in
PMRGCAuk
9 months ago
Feeling fed up
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
MrMidnight2021
in
British Liver Trust
9 months ago
ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC
Looks like a number of Drug companies are creating drugs that interact with the AR’s N-terminal domain and ligand-binding domain, impeding cell growth and enabling AR degradation. ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC October 27, 2023 Investigators will assess
Looks like a number of Drug companies are creating drugs that interact with the AR’s N-terminal domain and ligand-binding domain, impeding cell growth and enabling AR degradation. ONCT-534 Earns FDA Fast Track Designation in R/R Metastatic CRPC October 27, 2023 Investigators will assess
Scout4answers
in
Advanced Prostate Cancer
9 months ago
Bob Mortimer
Bob has brought Rheumatoid Arthritis into the conversation with the Christmas special I knew he had health issues but didn't know Arthritis until he mentioned on the programme. I read his autobiography which is good poignant and funny. Arthritis is not mentioned. He says diagnosed in 20s but he was
Bob has brought Rheumatoid Arthritis into the conversation with the Christmas special I knew he had health issues but didn't know Arthritis until he mentioned on the programme. I read his autobiography which is good poignant and funny. Arthritis is not mentioned. He says diagnosed in 20s but he was
welsh12
in
NRAS
7 months ago
My turn to go to A&E
Well what a day i had yesterday, at about 4am i woke up in a right state as couldn't breathe. It took quite a while for me t get back to sleep. When i woke up i didn't feel well at all. It was as much as i wanted to do just to get up and go to the loo before coming downstairs to get myself a cup of tea
Well what a day i had yesterday, at about 4am i woke up in a right state as couldn't breathe. It took quite a while for me t get back to sleep. When i woke up i didn't feel well at all. It was as much as i wanted to do just to get up and go to the loo before coming downstairs to get myself a cup of tea
sylvi
in
NRAS
6 months ago
no transplant needed!
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
Harriet-sarah
in
British Liver Trust
9 months ago
Creatine For Advanced Prostate Cancer Patients
A new study at Huntsman Cancer Institute is going to look at potential benefits of creatine for maintaining muscle mass in APC patients. Here's the link: https://www.onclive.com/view/new-clinical-trials-test-innovative-ways-to-preserve-muscle-mass-during-metastatic-prostate-cancer?utm_medium=email&
A new study at Huntsman Cancer Institute is going to look at potential benefits of creatine for maintaining muscle mass in APC patients. Here's the link: https://www.onclive.com/view/new-clinical-trials-test-innovative-ways-to-preserve-muscle-mass-during-metastatic-prostate-cancer?utm_medium=email&
CocoTheAlphaCat
in
Advanced Prostate Cancer
9 months ago
Post-Covid lung issues - what to expect?
Hi all, I had Covid in mid November and have been sick ever since, particularly (and perhaps only) breathlessness and fatigue. I was first diagnosed with asthma, but the meds only seemed to stave off a worse episode of breathlessness. So I went back to the docs and insisted on being seen, as I was
Hi all, I had Covid in mid November and have been sick ever since, particularly (and perhaps only) breathlessness and fatigue. I was first diagnosed with asthma, but the meds only seemed to stave off a worse episode of breathlessness. So I went back to the docs and insisted on being seen, as I was
Treetop33
in
Lung Conditions Community Forum
6 months ago
Possible over treatment with Levothyroxine
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Vizslaaddict
in
Thyroid UK
7 months ago
Oral care tip
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Martina_MP
in
PSP Association
9 months ago
1
...
97
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5666 results
British Liver Trust
4496 results
Advanced Prostate Cancer
4417 results
View top 10 communities
Sort by
Most Relevant
Newest