Hi all

[Majedsh]

My husband was newly diagnosed with stage 4 prostate cancer Gleason 9,his psa is 58 now and he will start cemo on Thursday he is 51 years old

What is the best way to tell our children, I don't want them to live the shock I'm living

Thanks

[Orange95]

We just told our kids on the day we knew about. It is easier to face this as a family. My husband was 54 at the time and kids were one daughter 27, second daughter 24 and son was 18.

[Majedsh in reply to Orange95]

ThanksMy kids ate 19,16 and 14

My daughter has her Alevel exams on May

God bless your husband

I just read your bio

He has the exact case as my husband

My husband's psa now is 58 and he's stage 4 Gleason 9

[Orange95 in reply to Majedsh]

I don’t think there is ever good time to tell this news. Our oldest told us we gonna be grandparents second time, then the other grandpa(her husband’s dad) left this world at age 52 from heart attack 2 days after announcement . Our second daughter was getting ready to defend her masters. Our son was doing high school exams. So we are all busy. Our kids helped us a lot emotionally.

[Irun]

my kids were 9, 14 and 16 . I was 49 psa 342 G9 . There is never a right time to tell them but people change once they hear “you have cancer “ so if you don’t tell them they may wonder what’s up and if you take an age feel angry that they were not told sooner it is their dad after all . I think (as far as possible ) that you tell them all together so 1) they all hear the same message 2) no one feels favouritism or is left out 3) if one has a question they all hear the response 4) they can collectively start their own support group for themselves and for dad and 5) dad only has to say this once to them as I is heartbreaking for all .

After I told my kids 2 days after diagnosis we all went to the park and played soccer as it was important (to me) that they understood at that moment I was still the same dad .

I wrote a book “dead man running” about my experiences after diagnosis. I am still here 10 years on , now 60 , maybe if your kids are old enough get them to read it , it is not always the worst news .

[Majedsh]

Thanks and God bless youThe problem is that my daughter has her A level exams on May

We already paid private tutoring which is very expensive and she's doing excellent in her exams, she want to do medicine at university

I don't want to ruin everything for her

I would love to read the book with my children

Is it available online?

[Seasid]

You should start chemo treatment only when you are deeply castrated. On which ADT is he on and when did he start his ADT injections?

[Majedsh]

He didn't start any treatment yetHe's newly diagnised

And the center told us that he should have chemotherapy with docetaxel and injection every 3 months

He will start on Thursday

We asked 9 doctors here, 3 said he should have radiation with hormone therapy

The rest Said he should have triple treatment

But he will only have chemo and the injection

[Seasid in reply to Majedsh]

He should first start with the ADT injections and when he is deeply castrated (his testosterone should be castrate level) he could start chemotherapy. In which country do you live? I hope he doesn't have spine metastasis if yes he should start with s big firmagon injections 240 mg in order to avoid flair of the testosteron and spine cord compression.

[dk73]

my parents & hubby’s parents never shared their health history and we decided to be very upfront with our kids. My hubby is 9 years in. On Christmas Day, I was diagnosed with a rare cancer. I was in the ER and took about an hour to digest it all then called the rest of the family before I was admitted. Granted, our kids are adults but so was I and my parents didn’t talk about their health issues much at all so it was a shock when they passed away and I had just seen them a week before

[Wdoug]

Prayers for your family! Definitely a family affair for support and love.

[FastingLife]

(You can do the typical "Standard of Care" and also incorporate the protocols mentioned below - Why Not?) Excuse me for interrupting but I'd like to share some information that might be helpful. A research scientist/professor named Thomas Seyfried has a protocol which involves starving cancer of it's 2 fuels; glucose & glutamine. The dysfunctional cancer cells have reverted to fermentation...they can no longer use oxygen AND they can't use ketones. Our healthy cells thrive on ketones. Seyfried is blitzing various health-related YouTube channels with interviews explaining his protocol & success stories. Guy Tenenbaum applied Seyfried's protocol (stage 4 metastatic prostate cancer) with great success (look his name up on YouTube). Pablo Kelly lived over 10 years with glioblastoma...brain tumor. Then, do a search for Dr. Makis' fenbendazole & ivermectin protocol that has many success stories. You'll also find Joe Tippens' miraculous comeback from stage 4... he heard about fenbendazole getting rid of cancer in animals and so he started taking it... it eliminated his cancer! So, there are many very hopeful things being applied RIGHT NOW that don't involve the big money monoliths of $Big Pharma & Big Health"care". If they can't make tons of money, they don't want it. I am applying a combination of the above protocols.

[NecessarilySo]

I don't have children but if I did, I would try to keep them informed. But also, it is important to keep up hope. There are advances and discoveries all the time that lead to longer survival rates. Fighting cancer is not easy but people do beat it. Hormone therapy is one way that causes prostate cancer cells to stop growing. Chemo and radiation are ways to kill cancer cells. Also the immune system fights back. There are things that provide hope.

[GardenReno]

tell everyone. I was 57 when diagnosed advanced stage 4 Gleason 9 with psa 542. The chemotherapy should work well as it did for me as you are younger. I am 4 years in now so whilst it knocks you around especially the ADT there is hope and lots of new treatments. Our children understood and we told all our friends and social group. Everyone was very supportive and we got a lot of help that has been very useful. Stay positive is the main thing and lots of exercise ( not so much during chemotherapy as effects get progressively worse until finished. Ideally your psa will be well under 1 by the end of chemo). All the best