Experiences with

Alendronic acid / Colecalciferol

Hi everyone, I haven't been on here for quite a while. I have at last got down to 1mg of pred which 6 months ago I thought it would never happen. I stumbled on 5mgs for ages but eventually I was able to keep lowering and being at 1mg after 22months from my diagnosis of Poly mialgia, I think I 've been

I am trying to work out whether or not Lansaprazole is upsetting my tummy/digestive system. I have been taking Pred fro three years now, getting down from 15mg to 4mg last year, falring and returning to 10mg now back to 4mg a year later. I started on the standard precautionary Alendronic Acid, Ad-Cal

I realised too late and am now concerned about it. I’m currently on holiday and always drink bottled water while away but I remembered that the instructions say it must be tap water. Any advice would be helpful. Thanks

Hello, I was first informed I had Osteoporosis 8 years ago after a Dexa at age 63. I was prescribed a few years of Alendronic Acid, and Adcal which I still takeI took steps to improve by taking up various activities and in 2022 started running regular 5ks. I eat healthily and enjoy lots of veg, in fact

I was diagnosed just after the start of the pandemic. It was lockdown = pandemonium. All the same it sticks in my mind that all I was told about Pred was when to take it and to reduce.. Really, they seemed most concerned about alendronic acid and how I must sit upright. Do people risk death if they

Hi all, I'm a GCA patient, having started at 60 MG in AUG 2022. I'm down to 12.5 MG today. I have felt lousy in so many respects including fatigue, vision issues, and GI problems since day 1. When the rheumy put me on Alendronic Acid a month of so ago, that was the "last straw." It made me feel

Briefly, I had PMR from 2016 - 2019. It didn’t show up on blood test and I was started on 15mg of pred. Within 48 hours I was pain free and quickly reduced to 10mg then dead slow method. After having very painful shoulders and top of arms for the last 3 months (which did not respond to painkillers

Hello again, good people. I posted a few weeks ago when newly diagnosed and have learned a lot from your advice but I think I need a bit more. I said then my GP wanted me to begin a taper from 15mg prednisolone after a month to 10mg. At 4 weeks on pred (last Thursday) I had bloods taken - ESR 8, CRP

I was hoping to get off of this medication after 1 year. I didn’t start it until a year after my 2021 Dexa scan. 2121 spine -3.2 ,fem neck -3.0, total hip -2.2 2022 Started Alendronate sodium 70 mgs weekly 2023 spine -2.9, fem neck -3.1, total hip -2.4 I wasn’t expecting a drastic change, but

Since my flair up I've now been on 15mg pred ( up from 7mg)for 3 weeks. Well, iv'e not felt this good in years. I can actually walk properly, walk with a stride and at a decent pace without feeling that my legs are bound by a resistance band. My energy levels are almost normal as some 4 years ago.

I am 67, was diagnosed with PMR 2 weeks ago after 4 weeks of symptoms (stiffness and pain in neck, arms, shoulders, couldn't raise arms above shoulders, immense tiredness etc). Initial GP contact was excellent - he identified the problem, blood tests same day, consult 2 days later to confirm diagnosis

I have osteoporosis and I took Fosamax for a while and then lost 6 teeth! I stopped taking it a while ago, but my back is giving me grief now. I am taking calcium and Vitamin D, but I need to find out whether there are any alternatives to alendronic acid.

Hi all My Dad’s GP has prescribed Alendronic Acid 70mg tablets without explaining why. My Dad is now on Adcal -D3 1x daily, 9mg Prednisolone daily and 1x weekly Alendronic Acid. Is it normal to be prescribed Alendronic Acid? Also, how far apart should this be taken from Pred? Thanks Lindsay

I started taking alendronate (70mg once a week) about 10 weeks ago. I was very dubious about it but did lots of research and ultimately decided to give it a go having read accounts from people who are housebound/ in constant pain due to their osteoporosis. Initially I seemed to be tolerating it well.

I started taking alendronate (70mg once a week) about 10 weeks ago for osteoporosis. I was very dubious about it but did lots of research and ultimately decided to give it a go having read accounts from people who are housebound/ in constant pain due to their osteoporosis. Initially I seemed to be tolerating

Hi everyone, I Got the results of my DEXA bone scan, and I'm not sure if I need to be on Alendronate. (My rheumy prescribed it to me before these results came in, just saying "since you're going to be on steroids long term you need it.") Can someone tell me if the numbers below warrant me being on

I started on Prednisone November 11 2021. The diagnosis was probable GCA. I remember writing a post on here detailing how crazy/busy my life. 101 things on the go at the same time. I received lots of replies about needing to slow down etc. At the time I had no idea just how much I would need to slow

Hi, I have been on Pred and also Alendronic Acid since diagnosis for PMR March 22 I decided against Omeprezole in favour of taking live yogart like others on this site and Rheumi agreed. And have just reduced to 3mg of pred. I saw my rheumi on Monday who was pleased with how I was doing and who is

So, I saw my new Rheuma for the 2ed time. I was prepared to explain how affull I felt (flair), and why I needed to go back on 10 mg, but I could have saved my breath. He could tell from the way I rose from the chair and walked towards him! "You are not so flying anymore?" he said. So we agreed to go

Hello Everybody, I had a DEXA scan in 2020, as far as I can see the only worrying result was the neck of femur -2.7. I have just had another DEXA scan on a different machine, and the same result was -2.9. To me, that is not a great difference, having been on steroids for 2 1/2 years. I now have been