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Aimpart XL
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Depokote
My son has had seizures (mostly grand mal) about every 3-4 days for about 12 years. He is on vimpat, Briviact, onfi and they just added Depokote with the thoughts of removing one of the others. He has been seizure free for a little over a month. The bloodwork came back okay and said to stay on all 4
My son has had seizures (mostly grand mal) about every 3-4 days for about 12 years. He is on vimpat, Briviact, onfi and they just added Depokote with the thoughts of removing one of the others. He has been seizure free for a little over a month. The bloodwork came back okay and said to stay on all 4
Comedy
in
Epilepsy Action
5 years ago
Levothyroxine, Vimpat and Briviact together?
Hi, Does anyone know if I could take Levo, Vimpat and Briviact together in the mornings? Only just began the Vimpat today and told by my new Neurologist that it's best to take Levo in the morning... Thank you for your help. Best wishes, Tina
Hi, Does anyone know if I could take Levo, Vimpat and Briviact together in the mornings? Only just began the Vimpat today and told by my new Neurologist that it's best to take Levo in the morning... Thank you for your help. Best wishes, Tina
Tinx71
in
Epilepsy Action
5 years ago
Newly diagnosed with atrial fibrillation and atrial flutter
Hi iam new to this community and newly diagnosed with both atrial fibrillation and flutter iam on Rivaroxaban and Adizem xl, recently had an angiogram and trying to come to terms with a lifetime condition that appears to be changing my complete lifestyle overnight any suggestions on how to cope would
Hi iam new to this community and newly diagnosed with both atrial fibrillation and flutter iam on Rivaroxaban and Adizem xl, recently had an angiogram and trying to come to terms with a lifetime condition that appears to be changing my complete lifestyle overnight any suggestions on how to cope would
dunebay
in
British Heart Foundation
5 years ago
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Briviact and dislocated shoulder
Hello, does anyone have experience with Briviact? My son was on Keppra, vimpat and Onfi and still having seizures and they recently took him off of keppra and onto Fycompa and he had more seizures that before and now we are going to start Briviact. Does anyone have any experience they would like to share
Hello, does anyone have experience with Briviact? My son was on Keppra, vimpat and Onfi and still having seizures and they recently took him off of keppra and onto Fycompa and he had more seizures that before and now we are going to start Briviact. Does anyone have any experience they would like to share
Comedy
in
Epilepsy Action
5 years ago
Couple of questions please :)
Firstly, does anyone know if any of the heart meds cause ringing in the ears? I’ve just started an extra one this week, Trangina XL, kind of a slow release constant GTN, am wondering if it’s that? Also, does anyone have experience of ‘complicated angioplasty’ I have 2 narrowings on the LAD, one which
Firstly, does anyone know if any of the heart meds cause ringing in the ears? I’ve just started an extra one this week, Trangina XL, kind of a slow release constant GTN, am wondering if it’s that? Also, does anyone have experience of ‘complicated angioplasty’ I have 2 narrowings on the LAD, one which
Sillyfroggy
in
British Heart Foundation
5 years ago
Long term memory gain?
I have JME for 49 years, since the age of fourteen when I 'bashed' my head. I am nearly 63. Since April 2018 I have been taking Vimpat 400 mg and Briviact 50mg I have not had any seizures, I started on Vimpat in Nov. 2017, but had about 10 seizures, between then, but it was from April 30 2018 that the
I have JME for 49 years, since the age of fourteen when I 'bashed' my head. I am nearly 63. Since April 2018 I have been taking Vimpat 400 mg and Briviact 50mg I have not had any seizures, I started on Vimpat in Nov. 2017, but had about 10 seizures, between then, but it was from April 30 2018 that the
Adlon57
in
Epilepsy Action
5 years ago
Fycompa
Hello, I have read a lot of negative side effects and terrifying reviews about Fycompa and just wondered if anyone would recommend this medication. My son is 24, high functioning autism with uncontrolled seizures for about 12 years. The doctors are recommending a RNS and I am still a little hesistamt
Hello, I have read a lot of negative side effects and terrifying reviews about Fycompa and just wondered if anyone would recommend this medication. My son is 24, high functioning autism with uncontrolled seizures for about 12 years. The doctors are recommending a RNS and I am still a little hesistamt
Comedy
in
Epilepsy Action
5 years ago
The World Outside
As well as having epilepsy, I cannot read body language, and also suffer from dyslexia. If there is a link between these three then I would like to know more, because as it stands it makes interaction with the world outside very difficult. All three of these are invisible disabilities, and as time passes
As well as having epilepsy, I cannot read body language, and also suffer from dyslexia. If there is a link between these three then I would like to know more, because as it stands it makes interaction with the world outside very difficult. All three of these are invisible disabilities, and as time passes
chris1962
in
Epilepsy Action
5 years ago
Vimpat
Just need to know has anyone had any issues with Vimpat. Moods temper etc.
Just need to know has anyone had any issues with Vimpat. Moods temper etc.
trinity68
in
Epilepsy Action
5 years ago
Preliminary report on B1 HDT trial -
Hi all, A full detailed report will be posted if and when I achieve a month of improvement. I've finally stabilized with sinemet cr 5x 200 and 10mg requip xl after 2 yr of drug adjustments and changes. I'm 10 yr post dx and would describe my symptoms as severe and poorly controlled. I'm rigidity
Hi all, A full detailed report will be posted if and when I achieve a month of improvement. I've finally stabilized with sinemet cr 5x 200 and 10mg requip xl after 2 yr of drug adjustments and changes. I'm 10 yr post dx and would describe my symptoms as severe and poorly controlled. I'm rigidity
Niggs
in
Cure Parkinson's
5 years ago
End of ropinerole
Just thought I would mention this see a copy of the article below On Dec. 19 the U.S. Food and Drug Administration announced the forthcoming discontinuation of all dosage strengths of ropinirole hydrochloride (Requip) tablets as well as the 2-mg extended release (Requip XL) tablets. The anticipated final
Just thought I would mention this see a copy of the article below On Dec. 19 the U.S. Food and Drug Administration announced the forthcoming discontinuation of all dosage strengths of ropinirole hydrochloride (Requip) tablets as well as the 2-mg extended release (Requip XL) tablets. The anticipated final
Tscrutton
in
Restless Legs Syndrome
5 years ago
Caregiver, question help is appreciated!
Hi, my name is kelly and I am a caregiver of my 28 year old boyfriend who currently has stage 4 melanoma. I am apart of the caregiver group for that as well. My question for ANYONE is if I can be apart of this group and I ask because my boyfriend has NON epileptic seizures due to a brain tumor that was
Hi, my name is kelly and I am a caregiver of my 28 year old boyfriend who currently has stage 4 melanoma. I am apart of the caregiver group for that as well. My question for ANYONE is if I can be apart of this group and I ask because my boyfriend has NON epileptic seizures due to a brain tumor that was
kellyOd
in
Epilepsy Action
5 years ago
BRIVIACT and Kidney Stones?
April 2018 I started taking 50 mg Briviact with 400 Vimpat, I have JME, for 49 years, I was diagnosed with pancreatitis in September 2018, bringing up blood in flem, pain in back, temperature, [scan nothing except kidney stone, no gall stones, had been off alcohol for 3 years anyway?] out of hospital
April 2018 I started taking 50 mg Briviact with 400 Vimpat, I have JME, for 49 years, I was diagnosed with pancreatitis in September 2018, bringing up blood in flem, pain in back, temperature, [scan nothing except kidney stone, no gall stones, had been off alcohol for 3 years anyway?] out of hospital
Adlon57
in
Epilepsy Action
5 years ago
34 yrs,7 meds and a surgery later: Only Marijuana controls my seizures. Less side effects, less money, and greatly improved quality of life.
It took some time to determine, but the fact of the matter is that Marijuana is the only medication that controls my seizures. I regret not trying it until after I graduated high school. Phenabarbital, Dilantin, Trileptal, Keppra, Vimpat, Fycompa, Lamictal, Surrgery: I SWEAR TO YOU, FROM THE BOTTOM
It took some time to determine, but the fact of the matter is that Marijuana is the only medication that controls my seizures. I regret not trying it until after I graduated high school. Phenabarbital, Dilantin, Trileptal, Keppra, Vimpat, Fycompa, Lamictal, Surrgery: I SWEAR TO YOU, FROM THE BOTTOM
superflyerfan
in
Epilepsy Society
5 years ago
Lamictal and electric shock nighttime 'seizures'
I have had JME for nearly fifty years, but I was on Keppra, then Epilim, then Fycompa, all with Lamictal from circa 2012 that caused the question? I was taken off these medications, BUT it was when I was on the Lamictal solely when I would have these attacks, I would still be having my Grand mal attacks
I have had JME for nearly fifty years, but I was on Keppra, then Epilim, then Fycompa, all with Lamictal from circa 2012 that caused the question? I was taken off these medications, BUT it was when I was on the Lamictal solely when I would have these attacks, I would still be having my Grand mal attacks
Adlon57
in
Epilepsy Action
5 years ago
I’m sick of being a test subject to Epilepsy and neuropathy.
I’m tired of taking 8 pills in the morning and night time. I’m sick of Drs and pharmacy’s telling me my Vimpat (AED) that’s finally working is now a class narcotic and I can’t get it out of state. I have to get a local neurologist because my epilepsy specialist in Springfield,MO. Couldn’t send my prescription
I’m tired of taking 8 pills in the morning and night time. I’m sick of Drs and pharmacy’s telling me my Vimpat (AED) that’s finally working is now a class narcotic and I can’t get it out of state. I have to get a local neurologist because my epilepsy specialist in Springfield,MO. Couldn’t send my prescription
aharrod65
in
Epilepsy Research Institute
6 years ago
Problems getting Vimpat filled in different states, now controlled?
Who else is having problems getting their AED Vimpat? I’m going to be day 1 without tomorrow because? Insurance doesn’t cover me out of town then Vimpat was made a controlled drug and Id have to go to an ER to try and get a “written script in CA, my Mo written script where I live is worthless? Now the
Who else is having problems getting their AED Vimpat? I’m going to be day 1 without tomorrow because? Insurance doesn’t cover me out of town then Vimpat was made a controlled drug and Id have to go to an ER to try and get a “written script in CA, my Mo written script where I live is worthless? Now the
aharrod65
in
Epilepsy Research Institute
6 years ago
Sugar and Fycompa
In my absolute boredom, I have FME and PIP? In the immense generosity of the government, I have been supplied with PIP which means I lose approximately £75 per week in my 'benefit' with absolutely nothing to do, have been registered as not been able to work at all since December 2013, I decided to use
In my absolute boredom, I have FME and PIP? In the immense generosity of the government, I have been supplied with PIP which means I lose approximately £75 per week in my 'benefit' with absolutely nothing to do, have been registered as not been able to work at all since December 2013, I decided to use
Adlon57
in
Epilepsy Action
6 years ago
Bioprolol
Hi, l have been following many of the post on the forum and gleaning much information which is helping me cope with Micro-Vascular Angina which I have been struggling with since October 2016. It was very frightening initially with 5 admission to hospital in the first 8 months. I am now at the stage were
Hi, l have been following many of the post on the forum and gleaning much information which is helping me cope with Micro-Vascular Angina which I have been struggling with since October 2016. It was very frightening initially with 5 admission to hospital in the first 8 months. I am now at the stage were
achillislander
in
British Heart Foundation
6 years ago
Sharing
Officially on the second month, second bottle of mekinist. Still almost no side effects. The rash comes and goes. Never amounts to anything thank god. No fevers, had a few nights when he first started where he was close to 100.4 but never reached it. Seems like he is adjusting well to the combo. Pain
Officially on the second month, second bottle of mekinist. Still almost no side effects. The rash comes and goes. Never amounts to anything thank god. No fevers, had a few nights when he first started where he was close to 100.4 but never reached it. Seems like he is adjusting well to the combo. Pain
kellyOd
in
Melanoma Caregivers
6 years ago
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