Depokote: My son has had seizures (mostly... - Epilepsy Action

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Depokote

Comedy
Comedy
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My son has had seizures (mostly grand mal) about every 3-4 days for about 12 years. He is on vimpat, Briviact, onfi and they just added Depokote with the thoughts of removing one of the others. He has been seizure free for a little over a month. The bloodwork came back okay and said to stay on all 4 meds. He is definately heavily medicated but we were looking at seizure surgery where there would be neurological loss so I am feeling somewhat hopeful. He is happy and no more tired than always. Has anyone had this type of success with Depokote and can you please share any experience good or bad with this med. Any replies are greatly appreciated! Maureen

Maureen

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EpilepsyAction1
EpilepsyAction1Administrator

Hi

I hope you hear from others on this platform, as sharing information and experiences can be a good idea. If you don’t hear from others in a similar situation, you may wish to try our other services.

There is our forum.epilepsy.org.uk/, facebook.com/epilepsyaction and twitter twitter.com/epilepsyaction.

Regards

Diane

Epilepsy Action Helpline Team

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edwin_stella

I was diagnosed with temporal lobe epilepsy when I was 12. I'm now 38. Anticonvulsant medications kept my seizures under control for some years but I still experience symptoms of it often until I contact doctor lawson and he assured me of permanent solution to my long-standing problem. I was well aware that many were not so fortunate. I knew I'm in the company of millions of epilepsy patients, though, who daily contend with the side effects of these medications. I was frequently apologizing to family, friends, and students for forgetting words and trains of thought . This “brain fog,” as I’ve come to call it over the years, is an obvious biological response to chemicals meant to slow neural activity. One particular aspect of my life that the brain fog has affected has been my creativity. Along with many people with epilepsy who are drawn to the arts, I’ve always wanted to be a creative writer. Some neurologists have said that those with temporal lobe epilepsy in particular have a “disorder” called a hypergraphia, a nearly uncontrollable compulsion to write. Whether I have a disorder or not, I know only that I feel a need, a calling, to write and the side effects of my medications have inhibited my ability to find the right words. But then, about six months ago, I came across an unconventional creative writing medium called blackout poetry. You take a page of a newspaper or a book and search for your own message within the words on the page. I contacted (dr.lawson), and used his herbal medicine What a relief ! So I could think any other thing only to tell people who are suffering from this deadly disease Seizure that there is a cure to it. Do not be blinded by Ignorance, There is a cure to Seizure as I personally experienced it.

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JDQuinn75

Depakote worked well for me when I was taking it with tegretol. But then after awhile I had to switch to another medication to replace that do to it wasn’t doing what I needed it to. I was switched to Keppra about 12 years ago. I’ve not had any problems with the keppra since I’ve been on that. I take that twice a day, 750 mg along with the tegretol.

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Comedy
Comedy
in reply to JDQuinn75

Do you mind me asking why you went off of Depokote? We were finished all of the testing for seizure surgery and now on 4 meds but for the first time ever since Depokote was added and 45 days seizure free. It is amazing but my son is pretty heavily medicated. The surgery would have caused neurological loss. I feel like the Depokote has been great. Did you have problems with it? I hear people refer to it as a nasty medication. I am not seeing any bad side effects so do you mind sharing any pros or cons. Thanks so much for replying.

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JDQuinn75

Things started to change with me so my neurologist decided to switch me to a different med. My mood and a couple of other things.

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