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Aicardi-goutieres syndrome (AGS)
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Started on depixol 40mg depot inj fortnightly and now have severe RLS
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Hi everyone I'm new here, hope everyone is doing OK. I have just been started on Depixol depot inj 40mg fortnightly. Previously I was on clopixol and previous to that was on depixol bylut don't remember the dose. While I was on clopixol I didn't have and RLS symptoms but the first time and now again
Magpie2016
in
Restless Legs Syndrome
3 years ago
Lyrica restart?
Lyrica worked fabulously for my PLMD even at 50mg. Unfortunately I increased the dose to 300mg. over time to deal with insomnia, which caused daytime sedation and depression. I am now slowly reducing the Lyrica, hoping maybe the lower dose will work for my PLMD and not cause those side effects. As
Lyrica worked fabulously for my PLMD even at 50mg. Unfortunately I increased the dose to 300mg. over time to deal with insomnia, which caused daytime sedation and depression. I am now slowly reducing the Lyrica, hoping maybe the lower dose will work for my PLMD and not cause those side effects. As
wantokporo
in
Restless Legs Syndrome
3 years ago
Dopamine agonists and their aftermath - A Survey
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Parminter
in
Restless Legs Syndrome
3 years ago
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Neurologist
I had been to the hospital to a neurologist. I was given ropinirole after gabapentin stopped working for me. I read that rls is caused by lack of dopamine in the brain.
I had been to the hospital to a neurologist. I was given ropinirole after gabapentin stopped working for me. I read that rls is caused by lack of dopamine in the brain.
Rosemarydoherty
in
Restless Legs Syndrome
3 years ago
Anaesthetics and Pred
Consultant was unable to complete a hysteroscopy this morning as he and I agreed it was causing too much pain. I'm now to have it done under general anaesthetic and wonder about taking pred. on that day. I've read back over some posts but am not clear whether one takes one's own medication into hospital
Consultant was unable to complete a hysteroscopy this morning as he and I agreed it was causing too much pain. I'm now to have it done under general anaesthetic and wonder about taking pred. on that day. I've read back over some posts but am not clear whether one takes one's own medication into hospital
maria40
in
PMRGCAuk
3 years ago
Plan B...donor eggs 😢
So it looks like Donor Eggs are our only option. Our 4th cycle went so well initially (16 eggs, 13 mature and 9 embryos) and we were so hopeful. IVF is so cruel. All but 4 embryos stopped growing by day 5. But we still had hope! Then 3 of our blastocysts stopped growing at day 6 before they reached
So it looks like Donor Eggs are our only option. Our 4th cycle went so well initially (16 eggs, 13 mature and 9 embryos) and we were so hopeful. IVF is so cruel. All but 4 embryos stopped growing by day 5. But we still had hope! Then 3 of our blastocysts stopped growing at day 6 before they reached
JenRoy
in
Fertility Network UK
3 years ago
RLS and Azelastine HCL nose spray
Suddenly I started getting RLS, even on low dose Methadone. I am thinking it is the Azelastine as it is an antihistamine, but I cannot find any literature on it. The only other thing that changed was a slight reduction in Lithium. I don't have any discontinuation symptoms, so I don't think it is that
Suddenly I started getting RLS, even on low dose Methadone. I am thinking it is the Azelastine as it is an antihistamine, but I cannot find any literature on it. The only other thing that changed was a slight reduction in Lithium. I don't have any discontinuation symptoms, so I don't think it is that
tinabuglaw
in
Restless Legs Syndrome
3 years ago
1:10 chance of Downs Syndrome
Edit: I just wanted to update with my nipt results, they have come back as low risk for Downs Syndrome. It's such a relief to finally have the results as the waiting was very stressful! Thank you to everyone who took the time to respond, reassure me and share experiences, I really appreciate it! Hi,
Edit: I just wanted to update with my nipt results, they have come back as low risk for Downs Syndrome. It's such a relief to finally have the results as the waiting was very stressful! Thank you to everyone who took the time to respond, reassure me and share experiences, I really appreciate it! Hi,
almostfamous
in
Pregnancy and Parenting Support
3 years ago
When does the worry end?!
Edit: Hi all, I've had my results from the nipt test and they came back as low risk for Downs Syndrome. The waiting for the results was the worst part! Still feeling a little nervous for my 20 week scan but hopefully I can get back to enjoying my pregnancy now. Thank you so much to everyone who responded
Edit: Hi all, I've had my results from the nipt test and they came back as low risk for Downs Syndrome. The waiting for the results was the worst part! Still feeling a little nervous for my 20 week scan but hopefully I can get back to enjoying my pregnancy now. Thank you so much to everyone who responded
almostfamous
in
Fertility Network UK
3 years ago
Does anyone take Celebrex ?
Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathiropine, to mention just a few for the Lupus and Sjogren's. I now have Osteoarthritis in most joints and my consultant has prescribed CELEBREX. I am wary of taking more meds but I am really struggling with my joints stiffness
Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathiropine, to mention just a few for the Lupus and Sjogren's. I now have Osteoarthritis in most joints and my consultant has prescribed CELEBREX. I am wary of taking more meds but I am really struggling with my joints stiffness
Mrsdoozer
in
LUPUS UK
3 years ago
Husband giving up!!
Hi all, my husband is on week 8 of ventilator,3 of which are on trachy. Ventilation.He has a lot of muscle wastage and can barely move atm.He is fully off sedation and was doing well but has now started refusing physio and even the doctor wanting to examine him!! He mouthed to me the other day that
Hi all, my husband is on week 8 of ventilator,3 of which are on trachy. Ventilation.He has a lot of muscle wastage and can barely move atm.He is fully off sedation and was doing well but has now started refusing physio and even the doctor wanting to examine him!! He mouthed to me the other day that
Popsicle1
in
ICUsteps
3 years ago
Lupus and episcleritis or scleritis?
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Andfiona
in
LUPUS UK
3 years ago
TTC: Letrozole, NAD, AMA, low AMH/DOR (no IVF), Cambridge IVF
I am interested in trying medications similar to Letrozole and/or NAD to help with my TTC journey as we have been trying for 16mo. I don't have PCOS or problems ovulating on my own but I am considered AMA (advanced maternal age) and have low AMH/DOR where egg quality could be an issue -- I would like
I am interested in trying medications similar to Letrozole and/or NAD to help with my TTC journey as we have been trying for 16mo. I don't have PCOS or problems ovulating on my own but I am considered AMA (advanced maternal age) and have low AMH/DOR where egg quality could be an issue -- I would like
_HMP
in
Fertility Network UK
3 years ago
Enlarged thytoid,?Waiting on dr apt.
This popped up a week ago.trying to get into adr is awful. Nurse said I needed a sonogram. Thyroid issues run in the family.. HELP does this go away ,
This popped up a week ago.trying to get into adr is awful. Nurse said I needed a sonogram. Thyroid issues run in the family.. HELP does this go away ,
Tabbygirl22
in
Thyroid UK
3 years ago
more about sleep
I am also taking ginger root and ginkgo bilboa (these for tinnitus) so maybe that has helped along with the gaba. Anyway the restless legs is about gone after years so I will keep on taking those 3 things!
I am also taking ginger root and ginkgo bilboa (these for tinnitus) so maybe that has helped along with the gaba. Anyway the restless legs is about gone after years so I will keep on taking those 3 things!
dlr222
in
Restless Legs Syndrome
3 years ago
RLS Hot Feet / Cramps
Morning iv just joined this group I have server RLS am on Ropinirole 21mg I take through the day yes they a lot some people say I'm on a to higher but it works for me untill I try to go to sleep I have Insomnia so never sleep ( my feet are so hot all the time does anyone else have this ) I have a fan
Morning iv just joined this group I have server RLS am on Ropinirole 21mg I take through the day yes they a lot some people say I'm on a to higher but it works for me untill I try to go to sleep I have Insomnia so never sleep ( my feet are so hot all the time does anyone else have this ) I have a fan
Xhanthos
in
Restless Legs Syndrome
3 years ago
Does RLS ever go away? One week off patch and no issues
I was diagnosed with RLS about 2 years ago and I’ve been on 1mg Neupro since then, after trying another med that didn’t help. Recently I ran out of patches and had a struggle reaching my doctor for a new prescription and then another struggle getting a coupon for a rebate. Long story short, I haven’
I was diagnosed with RLS about 2 years ago and I’ve been on 1mg Neupro since then, after trying another med that didn’t help. Recently I ran out of patches and had a struggle reaching my doctor for a new prescription and then another struggle getting a coupon for a rebate. Long story short, I haven’
Discopage
in
Restless Legs Syndrome
3 years ago
Neupro vs Pregabalin
Tomorrow I take my last .25 tab of Ropinirole. My neurologist is switching me from Gabapentin to Pegabalin which I welcome. I had a welness visit with my GP yesterday and she has messaged me about Neupro. I do not want to go through anything like coming off Ropinirole ever again. My question is which
Tomorrow I take my last .25 tab of Ropinirole. My neurologist is switching me from Gabapentin to Pegabalin which I welcome. I had a welness visit with my GP yesterday and she has messaged me about Neupro. I do not want to go through anything like coming off Ropinirole ever again. My question is which
B534967
in
Restless Legs Syndrome
3 years ago
Fibromyalgia vs Chronic Fatigue
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Fizzwizz35
in
Fibromyalgia Action UK
3 years ago
Antidepressants
I have been diagnosed with chronic fatigue/fibromyalgia. Can someone recommend an antidepressant that won’t affect my restless legs but will help with the chronic fatigue/pain and could you say whether this is a sedating antidepressant or an energizing antidepressant. They want to put me on amitriptyline
I have been diagnosed with chronic fatigue/fibromyalgia. Can someone recommend an antidepressant that won’t affect my restless legs but will help with the chronic fatigue/pain and could you say whether this is a sedating antidepressant or an energizing antidepressant. They want to put me on amitriptyline
Mum007
in
Restless Legs Syndrome
3 years ago
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