Experiences with

Adrenomyeloneuropathy

Concerning my brother in law, he’s got Adrenomyeloneuropathy not multiple sclerosis. It’s another form of neurological illness as well. Anyone familiar with it or any treatments for it?

First I've read about Mito-Q helping Adrenomyeloneuropathy. Doesn't surprise me. I've read a lot of good things about Mito-Q

Sob-AM2 delivers a more potent and effective therapy for the most common type of ALD – adrenomyeloneuropathy (AMN) – than the original drug sobetirome. Sob-AM2 is a chemical compound created from sobetirome.

I have 2 other names of AMN. It is Adrenomyelopathy and Adrenomyelodystrophy. Can anyone search for other names of AMN that I do not know?

https://adrenoleukodystrophynews.com/2019/06/11/combo-of-antioxidants-a-potential-therapy-for-adrenomyeloneuropathy-trial-suggests/ Hello, everyone, today we saw a new amn trial, and it has been phase 2 trial.

Approximately 40-45 % of males and 50-65% of female carriers with X-linked adrenoleukodystrophy develop the adult-onset form called adrenomyeloneuropathy (AMN).

Pyramidal signs, sensory loss: acquired myelopathies; genetic myelopathies [adrenomyeloneuropathy; hereditary spastic paraparesis (HSP)]; Friedrich’s ataxia (FA); MS; NS. Sensory loss, hyporeflexia: AR ataxias; SPN and SG (“sensory ataxia”); GA; MF; AVED; NS.

Scientists have grown a miniature brain in a dish with a spinal cord and muscles attached, an advance that promises to accelerate the study of conditions such as motor neurone disease (and I can only assume Adrenomyeloneuropathy). Pack it all up, boys and girls. We are cured.

https://www.diseasemaps.org/leukodystrophy/adrenomyeloneuropathy/map/ What say, folks? Shall we all register and plot ourselves around the world?

Does everyone with the adrenal form of adrenomyeloneuropathy take DHEA? If so please share your experiences. If not, and you’d like me to elaborate on why it’s absolutely essential, please let me know,

Wolfgang Köhler (Germany) Leg stiffness and walking disabilities are leading symptoms in patients with Adrenomyeloneuropathy (AMN). The reasons for this spasticity are spinal cord long nerve fiber and myelin damage.

Here is one to cheer everyone up. As if we didn't have enough to worry about. https://www.researchgate.net/publication/281732912_Severe_congestive_heart_failure_caused_by_adrenomyeloneuropathy_and_hyperthyroidism

From the AMN RareShare Community: We are proud to invite you for the upcoming podcast session discussing: “Living with Adrenomyeloneuropathy – A Clinical & Research Perspective” featuring Dr Paul Orchard, MD and Dr William Rizzo, MD On June 14, 2017 at 10:00 AM EDT The 45 minute segment will feature

Join the discussion moderated by #ALD and #AMN patient advocate Justin D'Agostino as men talk about important issues they confront with adrenomyeloneuropathy. Here's the link to the event to register: https://www.facebook.com/events/1256042984503457/

I have recently been diagnosed with Adrenomyeloneuropathy. I am 35, have spasticity, numbness in both feet, pins and needles, and I am so tired. Yesterday I spent the entire day reading through the posts on this site.

Magic Mushrooms do nothing for Adrenomyeloneuropathy. There is an African hallucinogen, Iboga, touted as a cure-all as well. Discuss.

In the second form, adrenomyeloneuropathy, symptoms appear between 20 and 30 years. Patients have stiffness and spasticity in the legs, and slowly progresses to leave patients unable wheelchair.

This is very interesting. I know a lot of us supplement homones, but have a good read of this. http://jnnp.bmj.com/content/74/6/822.full

my brother-inlaw has Adrenomyeloneuropathy and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband

Hi, I have a rare disease Adrenomyeloneuropathy and I suffer with bad muscle spasms and neuropathic pain, I've tried loads of medication but they just make me feel like a zombie!