Search
Search
About
Log in
Join
Experiences with
Adrenomyeloneuropathy
Posts
Communities
21 public posts
Filter results
My brother in law
Concerning my brother in law, he’s got
Adrenomyeloneuropathy
not multiple sclerosis. It’s another form of neurological illness as well. Anyone familiar with it or any treatments for it?
Concerning my brother in law, he’s got
Adrenomyeloneuropathy
not multiple sclerosis. It’s another form of neurological illness as well. Anyone familiar with it or any treatments for it?
Luna-blade
in
My MSAA Community
MitiQ lessens axonal degeneration and improves locomotion.
First I've read about Mito-Q helping
Adrenomyeloneuropathy
. Doesn't surprise me. I've read a lot of good things about Mito-Q
First I've read about Mito-Q helping
Adrenomyeloneuropathy
. Doesn't surprise me. I've read a lot of good things about Mito-Q
monkeybus
in
AMN EASIER
We are cured, again (again)
Sob-AM2 delivers a more potent and effective therapy for the most common type of ALD –
adrenomyeloneuropathy
(AMN) – than the original drug sobetirome. Sob-AM2 is a chemical compound created from sobetirome.
Sob-AM2 delivers a more potent and effective therapy for the most common type of ALD –
adrenomyeloneuropathy
(AMN) – than the original drug sobetirome. Sob-AM2 is a chemical compound created from sobetirome.
monkeybus
in
AMN EASIER
Want to take advantage of all our features? Just log in!
Log in
or
Join
What are the other names of Adrenomyeloneuropathy?
I have 2 other names of AMN. It is Adrenomyelopathy and Adrenomyelodystrophy. Can anyone search for other names of AMN that I do not know?
I have 2 other names of AMN. It is Adrenomyelopathy and Adrenomyelodystrophy. Can anyone search for other names of AMN that I do not know?
artortega78
in
AMN EASIER
Hello, everyone,
https://adrenoleukodystrophynews.com/2019/06/11/combo-of-antioxidants-a-potential-therapy-for-
adrenomyeloneuropathy
-trial-suggests/ Hello, everyone, today we saw a new amn trial, and it has been phase 2 trial.
https://adrenoleukodystrophynews.com/2019/06/11/combo-of-antioxidants-a-potential-therapy-for-
adrenomyeloneuropathy
-trial-suggests/ Hello, everyone, today we saw a new amn trial, and it has been phase 2 trial.
jayxie
in
AMN EASIER
Survey-based Natural History Study for Men and Women with AMN
Approximately 40-45 % of males and 50-65% of female carriers with X-linked adrenoleukodystrophy develop the adult-onset form called
adrenomyeloneuropathy
(AMN).
Approximately 40-45 % of males and 50-65% of female carriers with X-linked adrenoleukodystrophy develop the adult-onset form called
adrenomyeloneuropathy
(AMN).
SongStream
in
AMN EASIER
Possible causes of Ataxia
Pyramidal signs, sensory loss: acquired myelopathies; genetic myelopathies [
adrenomyeloneuropathy
; hereditary spastic paraparesis (HSP)]; Friedrich’s ataxia (FA); MS; NS. Sensory loss, hyporeflexia: AR ataxias; SPN and SG (“sensory ataxia”); GA; MF; AVED; NS.
Pyramidal signs, sensory loss: acquired myelopathies; genetic myelopathies [
adrenomyeloneuropathy
; hereditary spastic paraparesis (HSP)]; Friedrich’s ataxia (FA); MS; NS. Sensory loss, hyporeflexia: AR ataxias; SPN and SG (“sensory ataxia”); GA; MF; AVED; NS.
wobblybee
in
Ataxia UK
An artificial brain
Scientists have grown a miniature brain in a dish with a spinal cord and muscles attached, an advance that promises to accelerate the study of conditions such as motor neurone disease (and I can only assume
Adrenomyeloneuropathy
). Pack it all up, boys and girls. We are cured.
Scientists have grown a miniature brain in a dish with a spinal cord and muscles attached, an advance that promises to accelerate the study of conditions such as motor neurone disease (and I can only assume
Adrenomyeloneuropathy
). Pack it all up, boys and girls. We are cured.
monkeybus
in
AMN EASIER
Disease Maps
https://www.diseasemaps.org/leukodystrophy/
adrenomyeloneuropathy
/map/ What say, folks? Shall we all register and plot ourselves around the world?
https://www.diseasemaps.org/leukodystrophy/
adrenomyeloneuropathy
/map/ What say, folks? Shall we all register and plot ourselves around the world?
monkeybus
in
AMN EASIER
DHEA
Does everyone with the adrenal form of
adrenomyeloneuropathy
take DHEA? If so please share your experiences. If not, and you’d like me to elaborate on why it’s absolutely essential, please let me know,
Does everyone with the adrenal form of
adrenomyeloneuropathy
take DHEA? If so please share your experiences. If not, and you’d like me to elaborate on why it’s absolutely essential, please let me know,
bluejadedwho
in
AMN EASIER
4-AP improves motor function in patients with AMN
Wolfgang Köhler (Germany) Leg stiffness and walking disabilities are leading symptoms in patients with
Adrenomyeloneuropathy
(AMN). The reasons for this spasticity are spinal cord long nerve fiber and myelin damage.
Wolfgang Köhler (Germany) Leg stiffness and walking disabilities are leading symptoms in patients with
Adrenomyeloneuropathy
(AMN). The reasons for this spasticity are spinal cord long nerve fiber and myelin damage.
monkeybus
in
AMN EASIER
Severe congestive heart failure caused by adrenomyeloneuropathy and hyperthyroidism
Here is one to cheer everyone up. As if we didn't have enough to worry about. https://www.researchgate.net/publication/281732912_Severe_congestive_heart_failure_caused_by_adrenomyeloneuropathy_and_hyperthyroidism
Here is one to cheer everyone up. As if we didn't have enough to worry about. https://www.researchgate.net/publication/281732912_Severe_congestive_heart_failure_caused_by_adrenomyeloneuropathy_and_hyperthyroidism
monkeybus
in
AMN EASIER
Podcast Session: "Living with AMN – A Clinical & Research Perspective”
From the AMN RareShare Community: We are proud to invite you for the upcoming podcast session discussing: “Living with
Adrenomyeloneuropathy
– A Clinical & Research Perspective” featuring Dr Paul Orchard, MD and Dr William Rizzo, MD On June 14, 2017 at 10:00 AM EDT The 45 minute segment will feature
From the AMN RareShare Community: We are proud to invite you for the upcoming podcast session discussing: “Living with
Adrenomyeloneuropathy
– A Clinical & Research Perspective” featuring Dr Paul Orchard, MD and Dr William Rizzo, MD On June 14, 2017 at 10:00 AM EDT The 45 minute segment will feature
SongStream
in
AMN EASIER
ALD Connect's Breakout Session for Men with AMN
Join the discussion moderated by #ALD and #AMN patient advocate Justin D'Agostino as men talk about important issues they confront with
adrenomyeloneuropathy
. Here's the link to the event to register: https://www.facebook.com/events/1256042984503457/
Join the discussion moderated by #ALD and #AMN patient advocate Justin D'Agostino as men talk about important issues they confront with
adrenomyeloneuropathy
. Here's the link to the event to register: https://www.facebook.com/events/1256042984503457/
bsc78
in
AMN EASIER
Newly diagnosed
I have recently been diagnosed with
Adrenomyeloneuropathy
. I am 35, have spasticity, numbness in both feet, pins and needles, and I am so tired. Yesterday I spent the entire day reading through the posts on this site.
I have recently been diagnosed with
Adrenomyeloneuropathy
. I am 35, have spasticity, numbness in both feet, pins and needles, and I am so tired. Yesterday I spent the entire day reading through the posts on this site.
russianbob
in
AMN EASIER
Ayahuasca
Magic Mushrooms do nothing for
Adrenomyeloneuropathy
. There is an African hallucinogen, Iboga, touted as a cure-all as well. Discuss.
Magic Mushrooms do nothing for
Adrenomyeloneuropathy
. There is an African hallucinogen, Iboga, touted as a cure-all as well. Discuss.
monkeybus
in
AMN EASIER
Another drug
In the second form,
adrenomyeloneuropathy
, symptoms appear between 20 and 30 years. Patients have stiffness and spasticity in the legs, and slowly progresses to leave patients unable wheelchair.
In the second form,
adrenomyeloneuropathy
, symptoms appear between 20 and 30 years. Patients have stiffness and spasticity in the legs, and slowly progresses to leave patients unable wheelchair.
monkeybus
in
AMN EASIER
Clinical and electrophysiological improvement of adrenomyeloneuropathy with steroid treatment
This is very interesting. I know a lot of us supplement homones, but have a good read of this. http://jnnp.bmj.com/content/74/6/822.full
This is very interesting. I know a lot of us supplement homones, but have a good read of this. http://jnnp.bmj.com/content/74/6/822.full
monkeybus
in
AMN EASIER
Adrenomyeloneuropathy - does anyone have any info of specialists in the north west of the uk??
my brother-inlaw has
Adrenomyeloneuropathy
and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
my brother-inlaw has
Adrenomyeloneuropathy
and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
vicarl
in
AMN EASIER
Neuropathic Pain
Hi, I have a rare disease
Adrenomyeloneuropathy
and I suffer with bad muscle spasms and neuropathic pain, I've tried loads of medication but they just make me feel like a zombie!
Hi, I have a rare disease
Adrenomyeloneuropathy
and I suffer with bad muscle spasms and neuropathic pain, I've tried loads of medication but they just make me feel like a zombie!
StevenSims
in
Pain Concern
1
2
Next page
Filter results
Clear filters
Posted in
All communities
AMN EASIER
17 results
Ataxia UK
1 result
My MSAA Community
1 result
View top 10 communities
Sort by
Most Relevant
Most Positive
New
What's this?
Newest