Where is everyone located?: As I was laying in... - AMN EASIER

AMN EASIER

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Where is everyone located?

bluejadedwho profile image
53 Replies

As I was laying in bed last night, I was thinking about throughout all of the different countries in the world, where are most people with adrenomyeloneuropathy located. It seems to me, that the majority of people on this message board are from North America, or Europe. That’s not to say that this is the whole population that congregates on this message board, but it feels like you don’t see or hear too many in Africa for example or China.

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bluejadedwho profile image
bluejadedwho
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53 Replies
jolocny profile image
jolocnyVolunteer

Oswego, NY USA

julie_ profile image
julie_

New York

Casabona profile image
Casabona

Brisbane, Australia

DennyB profile image
DennyB

New Plymouth New Zealand

Kranal profile image
Kranal

Near GlasgowKranal

StevenSims profile image
StevenSims

South Wales UK

tieaknot profile image
tieaknot

Maryland, USA

Brian369 profile image
Brian369

Canberra Australia

Abcd1Kat profile image
Abcd1Kat

Boston, MA

Hillary profile image
Hillary

South Wales UK

florida59 profile image
florida59

Ireland

easygoin1 profile image
easygoin1

Alberta, Canada

3WheelWonder profile image
3WheelWonder

New Smyrna beach, Fl

kevinmom profile image
kevinmom

Ohio, United States

nan17 profile image
nan17

Toronto, Canada

Lead-foot profile image
Lead-foot

Hampshire UK

KeithS profile image
KeithS

Sunderland, North East England

Cherie profile image
Cherie

Dorset UK

monkeybus profile image
monkeybus

Seems we are all in The West. Doesn't surprise me.

Language barriers would preclude anyone from China and Japan, where I know for a fact there are some excellent AMN groups, they share information amongst themselves (spoiler, nothing new to learn there, Baclofen, Clonazepam, Tizanidine, and the like).

Africa? I have lived there (briefly), and if it's hard for patients in the UK/US to access/pay for treatment, it'd be nigh on impossible there. One of the main things that people would ask me for over there (apart from money) was Aspirin. Forget about genetic tests and MRI's. Throw in Internet access into the bargain. Alls gots to be paid for.

BTW, I am from London.

Cambridge_Chris profile image
Cambridge_Chris

Cambridge, UK

spalding profile image
spalding

South London

Rebel64 profile image
Rebel64

Near London, Ontario, Canada

DennyB profile image
DennyB

New Plymouth New Zealand

snowdrops33 profile image
snowdrops33

REDCAR, NORTH YORKSHIRE, ENGLAND

Magnolia209 profile image
Magnolia209

Ohio, USA

Aaron98 profile image
Aaron98

Tacoma, Washington (near Seattle), United States.

deengo profile image
deengo

Originally from Seattle and in the Philippines now. I dont know of any adults here with AMN but I'm sure there is. I'm friends with 2 people here who's boys have ALD, one of them has passed away now.

Snoopy41213 profile image
Snoopy41213

New Jersey, USA

Brent37 profile image
Brent37

Originally Baltimore Maryland now live in Lewis, De

azimuthk profile image
azimuthk

Radom, Poland

angelicahca_ profile image
angelicahca_

Curitiba, Brazil

tbird profile image
tbird

Kansas, USA

bejot82 profile image
bejot82

Gdansk, Poland

Giuseppe_ profile image
Giuseppe_

Barcelona, Spain

Catherine62 profile image
Catherine62

North Carolina US

Allder profile image
Allder

Stockholm, Sweden

JustAGuyWithAmn profile image
JustAGuyWithAmn

Winnipeg, Manitoba, Canada

Jarca profile image
Jarca

Ústí nad Labem, Česko

Yevgenii profile image
Yevgenii

Post is outdated, but why not) I'm from Kazakhstan, Shymkent. Diagnosed last month.

3WheelWonder profile image
3WheelWonder in reply to Yevgenii

whoa..first from that long named country😊

Karukera profile image
Karukera

Paris, France

scjcpts profile image
scjcpts in reply to Karukera

My brother and I both have been diagnosed and will be in Paris next year for 2-3 weeks.

Leonetho profile image
Leonetho

Australia, NSW

quilling profile image
quilling

Massachusetts USA

DennyB profile image
DennyB

New Plymouth New Zealand.

Englishbulldogmom profile image
Englishbulldogmom

chariton iowa

Golfdog3 profile image
Golfdog3

Iowa, USA

A7x1823eb profile image
A7x1823eb

Aberdeen, Scotland

AMNMama profile image
AMNMama

Washington State, USA.

Coslet profile image
Coslet

Mississippi

brittanyspaniel profile image
brittanyspaniel

Palo Alto, California

Intensor profile image
Intensor

Sankt Petersburg, Russia

Djp1989 profile image
Djp1989

Ohio, United States

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