My brother in law : Hi again. Concerning... - My MSAA Community

My MSAA Community

6,425 members15,652 posts

My brother in law

Luna-blade
Luna-blade

Hi again. Concerning my brother in law, he’s got Adrenomyeloneuropathy not multiple sclerosis. It’s another form of neurological illness as well. Anyone familiar with it or any treatments for it?

12 Replies

I am sorry about your brother in-laws dx. I had to google it to see what it was. I hope someone can help you, Blessings Jimeka 😊

Luna-blade
Luna-blade in reply to jimeka

Thank you :)

I’d never heard of it, but I’m sorry about this. I’m glad he has a diagnosis finally. It’s so hard waiting to find out. I hope that he has a good specialist and finds the best treatments.

Thank you for your wishes so far there hasn’t been much progress with this type of illness. Let’s hope there will be

I’m so glad that rare diseases are getting more attention. There is a foundation for rare neurological diseases that may be able to provide some help and support. I’m afraid I don’t have the specific link for you, but you could try searching for it.

Thank you I appreciate it :)

I'm sorry to hear about your brother in-laws dx. I had to do an internet search to find out what that was as I have never heard of it. Best of luck to your bil, I hope a treatment that works for him can be found. Keep us updated when you can.

Luna-blade
Luna-blade in reply to bxrmom

Sure thank you :)

Google to the rescue. I have never heard of it but it really sounds scary. I read that stem cell treatment can help, but that's just from Dr. Google. Best of luck to your family!

Thank you :)

No. I can’t believe there are so many autoimmune diseases. It must be the chemicals in water, air, and food. Now there is an epidemic: autoimmune diseases!

Yeah exactly and within the same town where my brother in law comes from, there are so many cases like that!!

You may also like...