My brother in law : Hi again. Concerning... - My MSAA Community

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My brother in law

Luna-blade profile image
12 Replies

Hi again. Concerning my brother in law, he’s got Adrenomyeloneuropathy not multiple sclerosis. It’s another form of neurological illness as well. Anyone familiar with it or any treatments for it?

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Luna-blade profile image
Luna-blade
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12 Replies
jimeka profile image
jimeka

I am sorry about your brother in-laws dx. I had to google it to see what it was. I hope someone can help you, Blessings Jimeka 😊

Luna-blade profile image
Luna-blade in reply to jimeka

Thank you :)

greaterexp profile image
greaterexp

I’d never heard of it, but I’m sorry about this. I’m glad he has a diagnosis finally. It’s so hard waiting to find out. I hope that he has a good specialist and finds the best treatments.

Luna-blade profile image
Luna-blade in reply to greaterexp

Thank you for your wishes so far there hasn’t been much progress with this type of illness. Let’s hope there will be

greaterexp profile image
greaterexp in reply to Luna-blade

I’m so glad that rare diseases are getting more attention. There is a foundation for rare neurological diseases that may be able to provide some help and support. I’m afraid I don’t have the specific link for you, but you could try searching for it.

Luna-blade profile image
Luna-blade in reply to greaterexp

Thank you I appreciate it :)

bxrmom profile image
bxrmom

I'm sorry to hear about your brother in-laws dx. I had to do an internet search to find out what that was as I have never heard of it. Best of luck to your bil, I hope a treatment that works for him can be found. Keep us updated when you can.

Luna-blade profile image
Luna-blade in reply to bxrmom

Sure thank you :)

mrsmike9 profile image
mrsmike9

Google to the rescue. I have never heard of it but it really sounds scary. I read that stem cell treatment can help, but that's just from Dr. Google. Best of luck to your family!

Luna-blade profile image
Luna-blade in reply to mrsmike9

Thank you :)

agapepilgrim profile image
agapepilgrim

No. I can’t believe there are so many autoimmune diseases. It must be the chemicals in water, air, and food. Now there is an epidemic: autoimmune diseases!

Luna-blade profile image
Luna-blade in reply to agapepilgrim

Yeah exactly and within the same town where my brother in law comes from, there are so many cases like that!!

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