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Success with with supplements/alternative treatments for Raynaud's (Curcumin, omega oils, magnesium oil)
I am still in the process of being diagnosed, but it looks like I have limited systemic scleroderma, with the main manifestations at the moment being Raynaud's, Gastroesophageal reflux disease, and itchy skin on my arms and legs. I take omeprazole for the GERD, which is working well. The Raynaud's symptoms
I am still in the process of being diagnosed, but it looks like I have limited systemic scleroderma, with the main manifestations at the moment being Raynaud's, Gastroesophageal reflux disease, and itchy skin on my arms and legs. I take omeprazole for the GERD, which is working well. The Raynaud's symptoms
Ringeir
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Tildiem retard/diltiazem question
Hi, My cardiologist has taken me off bisoprolol and put me on tildiem retard due to me still getting angina pain on walking despite having two stents. I've also been referred for a stress echocardiogram on 24 April to see if I have another narrowing. He doesn't want to do an angiogram/CT unless absolutely
Hi, My cardiologist has taken me off bisoprolol and put me on tildiem retard due to me still getting angina pain on walking despite having two stents. I've also been referred for a stress echocardiogram on 24 April to see if I have another narrowing. He doesn't want to do an angiogram/CT unless absolutely
LucyBoo21
in
British Heart Foundation
2 months ago
Rytary and Deep Brain Stimulation
my husband has been taking Rytary for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one. He doesn’
my husband has been taking Rytary for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one. He doesn’
Blueyedgirlky
in
Cure Parkinson's
7 days ago
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Rytary
1 -25/100 and 145 mg Rytary helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the Rytary helps with that now, but I’m very stiff and achy in leg and arm since on Rytary, anyone else experiencing stiffness with Rytary? I wish these meds didn’t have
1 -25/100 and 145 mg Rytary helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the Rytary helps with that now, but I’m very stiff and achy in leg and arm since on Rytary, anyone else experiencing stiffness with Rytary? I wish these meds didn’t have
akgirlsrock
in
Cure Parkinson's
17 days ago
Sweat every day
~1 year into my PD Recently I have started hanging around with my nephews (11 and 13) and am doing MUCH more exercise. My goal now is to sweat every day - from pickleball, hiking, running, etc. Results: much less stiffness, better sleep, occasionally skip 1 dose of Rytary at night since I don't
~1 year into my PD Recently I have started hanging around with my nephews (11 and 13) and am doing MUCH more exercise. My goal now is to sweat every day - from pickleball, hiking, running, etc. Results: much less stiffness, better sleep, occasionally skip 1 dose of Rytary at night since I don't
SanMateoPD
in
Cure Parkinson's
27 days ago
Is the Parkinson's honeymoon over for me?
History: I am 69, female, diagnosed in 2015,7 months after suicide of my soulmate (we were together33 years). More than one neuro has agreed that the PD was triggered by the emotional trauma. I was a dancer and a cyclist and worked out for many years prior to PD. On Rytary 145’s 2 at 7am, 2 at 11am
History: I am 69, female, diagnosed in 2015,7 months after suicide of my soulmate (we were together33 years). More than one neuro has agreed that the PD was triggered by the emotional trauma. I was a dancer and a cyclist and worked out for many years prior to PD. On Rytary 145’s 2 at 7am, 2 at 11am
Jmellano
in
Cure Parkinson's
29 days ago
rytary
Does anyone take Rytary around the clock. My dr told me to play with it to figure out what works best. I know this is an unusual dosage, but to prevent dyskinesia I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am. Now that doesn’t appear to be
Does anyone take Rytary around the clock. My dr told me to play with it to figure out what works best. I know this is an unusual dosage, but to prevent dyskinesia I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am. Now that doesn’t appear to be
Ep0522
in
Cure Parkinson's
2 months ago
My visit to a new MDS
I had a great 1st visit with a new MDS last week. To be honest, I wasn’t expecting much. To be honest, I am very pleased! The visit lasted over 3 hours one on one. He told me I have no symptoms of MSA or PSP, so he recommended against a DAtScan. He conducted a cognitive exam, found no evidence of
I had a great 1st visit with a new MDS last week. To be honest, I wasn’t expecting much. To be honest, I am very pleased! The visit lasted over 3 hours one on one. He told me I have no symptoms of MSA or PSP, so he recommended against a DAtScan. He conducted a cognitive exam, found no evidence of
House2
in
Cure Parkinson's
2 months ago
No Longer Have PD.
On 13 FEB 2023, i was re-diagnosed. I no longer have PD. Instead, I have PLS (Primary Lateral Sclerosis. The end game is still the same but so far the muscle tighness has gotten better. Since the diagnosis, i have weaned myself from Rytary and have been prescribed Baclofen. The symptoms of PLS have
On 13 FEB 2023, i was re-diagnosed. I no longer have PD. Instead, I have PLS (Primary Lateral Sclerosis. The end game is still the same but so far the muscle tighness has gotten better. Since the diagnosis, i have weaned myself from Rytary and have been prescribed Baclofen. The symptoms of PLS have
billPD
in
Cure Parkinson's
3 months ago
Lewy body disease
So my hwp had his new neurology appt. with UCSD today and she said she didn't think he has Parkinsons. So they are doing testing - brain MRI, Neuro testing, heart test, Neuro urology appt. etc. My guess is to confirm LBD which has been my fear all along. He was diagnosed in 2019 with "Parkinson's
So my hwp had his new neurology appt. with UCSD today and she said she didn't think he has Parkinsons. So they are doing testing - brain MRI, Neuro testing, heart test, Neuro urology appt. etc. My guess is to confirm LBD which has been my fear all along. He was diagnosed in 2019 with "Parkinson's
slimweiss
in
Cure Parkinson's
4 months ago
Rytary and new side effect
my husband has been on Rytary for several months. He has noticed shortly after that when the medication begins to work his veins in his arms are noticeably visible and his hair on his arms stand up. Anyone else notice this?
my husband has been on Rytary for several months. He has noticed shortly after that when the medication begins to work his veins in his arms are noticeably visible and his hair on his arms stand up. Anyone else notice this?
Blueyedgirlky
in
Cure Parkinson's
4 months ago
Lots of OFF and Food interference
I've been losing weight, hard to eat enough to maintain. OFF interferes a lot with both eating and exercise. I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual, Rytary. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either
I've been losing weight, hard to eat enough to maintain. OFF interferes a lot with both eating and exercise. I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual, Rytary. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either
rebtar
in
Cure Parkinson's
4 months ago
Myocardial bridge
Diagnosed with a myocardial bridge in Sept 2021 after an NSTEMI . I was admitted to hospital with an NSTEMI in Sept 2021 The discovered the bridge while doing a coronary angiogram. They inflated a drug elated ballon in the bridge to dissolve the blockage. Put me on Zemtard 180xl , statins and
Diagnosed with a myocardial bridge in Sept 2021 after an NSTEMI . I was admitted to hospital with an NSTEMI in Sept 2021 The discovered the bridge while doing a coronary angiogram. They inflated a drug elated ballon in the bridge to dissolve the blockage. Put me on Zemtard 180xl , statins and
Tricky88
in
British Heart Foundation
4 months ago
Rytary - can your recommend where can I get it at cheapest price?
Dear Members! My husband is not doing well on Madopar. Our doctor recommends Rytary but it is not available in Hungary, so we have to order it from abroad US, Canada or New Zeiland. Can you give me source/pharmacy where can we get it at lowest price? We will solve somehow the delivery. thank you!!!
Dear Members! My husband is not doing well on Madopar. Our doctor recommends Rytary but it is not available in Hungary, so we have to order it from abroad US, Canada or New Zeiland. Can you give me source/pharmacy where can we get it at lowest price? We will solve somehow the delivery. thank you!!!
rancsikanna
in
Cure Parkinson's
4 months ago
Any thoughts?
Hi, just seen my Cardiologist`s report from his people that help him. Before I waffle on, my main worry is that I am asymptomatic with afib. I see posts about going to A&E after being in AF after so long etc. Am I supposed to monitor anything, as I don`t have a clue apart from being breathless that
Hi, just seen my Cardiologist`s report from his people that help him. Before I waffle on, my main worry is that I am asymptomatic with afib. I see posts about going to A&E after being in AF after so long etc. Am I supposed to monitor anything, as I don`t have a clue apart from being breathless that
gentryman
in
AF Association
5 months ago
Akathisia or dyskinesia?
I was dignoased at age 69 in 2015. First symptom was illegible handwriting. I think I have tried the majority of Rx as well as mannitol, B1 therapy, infrared lite,Ps128 probiotic, all to no avail. i take rytary now since october 2021 which I think helped what I thought was akathisia( I felt I needed
I was dignoased at age 69 in 2015. First symptom was illegible handwriting. I think I have tried the majority of Rx as well as mannitol, B1 therapy, infrared lite,Ps128 probiotic, all to no avail. i take rytary now since october 2021 which I think helped what I thought was akathisia( I felt I needed
Jmellano
in
Cure Parkinson's
5 months ago
Afib breathlessness
Firstly, sorry, I don`t know how to add to an old post so started this. To try and keep it short I had a cardioversion for Afib which worked for a few weeks. I was later put on bisoprolol which I really struggled to walk any distance and upstairs (Asthmatic). Many kind people on here gave me good
Firstly, sorry, I don`t know how to add to an old post so started this. To try and keep it short I had a cardioversion for Afib which worked for a few weeks. I was later put on bisoprolol which I really struggled to walk any distance and upstairs (Asthmatic). Many kind people on here gave me good
gentryman
in
AF Association
6 months ago
rytary
my doctor just gave me these to try. I’m taking sinemet now, 25/100 3 times a day. I haven’t started the rytary yet because it’s only a 5 day supply until it’s approved by my insurance. How do I switch to it from my other medicine and what should I expect? I’m 2 yrs into my diagnosis and I’m not really
my doctor just gave me these to try. I’m taking sinemet now, 25/100 3 times a day. I haven’t started the rytary yet because it’s only a 5 day supply until it’s approved by my insurance. How do I switch to it from my other medicine and what should I expect? I’m 2 yrs into my diagnosis and I’m not really
Paulaandamy
in
Cure Parkinson's
6 months ago
Back on meds
I've always had difficulty believing I had PD. So 5 weeks ago I stopped taking Rytary. During the 5 weeks I had periods that led me to think I was having withdrawal symptoms. It's only been two days back on the meds but so far nothing much happening. Along with Rytary I've been taking Linzess
I've always had difficulty believing I had PD. So 5 weeks ago I stopped taking Rytary. During the 5 weeks I had periods that led me to think I was having withdrawal symptoms. It's only been two days back on the meds but so far nothing much happening. Along with Rytary I've been taking Linzess
kaypeeoh
in
Cure Parkinson's
6 months ago
Libido?
Sensitive topic for certain whether man or woman. My question is how does l- dopa affect one's libido. At age 66 I don't have much interest but I assumed it's from my age. BUT, since stopping the Rytary thing are different. Stopping rytary had several effects. First, Suddenly my arms and
Sensitive topic for certain whether man or woman. My question is how does l- dopa affect one's libido. At age 66 I don't have much interest but I assumed it's from my age. BUT, since stopping the Rytary thing are different. Stopping rytary had several effects. First, Suddenly my arms and
kaypeeoh
in
Cure Parkinson's
7 months ago
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