Kiane

[Kenekekiane]

I was diagnosed with PD 5 yrs ago last Nov. I was an active 79 yrs young. My symptoms were tremor in foot that eventually has spread to legs, hands, curling in toes. My Neuro started me on C/L 25/100 4x daily. I can't say I have ever felt any good on times or any help from it.. It's like my body is totally resistant to the meds. Where I live Neurologists just don't exist or one may have to wait a yr or more to be seen. I finally found a movement Neuro Dr 3 hrs away. We do tele-med at her discretion when she "has time". I am now on Rytary plus 1/2 Sinamet 5x daily. I feel worse, have muscle pain, nausea,worse tremor, depression, you name it. I'm at the end of my rope, knowing which way to turn with our terrible lack of medical help. My husband practiced dentistry for 50 yrs in 3 states. I managed our office. We were part of the medical atmosphere. What we see in the Neuro field is extremely sad. Any suggestions are welcomed. I too in spite of age would like to feel like I am somewhat normal again

[ShakingInMyBoots1]

i have heard good things about Synapticure.com . Just like the disease we all react to meds differently. I know someone who had DBS because they weren’t Levadopa responsive. There are simply no absolutes is this disease. We have to search for relief.

[Edge999]

try removing all sugars and carbs. a carnivore diet

[Pixelpixie]

Dr Mischley is a known source with documented studies of what helps. She has a website and is on YouTube. Plz check her out

[SushiCharlie]

Hi Kenekekiane!

You possibly may want to consider adding some natural supplements like I have that I have found made a difference. PEA, magnesium.l-threonate, Ashwaganda and l-taurine are a few. I also take Shilajit. All of the above help the mitochondria. PEA is also known for helping depression. I take these along with my meds as well as doing red light therapy twice a day with the Coronet helmet.

I also try to do half an hour exercises every day or at least four times a week with weights for my arms and walking the stairs up and down the five floors of my apartment building.

I started by working on my gut health because apparently there is quite a bit of awareness now that many illnesses, including Parkinson’s, have origins from the gut being out of whack. So I also implemented probiotics and probiotics. Along with that, I started doing a six step program in the morning that takes less than three minutes. It helps to clear and clean out the lymphatic system.

I hope some of this will help. Parkinson’s is an individual journey and researching alternative natural options is valid but not very often reinforced by the medical community like pharmaceutical options are. Find solid studies that back up your choices then find what resonates with you.

Also mucana puriens is a natural dopamine from a plant that I find bridges the gap between my carbidopa/levodopa meds.

Again all of the above is my experience only. Please feel free to contact me if you need further information.

Hang in there! I found that doing your own research bears the most fruit at this point with the medical community being as it is. Plus the bonus is tha you feel more in control and empowered journey this way.👍🏻