Generally speaking this kind of highlights a reason so many efforts are made to find helps that do not involve medications or wanting to delay the medications .
So sorry you suffered this experience. Adverse drug reactions often only get worse. If it is creating a minor problem amongst clear benefits, continuing can be considered. However, no benefit and these problems mandate discontinuance: dizziness when standing, confusion, and insomnia. Dizziness when standing can turn into loss of consciousness followed by uncontrolled fall and injury. The medical name for this is orthostatic hypertension. It can be disabling and you do not want to risk it.
Yep - because of getting dizzy when standing - the Docs were giving her pills to raise her BP - and at the same time giving her PD meds that lowered her BP
Yes this is what happened to my husband on Sifrol/pramipexole - he had 3 bad falls and broke bones and severe concussion - had to be very careful on standing and walking - his comprehension was shocking and became aggressive. Almost a year now since we got him of that drug and he is fine and has reduced his Madopar from 187.5 mg 8am-12.30pm-5pm-9.30pm to 125 mg and apart from tremors and the odd off balance days he is the best he has been for 7 years. We also stopped Entacapone at the same time - he still has CBD Oil ( no THC) at night which helps with sleep and RLS. Sounds to me this lady is being over dosed - trouble is with these agonists are hard to come off and have to be tapered for 2-3 months so as not to cause nasty problems.
I am sorry about what happened to your wife. I hope she’s getting better now. I have refused to take any medication for PD from day one of diagnosis. I take vitamin b1 , magnesium , b complex and some other supplements.
I have fights with my husband every 15 days because he wants me to take what doctors prescribed I.e. big pharma drugs. I’m getting tired of these fights and can’t take it anymore.
I’m so sorry to hear about your wife, it’s really difficult to decide what to do for the best. I feel your anger and frustration in the situation.
When my HWP was first diagnosed he was prescribed a low dose of Madopar, it’s Levadopa /Benserazide combination. He was told to see if it made any difference or helped his symptoms. After about 6 weeks a suitable low dose was established. Side effects were not apparent.
I’m wondering if the dose is too high and your wife is really sensitive to the ingredients, Rytary, from what I’ve read here is a longer lasting PD drug. It might be not the best one to start with, but I’m no expert, just gained some knowledge from the past 10 years with my husbands PD drugs.
most of her symptoms are due to PD. Dizziness is due to orthostatic hypotension Constipation and insomnia are the early signs of PD. Confusion is due to cognitive impairment which is quite common in PD. Fatigue is not uncommon in PD bu also side effects of the med.
I had all those effects plus hallucinations. No improvement. Im wondering if the fact that i do not have tremors, but rather neuropathies and dystonias, is a contributing factor. Plus the cost of this Rytary as well as Crexont (which I also tried) is ridiculously high, even with the best insurance. I would advise anyone trying it to be observed 24 /7 for 3 days minimum.
Here is the Morning smoothie after taking B1 high dose and B12 complex low dose
• 1 Banana
• ½ Avocado
• 2.5 grams of Mucuna Bean Seed Powder (approximately ½ teaspoon)
• 1 cup Coconut Milk
• ¼ to ½ teaspoon Ceylon Cinnamon
• ¼ to ½ teaspoon Turmeric Powder
• ½ teaspoon Creatine
• A pinch of Black Pepper (to enhance turmeric absorption)
• Optional Add-ins: a tablespoon of chia seeds, or flax seeds
Mucuna bean powder, derived from the seeds of the Mucuna pruriens plant, offers several potential benefits for Parkinson's disease due to its high content of levodopa (L-dopa), a precursor to dopamine
I use the chia and flax every other day and soak the seeds overnight to optimize their nutritional value through sprouting. I use 1 dry Tbs per serving. Would they be considered protein?
doctors are for the most part well intentioned. However the system they are living in is like a funnel. It is nigh inevitable that they will be su led down the prescription black hole. They are plied with incentives to do so from all the big pharmaceutical companies. They are offered free stays and flights to medical conferences where they are under a constant hard sell of pills. These are some things I have learned from some of my prior activism around environment and non human rights. Take your doctor's advice with a huge grain of the awareness salt. I'm no expert, but more meds doesn't seem to be the best answer and yet, it seems to be the prevailing "wisdom " in the medical and other realms.
Oh, you have a medical problem, --- here is a pill - bye now - move on to next patient
My wife has a heart doctor, a bone doctor, a brain doctor and primary doctor - all well intentioned - each person looking at a part of the whole - not a holistic approach
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Medical marijuana side effects 
Side effects from Leva/carba
L-Dopa side effects - psychosis
looking for feedback on exercise routines
Which would you rather have? Violent dyskinesia or go back to less L-dopa? Are there other options? Can we thread the needle and avoid both?
