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55 public posts

Do I have any life left?

I am 81 and have battled acute pancreatitis, removal of a "gall bladder full of rocks, the size of a submarine sandwich", then undiagnosed chronic pancreatitis and some kind of bile problem, for 49 years. I've begged and pleased for help and been refused.
I am 81 and have battled acute pancreatitis, removal of a "gall bladder full of rocks, the size of a submarine sandwich", then undiagnosed chronic pancreatitis and some kind of bile problem, for 49 years. I've begged and pleased for help and been refused.
FallsburgLady profile image
FallsburgLady
in Chronic Pancreatitis Support

Worried about liver

I have depression and anxiety(I know alcohol doesn’t help). 3 acute pancreatitis attacks last year and one a month ago. Had ultrasound which was clear about 5 weeks ago. Like a twit I have relapsed again. What worries me most is the mild itchiness, dry skin and nausea.
I have depression and anxiety(I know alcohol doesn’t help). 3 acute pancreatitis attacks last year and one a month ago. Had ultrasound which was clear about 5 weeks ago. Like a twit I have relapsed again. What worries me most is the mild itchiness, dry skin and nausea.
AJR1 profile image
AJR1
in British Liver Trust

Diagnosed with Parkinsonism Suggestive of PSP – Any Relation with GBCA accumulation in brain or with Cervical Myelopathy / Radiculopathy?

. • In May 2017, I suffered a severe acute pancreatitis due to medication (Janumet, sitagliptin). Started vigilance of pancreas with regular MRIs using Gadolinium-Based Contrast Administration (GBCA, is a ferromagnetic element, along with iron, cobalt and nickel).
. • In May 2017, I suffered a severe acute pancreatitis due to medication (Janumet, sitagliptin). Started vigilance of pancreas with regular MRIs using Gadolinium-Based Contrast Administration (GBCA, is a ferromagnetic element, along with iron, cobalt and nickel).
JAPR profile image
JAPR
in PSP Association
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Hello from Megan from Mission: Cure

We have top pancreatitis experts as advisors and share expert information on chronic and recurrent acute pancreatitis on our website. I am looking forward to getting to know the members of this community!
We have top pancreatitis experts as advisors and share expert information on chronic and recurrent acute pancreatitis on our website. I am looking forward to getting to know the members of this community!
Megan_MC profile image
Megan_MC
Administratorin Chronic Pancreatitis Support

Struggling with guilt

Hi everyone, I was diagnosed with PA about 3 years ago following a terrible episode of acute pancreatitis followed by gallbladder surgery. I have struggled badly with fatigue, brain fog and anxiety and retired early as a result.
Hi everyone, I was diagnosed with PA about 3 years ago following a terrible episode of acute pancreatitis followed by gallbladder surgery. I have struggled badly with fatigue, brain fog and anxiety and retired early as a result.
dch252 profile image
dch252
in Pernicious Anaemia Society

The soymilk diet: A previously unknown etiology of acute pancreatitis

The soymilk diet: A previously unknown etiology of pancreatitis Ian S deSouza 1 , Alexander Lipsitt 2 Affiliations • PMID: 33546956 • DOI: 10.1016/j.ajem.2021.01.055 Abstract We present a case of daily, large ingestions of soymilk that likely led to acute pancreatitis.
The soymilk diet: A previously unknown etiology of pancreatitis Ian S deSouza 1 , Alexander Lipsitt 2 Affiliations • PMID: 33546956 • DOI: 10.1016/j.ajem.2021.01.055 Abstract We present a case of daily, large ingestions of soymilk that likely led to acute pancreatitis.
helvella profile image
helvella
Administratorin Thyroid UK

Fluctuations in temperature after coming out of I C U 2 weeks ago

My son was admitted to I C U with severe acute pancreatitis. He was on a ventilator and had lung failure. Fortunately he survived. Now at home recovering. Often he is either hot or cold and perspires profusely during the night. Could anyone tell me of any similar experiences please
My son was admitted to I C U with severe acute pancreatitis. He was on a ventilator and had lung failure. Fortunately he survived. Now at home recovering. Often he is either hot or cold and perspires profusely during the night. Could anyone tell me of any similar experiences please
Godwillsustainus profile image
Godwillsustainus
in ICUsteps

Surgery upcoming.

Was hospitalized two weeks ago with acute pancreatitis. Long story short, I will have my gallbladder removed on Friday. Spoke at length with my hemotologist and have no real concerns. Just wondering if anyone wants to share his/her experience of surgery with MPN. Thanks
Was hospitalized two weeks ago with acute pancreatitis. Long story short, I will have my gallbladder removed on Friday. Spoke at length with my hemotologist and have no real concerns. Just wondering if anyone wants to share his/her experience of surgery with MPN. Thanks
falconered53 profile image
falconered53
in MPN Voice

Miracles do happen 🙏🏻 Tony - Covid19: 1-0

He had every infection and bug there is out there, including CMV virus, he had a very severe case of acute pancreatitis, his liver failed, he was on a feeding tube for 3 months. He had to learn to do everything from the beginning as the muscle wastage was phenomenal.
He had every infection and bug there is out there, including CMV virus, he had a very severe case of acute pancreatitis, his liver failed, he was on a feeding tube for 3 months. He had to learn to do everything from the beginning as the muscle wastage was phenomenal.
MarthaKos profile image
MarthaKos
in ICUsteps

Miracles do happen 🙏🏻 Tony - Covid19: 1-0

He had every infection and bug there is out there, including CMV virus, he had a very severe case of acute pancreatitis, his liver failed, he was on a feeding tube for 3 months. He had to learn to do everything from the beginning as the muscle wastage was phenomenal.
He had every infection and bug there is out there, including CMV virus, he had a very severe case of acute pancreatitis, his liver failed, he was on a feeding tube for 3 months. He had to learn to do everything from the beginning as the muscle wastage was phenomenal.
MarthaKos profile image
MarthaKos
in ICUsteps

Can people survive after multiple organ failure?

My son is now in CCU with this after acute pancreatitis. his kidney and liver are not working.
My son is now in CCU with this after acute pancreatitis. his kidney and liver are not working.
Zhanna1963 profile image
Zhanna1963
in ICUsteps

Steroids - Everything you need to know!

Speak to your GP or seek urgent medical care if you get: Acute pancreatitis - nausea/vomiting, diarrhoea, indigestion/heartburn, jaundice, abdominal tenderness, tachycardia, fever. Go to A&E if you suspect this! Cushings - too much cortisol.
Speak to your GP or seek urgent medical care if you get: Acute pancreatitis - nausea/vomiting, diarrhoea, indigestion/heartburn, jaundice, abdominal tenderness, tachycardia, fever. Go to A&E if you suspect this! Cushings - too much cortisol.
EmmaF91 profile image
EmmaF91
Community Ambassadorin Asthma Community Forum

I probably have PMR

However he said that if PMR is diagnosed, there is a problem with me taking corticosteroids, as in the past I had idiopathic acute pancreatitis. For this reason, even ibuprofen, which has been helpful in getting me moving, is not advised. He will refer me to a rheumatologist for advice.
However he said that if PMR is diagnosed, there is a problem with me taking corticosteroids, as in the past I had idiopathic acute pancreatitis. For this reason, even ibuprofen, which has been helpful in getting me moving, is not advised. He will refer me to a rheumatologist for advice.
Melti profile image
Melti
in PMRGCAuk

Something instead of morphine?

He has been in hospital with severe pain three or four times and acute chronic pancreatitis was diagnosed so he also takes Creon. He has had four scans which show no cancer But still the pain persists.
He has been in hospital with severe pain three or four times and acute chronic pancreatitis was diagnosed so he also takes Creon. He has had four scans which show no cancer But still the pain persists.
Fizzy35 profile image
Fizzy35
in Oesophageal Patients Association

Prolia Denosumab and vetebral fractures

On that occasion I was left to my own devices with acute pancreatitis diagnosed by mri during menopause. Believe me please because like all of the problems big and small we live with it's often made even worse by lack of care or understanding.
On that occasion I was left to my own devices with acute pancreatitis diagnosed by mri during menopause. Believe me please because like all of the problems big and small we live with it's often made even worse by lack of care or understanding.
catno1 profile image
catno1
in Bone Health

Don't know if I've had a diagnosis

This has all happened since January after being took in to get my gallbladder removed then j was back in hospital in February as I also have acute pancreatitis and was in pain but anyways was in hospital for 3 weeks had over 20 clexine injections in my arms which I ended up taking a reaction too and
This has all happened since January after being took in to get my gallbladder removed then j was back in hospital in February as I also have acute pancreatitis and was in pain but anyways was in hospital for 3 weeks had over 20 clexine injections in my arms which I ended up taking a reaction too and
Staz91 profile image
Staz91
in Fibro Friends WSM

Pancreatitis

He was admitted a few weeks ago due to extreme weight loss for either feeding tube and/ or CT scan Scan showed Acute on Chronic Pancreatitis and apparently it would not have mattered what diet he had he was not being nourishedas his enzymes weren’t being produced Now home on enzymes in capsule form and
He was admitted a few weeks ago due to extreme weight loss for either feeding tube and/ or CT scan Scan showed Acute on Chronic Pancreatitis and apparently it would not have mattered what diet he had he was not being nourishedas his enzymes weren’t being produced Now home on enzymes in capsule form and
Fizzy35 profile image
Fizzy35
in Oesophageal Patients Association

Help please with blood results

I still have lots of symptoms of hypo ( fatigue, weight gain, dry skin, hair loss including eyebrows, muscle pain etc) but also worried as health has worsened, since diagnosis of thyroid have had breast cancer, gallstones, acute pancreatitis, now prediabetic!
I still have lots of symptoms of hypo ( fatigue, weight gain, dry skin, hair loss including eyebrows, muscle pain etc) but also worried as health has worsened, since diagnosis of thyroid have had breast cancer, gallstones, acute pancreatitis, now prediabetic!
Aquapuss profile image
Aquapuss
in Thyroid UK

Will MRI scan trigger AF?

However, I have been in hospital with acute pancreatitis and liver problems due to a blocked bile duct. On a zero fat diet and awaiting the results of an MRI scan to inform the surgeon's decision about which bits to chop out.
However, I have been in hospital with acute pancreatitis and liver problems due to a blocked bile duct. On a zero fat diet and awaiting the results of an MRI scan to inform the surgeon's decision about which bits to chop out.
WendyWu20 profile image
WendyWu20
in AF Association

16 years since diagnosis and still unwell

Also went through menopause at 45, developed gall stones which were left untreated and developed into acute pancreatitis so needed emergency treatment two years ago and they finally removed my gall bladder!
Also went through menopause at 45, developed gall stones which were left untreated and developed into acute pancreatitis so needed emergency treatment two years ago and they finally removed my gall bladder!
Aquapuss profile image
Aquapuss
in Thyroid UK
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