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NICE approves venetoclax with obinutuzumab for patients with untreated CLL
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Starting CyberKnife treatment
Hello warriors! Had my second needle biopsy on 10/30. The first one 3 mo ago was inconclusive, suspicious. The path report came in on 11/03 as an adenocarcinoma. I also had a fiducial marker implanted at the time of the biopsy and on 11/9, I go to a diagnostic center that has the software protocol
Hello warriors! Had my second needle biopsy on 10/30. The first one 3 mo ago was inconclusive, suspicious. The path report came in on 11/03 as an adenocarcinoma. I also had a fiducial marker implanted at the time of the biopsy and on 11/9, I go to a diagnostic center that has the software protocol
dunnellon
in
Lung Conditions Community Forum
4 years ago
Ruxolitinib
Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me please.I am already on Hydroxycarbamide and aspirin. Thanks
Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me please.I am already on Hydroxycarbamide and aspirin. Thanks
Big-Ted
in
MPN Voice
4 years ago
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Revisiting Ibrutinib , but then no Venetoclax?
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
Me2AsWell
in
CLL Support
4 years ago
Hand Sanitizers and Disinfectants
Hello, I am wondering if anyone has any knowledge or opinion on the use of hand sanitizers or disinfectants by mpn'ers during this time of Covid. I have read in the past that chemicals, (especially benzene, not in either) have been implicated in causing diseases and/or gene mutations. I am constantly
Hello, I am wondering if anyone has any knowledge or opinion on the use of hand sanitizers or disinfectants by mpn'ers during this time of Covid. I have read in the past that chemicals, (especially benzene, not in either) have been implicated in causing diseases and/or gene mutations. I am constantly
Meatloaf9
in
MPN Voice
4 years ago
85 year old not coping with nor responding to treatment
Hi, I am new. My Dad has CLL which has just become symptomatic after 5 years. He has had 3 treatments of Obinutuzimab and Chlorambucil , the first one made him so ill he was rushed to ICU. Now he seems to have hemalosis, as his RBC is very low at 70 and will not increase even after 8 blood transfusions
Hi, I am new. My Dad has CLL which has just become symptomatic after 5 years. He has had 3 treatments of Obinutuzimab and Chlorambucil , the first one made him so ill he was rushed to ICU. Now he seems to have hemalosis, as his RBC is very low at 70 and will not increase even after 8 blood transfusions
TKB2020
in
CLL Support
4 years ago
Low MCH MCV?
Just a question to anyone else with ET who has dropping MCH & MCV levels, they were previously ok but getting lower each time, I’ve had varying reasons given for this & would be grateful for anyone else’s experience before I try to speak to my consultant again I’ve been told it could be to do with periods
Just a question to anyone else with ET who has dropping MCH & MCV levels, they were previously ok but getting lower each time, I’ve had varying reasons given for this & would be grateful for anyone else’s experience before I try to speak to my consultant again I’ve been told it could be to do with periods
Melaniem59
in
MPN Voice
4 years ago
Hyperbaric oxygen therapy...
I just read about a trial of volunteers in Israel who took hyperbaric oxygen therapy (HBOT) for 90 minutes a day, 5 days a week, for 3 months, and the results were apparently nothing less than extraordinary in reversing the ageing process. I then briefly checked the internet and found that dating back
I just read about a trial of volunteers in Israel who took hyperbaric oxygen therapy (HBOT) for 90 minutes a day, 5 days a week, for 3 months, and the results were apparently nothing less than extraordinary in reversing the ageing process. I then briefly checked the internet and found that dating back
Pogee
in
CLL Support
4 years ago
Newly Diagnosed, W&W, yearly visits?
Hi i was recently diagnosed a week ago, my MBL crossed over the 5000 threshold, and now officially RAI 0. Flow/FISH was done, im 13q deleted, ZAP70 and CD38 negative. Doc (oncologist) said it most likely be 10-15 years before i would need treatment, and said he is putting me on yearly checkups. I know
Hi i was recently diagnosed a week ago, my MBL crossed over the 5000 threshold, and now officially RAI 0. Flow/FISH was done, im 13q deleted, ZAP70 and CD38 negative. Doc (oncologist) said it most likely be 10-15 years before i would need treatment, and said he is putting me on yearly checkups. I know
Freeskier989
in
CLL Support
4 years ago
ICC ruled in favor of AOP Orphan Pharmaceuticals AG in arbitration proceedings pertaining to BESREMi®
«We are relieved that the ICC ruling compensates AOP Orphan now for the delay in getting BESREMi® approved in the European Union, and the delay in bringing this important medication to the patients suffering from polycythaemia vera, a rare and chronic disease of the blood building cells", explains Dr
«We are relieved that the ICC ruling compensates AOP Orphan now for the delay in getting BESREMi® approved in the European Union, and the delay in bringing this important medication to the patients suffering from polycythaemia vera, a rare and chronic disease of the blood building cells", explains Dr
Manouche
in
MPN Voice
4 years ago
Going well so far with MF on Ruxolitinib
When I was diagnosed with post ET Myelofibrosis in August, I was terrified and extremely grateful for the support on this forum. I thought I would just update you and let you know that Ruxolitinib appears to be working well for me. My counts are still not great but are, to quote my haematology nurse,
When I was diagnosed with post ET Myelofibrosis in August, I was terrified and extremely grateful for the support on this forum. I thought I would just update you and let you know that Ruxolitinib appears to be working well for me. My counts are still not great but are, to quote my haematology nurse,
Otterfield
in
MPN Voice
4 years ago
SUGGESTIONS?
I started treatment (B+R) at the end of this past January for 6 months, the results were very good and my oncologist said he would probably start me on a 2 year maintenance program in 3 months of Rituximab every 3 months. I went back to see him after the 3 months and most of my blood work was good except
I started treatment (B+R) at the end of this past January for 6 months, the results were very good and my oncologist said he would probably start me on a 2 year maintenance program in 3 months of Rituximab every 3 months. I went back to see him after the 3 months and most of my blood work was good except
laldoroty
in
CLL Support
4 years ago
Leukemic Evolution of Polycythemia Vera and Essential Thrombocythemia
The authors performed next-generation sequencing on samples from 49 patients with polycythemia vera (PV, n=24) or essential thrombocytosis (ET, n=25) who developed leukemic transformation to identify the associated candidate driver genes. Hierarchical classification identified three mutational groups
The authors performed next-generation sequencing on samples from 49 patients with polycythemia vera (PV, n=24) or essential thrombocytosis (ET, n=25) who developed leukemic transformation to identify the associated candidate driver genes. Hierarchical classification identified three mutational groups
JT_Marlin
in
MPN Voice
4 years ago
Rosemary - another anti-leukemia spice!
A 2014 test-tube study found that Ellagic Acid (e,g., anardana, pomegranates, rose hips, strawberries and blackberries), EGCG (e.g., green tea) and Rosmarinic Acid (e.g., Rosemary) can work together to stop leukemia cells from proliferating. Here's the link: https://www.sciencedirect.com/science/article
A 2014 test-tube study found that Ellagic Acid (e,g., anardana, pomegranates, rose hips, strawberries and blackberries), EGCG (e.g., green tea) and Rosmarinic Acid (e.g., Rosemary) can work together to stop leukemia cells from proliferating. Here's the link: https://www.sciencedirect.com/science/article
HowardR
in
CLL Support
4 years ago
Life after transplant
I read a lot about people struggling after transplant to get back to normal life and it’s clear that for many “normal” is not what they had before diagnosis. I don’t know if I am in a minority or we only tend to speak out when things are bad but my life is amazing now. My bloods are all in normal ranges
I read a lot about people struggling after transplant to get back to normal life and it’s clear that for many “normal” is not what they had before diagnosis. I don’t know if I am in a minority or we only tend to speak out when things are bad but my life is amazing now. My bloods are all in normal ranges
KAS8
in
CLL Support
4 years ago
A webinar for patients - practical workshop 'Coping with Fatigue' Oct 28th at 4pm
Hi all, this is a challenge that many of us have to manage. Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y Leukaemia Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing
Hi all, this is a challenge that many of us have to manage. Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y Leukaemia Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Novel and combination therapies for polycythemia vera and essential thrombocythemia: the dawn of a new era
« Promising novel agents in clinical testing include the histone deacetylase inhibitor givinostat, the telomerase inhibitor imetelstat, and the LSD-1 inhibitor IMG-7289 » https://www.tandfonline.com/doi/abs/10.1080/17474086.2020.1839887?journalCode=ierr20#.X45tb_0KltI.twitter
« Promising novel agents in clinical testing include the histone deacetylase inhibitor givinostat, the telomerase inhibitor imetelstat, and the LSD-1 inhibitor IMG-7289 » https://www.tandfonline.com/doi/abs/10.1080/17474086.2020.1839887?journalCode=ierr20#.X45tb_0KltI.twitter
Manouche
in
MPN Voice
4 years ago
Richter Transformation - Update
Hi everybody how are you? I'd like to put you all in my current state, after full remission. As you know, they treated me with R-CHOP and did not transplant me. It was not necessary as no masses were found on my body when I did the pet scan. I was taking ibrutinib when I was diagnosed with Ricther. I
Hi everybody how are you? I'd like to put you all in my current state, after full remission. As you know, they treated me with R-CHOP and did not transplant me. It was not necessary as no masses were found on my body when I did the pet scan. I was taking ibrutinib when I was diagnosed with Ricther. I
Priss69
in
CLL Support
4 years ago
How can you tell how many CLL cells are actually in your blood streams?
My Absolute Lymphocyte Count is at 10214 cells/mm³ is that CLL? I calculated my WBC 16.5 plus LYMPHS% 61.9 %...
My Absolute Lymphocyte Count is at 10214 cells/mm³ is that CLL? I calculated my WBC 16.5 plus LYMPHS% 61.9 %...
Laura3mini
in
CLL Support
4 years ago
CLL Aussie voices study - last call to add your voice to the PEEK study
This is a final call for Australians with CLL, their carers and family members to add their voice and register for the CLL PEEK study, conducted by the Centre for Community Driven Research ( CC-DR).
To register, email administration@cc-dr.org or go to www.cc-dr.org/peek/register/2020aucll
Catherine
This is a final call for Australians with CLL, their carers and family members to add their voice and register for the CLL PEEK study, conducted by the Centre for Community Driven Research ( CC-DR).
To register, email administration@cc-dr.org or go to www.cc-dr.org/peek/register/2020aucll
Catherine
AussieNeil
Partner
in
CLL Support
4 years ago
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