Search
Search
About
Log in
Join
Experiences with
Acute leukaemia
Posts
Communities
2,770 public posts
Filter results
A day of surprises
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
ConniesDad
in
MPN Voice
3 years ago
CLL Research: Phase 2 CAPTIVATE Study Suggests Role for Fixed-Duration Treatment of CLL/SLL
https://cllpharmacist.com/cll-research-phase-2-captivate-study-suggests-role-for-fixed-duration-treatment-of-cll-sll/ The data in the uMRD cohort of this trial suggest that fixed-duration therapy is feasible in patients who achieve undetectable MRD (uMRD) status. The selection of durations for these
https://cllpharmacist.com/cll-research-phase-2-captivate-study-suggests-role-for-fixed-duration-treatment-of-cll-sll/ The data in the uMRD cohort of this trial suggest that fixed-duration therapy is feasible in patients who achieve undetectable MRD (uMRD) status. The selection of durations for these
WinJ3
in
CLL Support
3 years ago
Research to investigate how patients with MPN and also CML respond to vaccination against Covid-19
Researchers at Guy's and St Thomas' NHS Foundation Trust are carrying out research to investigate how patients with MPN and also CML respond to vaccination against Covid-19. They would like to recruit patients with a known MPN – who have either not yet received a second dose OR are less than 6 weeks
Researchers at Guy's and St Thomas' NHS Foundation Trust are carrying out research to investigate how patients with MPN and also CML respond to vaccination against Covid-19. They would like to recruit patients with a known MPN – who have either not yet received a second dose OR are less than 6 weeks
Mazcd
MPNVoice
in
MPN Voice
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
CLL + Trisomy 8?
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8. Oncologist
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8. Oncologist
RyStock
in
CLL Support
3 years ago
CLL Ireland and CLL Support First Joint Webinar
Our first joint webinar! 31 May 6.30 pm - 8.00 pm London (1.30 pm EST) We are very pleased to announce our first joint webinar with CLL Ireland. We are privileged to have as our keynote speakers Dr Brian Koffman, founder and principal of the CLL Society, and Professor Patrick Thornton, Consultant
Our first joint webinar! 31 May 6.30 pm - 8.00 pm London (1.30 pm EST) We are very pleased to announce our first joint webinar with CLL Ireland. We are privileged to have as our keynote speakers Dr Brian Koffman, founder and principal of the CLL Society, and Professor Patrick Thornton, Consultant
UK-Sparky
in
CLL Support
3 years ago
Last Call - Places available for today's UK CLL treatments update webinar
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
FDA Plans to OK Pfizer Vaccine for Those Aged 12 and Up
The U.S. Food and Drug Administration plans to expand emergency use of Pfizer's coronavirus vaccine by next week so that children as young as 12 can be immunized. After Pfizer's trial in adolescents showed its vaccine worked as well in teens as it does in adults, the FDA started preparing to add an
The U.S. Food and Drug Administration plans to expand emergency use of Pfizer's coronavirus vaccine by next week so that children as young as 12 can be immunized. After Pfizer's trial in adolescents showed its vaccine worked as well in teens as it does in adults, the FDA started preparing to add an
2greys
in
Lung Conditions Community Forum
3 years ago
Travel Insurance with CLL (UK based)
I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any recommendations on travel insurance before I investigate further and declare to my existing insurer (free though my banking) or look elsewhere. Thanks.
I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any recommendations on travel insurance before I investigate further and declare to my existing insurer (free though my banking) or look elsewhere. Thanks.
Stretch47
in
CLL Support
3 years ago
Antibody results just said “yes,” not level
Last week I had an antibody test at my dermatologist’s (who has a vested interest in CLL) to see if my January and February Moderna jab produced antibodies. My impression was that this blood test would be “quantitative” rather than “qualitative,” meaning that it would at least give a general idea of
Last week I had an antibody test at my dermatologist’s (who has a vested interest in CLL) to see if my January and February Moderna jab produced antibodies. My impression was that this blood test would be “quantitative” rather than “qualitative,” meaning that it would at least give a general idea of
Myfavoritecat
in
CLL Support
3 years ago
Help make a drug to treat GvHD available to patients
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
CLL_Canada_Group
in
CLL Support
3 years ago
Should you be minimizing your consumption of lipids?
I had my worst blood test on April 15 followed three weeks later (on May 5) by my best blood test in 15 months. The main difference was that my April 15 blood test came after I had been eating lots of fatty foods during the week of Passover. My good test three weeks later came after I cut my fat and
I had my worst blood test on April 15 followed three weeks later (on May 5) by my best blood test in 15 months. The main difference was that my April 15 blood test came after I had been eating lots of fatty foods during the week of Passover. My good test three weeks later came after I cut my fat and
HowardR
in
CLL Support
3 years ago
Should FISH test be repeated?
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Myfavoritecat
in
CLL Support
3 years ago
Suggestions where to find CBC pre-made spreadsheets
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
Pin57
in
CLL Support
3 years ago
Real-World Study Shows Limited Implementation of Reccomended Biomarker Testing in CLL
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Jm954
Administrator
in
CLL Support
3 years ago
Last Call - Places available for today's UK CLL treatments update webinar
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
Duloxetine 30mg
Hi everyone, hope you are enjoying the sun🌞 😃 well we’re in Wales UK so maybe your not so lucky today. So I’ve been on Rux for a while which I’m pleased to say is controlling my blood levels. I have been taking Teva brand Amitriptyline as pain control for many years now. Unfortunately this has not
Hi everyone, hope you are enjoying the sun🌞 😃 well we’re in Wales UK so maybe your not so lucky today. So I’ve been on Rux for a while which I’m pleased to say is controlling my blood levels. I have been taking Teva brand Amitriptyline as pain control for many years now. Unfortunately this has not
StreetPastor
in
MPN Voice
3 years ago
Good News. Update on previous posts.
Having stopped HU on the instructions of A&E and my Haemo still insisting that breathing problems not caused by HU I requested GP to refer me to Dr Claire Harrison and yesterday I had a telephone appointment with her. What a lovely conversation. She acknowledged that HU was not agreeing with me obviously
Having stopped HU on the instructions of A&E and my Haemo still insisting that breathing problems not caused by HU I requested GP to refer me to Dr Claire Harrison and yesterday I had a telephone appointment with her. What a lovely conversation. She acknowledged that HU was not agreeing with me obviously
Heather270240
in
MPN Voice
3 years ago
New York City -- CLL Society Patient Support Group Sunday May 9 , 2021 3pm – 5pm
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
lankisterguy
Volunteer
in
CLL Support
3 years ago
Clumping platelets?
Does anyone here know anything about possible clumping platelets? My platelets have been dropping steadily and are now at 49. I don't have any bruising or nosebleeds or anything and my haematology nurse has ordered a blood film with my next blood test to see if they are clumping and causing a falsely
Does anyone here know anything about possible clumping platelets? My platelets have been dropping steadily and are now at 49. I don't have any bruising or nosebleeds or anything and my haematology nurse has ordered a blood film with my next blood test to see if they are clumping and causing a falsely
Otterfield
in
MPN Voice
3 years ago
Leukaemia Care and Lymphoma Action - CLL treatment update webinars – 26th April and 5th May 2021
It has been a good start to the year with several new CLL treatments being approved or approaching approval in UK countries. Leukaemia Care and Lymphoma Action are pleased to provide two joint CLL webinars to help with understanding the increasingly complex picture of CLL treatment and options for different
It has been a good start to the year with several new CLL treatments being approved or approaching approval in UK countries. Leukaemia Care and Lymphoma Action are pleased to provide two joint CLL webinars to help with understanding the increasingly complex picture of CLL treatment and options for different
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
1
...
39
40
41
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1634 results
MPN Voice
795 results
Leukaemia Support
171 results
View top 10 communities
Sort by
Most Relevant
Newest