Just had blood work completed and numbers are higher than last month still in normal range. Been on 20 for three weeks rheumatologist wants me on 17.5. I believe I need another week on 20 at least. Started Prolia for bones three weeks ago and the side effects are achy body and lowEr abdominal pain with gas and bloating. Can't tell if the stomach issues are the reason the CRP and esr have risen. Have had bowel issues for a long time but have managed. Colonoscopy was unsuccessful due to twisted bowel and tight muscles. Virtual colonoscopy a total failure. Also significant other having lung surgery Tuesday. Very serious surgery and I am scared and stressed.
In addition I was just told I would be funded for Actemra. I think it best not to start a new drug with this stressed out situation as well as my own stomach pain. But speaking with people that have been on Actemra it seems to be quite helpful in reducing. And some folks just cannot handle the side effects. Would like to know in your opinion am I doing the right thing? Or should I just not the start the drug since I have been given this wonderful opportunity? My history with prednisone goes back to 40 mg July 2015. I have been on high doses for GCA for a very long time and reducing very slowly. I had one relapse and went from 20 back up to 40 (blood elevation only not pain) and basically started all over again. Would like an opinion please. Thank you.