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Actemra fatigue
I’ve been giving myself my
Actemra
injection every Monday morning at 7:00 am. By 10:00 I feel like a freight train has hit me- not sick just really tired. I’m thinking maybe I should inject at night. Anyone else feel like this? Is it alright to inject at night?
I’ve been giving myself my
Actemra
injection every Monday morning at 7:00 am. By 10:00 I feel like a freight train has hit me- not sick just really tired. I’m thinking maybe I should inject at night. Anyone else feel like this? Is it alright to inject at night?
Blackcatlover
in
PMRGCAuk
4 years ago
Eye surgery And Actemra.
Opthomologist says ok to do
Actemra
right away. Neurologist says when eyes are “totally healed” do next
actemra
. The Opthomologist gave me eye drops for 5 days. Ok. Who to follow? Have waited two days. Would you wait 5. Or just go ahead. Thanks.
Opthomologist says ok to do
Actemra
right away. Neurologist says when eyes are “totally healed” do next
actemra
. The Opthomologist gave me eye drops for 5 days. Ok. Who to follow? Have waited two days. Would you wait 5. Or just go ahead. Thanks.
alvertta
in
PMRGCAuk
4 years ago
Actemra Injection
I just gave myself my fourth
Actemra
injection with the automatic injector pen. The first three went perfectly. Just a small red dot at the site for about an hour with very little soreness. As I was giving this injection, the pen slipped a little but I moved it back and gave the injection.
I just gave myself my fourth
Actemra
injection with the automatic injector pen. The first three went perfectly. Just a small red dot at the site for about an hour with very little soreness. As I was giving this injection, the pen slipped a little but I moved it back and gave the injection.
Blackcatlover
in
PMRGCAuk
4 years ago
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Muscle spasm
Is this a side effect of
Actemra
?
Is this a side effect of
Actemra
?
alvertta
in
PMRGCAuk
4 years ago
Monitoring needs re Actemra TCZ
Hi I have seen a reference to at least monthly blood tests, but can't find my own notes. What should we request in terms of monitoring/testing for danger signals while taking TCZ ? Thanks.
Hi I have seen a reference to at least monthly blood tests, but can't find my own notes. What should we request in terms of monitoring/testing for danger signals while taking TCZ ? Thanks.
Sefu
in
PMRGCAuk
4 years ago
No Actemra...No new issues😊
She was given
Actemra
weekly and is now taking it every three weeks and soon off.
She was given
Actemra
weekly and is now taking it every three weeks and soon off.
Grammy80
in
PMRGCAuk
4 years ago
How to lose fat while taking Actemra biological for R A
How can I lose fat while taking the biological
Actemra
for RA?
How can I lose fat while taking the biological
Actemra
for RA?
bpavlantos
in
NRAS
4 years ago
Accents question
Is it just your CRP which has been inhibited while taking
Actemra
and now starts to rise again ?I also have PMR so that could affect the CRP Just wondering I know it is a good question for my rheumatologist but not scheduled til November Thanks
Is it just your CRP which has been inhibited while taking
Actemra
and now starts to rise again ?I also have PMR so that could affect the CRP Just wondering I know it is a good question for my rheumatologist but not scheduled til November Thanks
Darcy2000
in
PMRGCAuk
4 years ago
Not accents but Actemra
Sorry damn auto correct
Sorry damn auto correct
Darcy2000
in
PMRGCAuk
4 years ago
Starting actemra this month
I have been approved for
actemra
starting this month. I have had GCA since October 2018. Started at 60prednisone. Reduced to 9 by July 5 2020. Then lost 1/3 of my eye sight in my right eye overnight on July 6. Up to 50. Now at 39.
I have been approved for
actemra
starting this month. I have had GCA since October 2018. Started at 60prednisone. Reduced to 9 by July 5 2020. Then lost 1/3 of my eye sight in my right eye overnight on July 6. Up to 50. Now at 39.
alvertta
in
PMRGCAuk
4 years ago
GCA patient saw cardiologist yesterday, med changes
Problem is that he gets a mouth breakout every 3 months it seems a day or two after
Actemra
shot. Does anyone out there experience this. He luckily has a lidocaine/mouth swish and spit and a mouth paste pain reliever that usually turns it around quickly.
Problem is that he gets a mouth breakout every 3 months it seems a day or two after
Actemra
shot. Does anyone out there experience this. He luckily has a lidocaine/mouth swish and spit and a mouth paste pain reliever that usually turns it around quickly.
weatherman69
in
PMRGCAuk
4 years ago
Actemra inj 200 mg instead of 162 mg - Is it OK for GCA ?
Am on prednisone and
Actemra
since 2019. We now have
Actemra
200 mg inj alone available where I live . So then is it ok to take 200 mg instead of the standard 162 mg injection ? Anyone who has done this ? TIA
Am on prednisone and
Actemra
since 2019. We now have
Actemra
200 mg inj alone available where I live . So then is it ok to take 200 mg instead of the standard 162 mg injection ? Anyone who has done this ? TIA
Iwillwin123
in
PMRGCAuk
4 years ago
Good news and Great news~!!!
The good news is after being taken off
Actemra
because of the staph infection in my leg, I have had no ill effects or symptoms of the GCA. My belly feels better too. I am still taking 12 mg of Prednisolone each morning and things seem to be going well. I see enough for sure.
The good news is after being taken off
Actemra
because of the staph infection in my leg, I have had no ill effects or symptoms of the GCA. My belly feels better too. I am still taking 12 mg of Prednisolone each morning and things seem to be going well. I see enough for sure.
Grammy80
in
PMRGCAuk
4 years ago
Chiropractor culprit
I’m taking 4mg of Prednisone and give myself
Actemra
injections. I have no blurred vision or sign of enlarged veins near my eye. I do also have Occipital Neuralgia. Most of my pain is on the top and sides of my head. Jaw hurts but no claudication- chewing gum test. Sorry to go on so long.
I’m taking 4mg of Prednisone and give myself
Actemra
injections. I have no blurred vision or sign of enlarged veins near my eye. I do also have Occipital Neuralgia. Most of my pain is on the top and sides of my head. Jaw hurts but no claudication- chewing gum test. Sorry to go on so long.
Blackcatlover
in
PMRGCAuk
4 years ago
Failure with multiple biologics for RA
Now on
Actemra
and it’s not working much either. Is there anything that can work for me??? My doc said the flare up should be 3 months and it’s been well over a year...
Now on
Actemra
and it’s not working much either. Is there anything that can work for me??? My doc said the flare up should be 3 months and it’s been well over a year...
Esti
in
Behçet's UK
4 years ago
Need clarification
I have been on
Actemra
for three years having 4mg of
Actemra
per kilogram weight administered by IV every twenty eight days. When doing 8mg of
Actemra
per kilogram weight I had all kinds of issues so for the last year and half it’s been 4mg.
I have been on
Actemra
for three years having 4mg of
Actemra
per kilogram weight administered by IV every twenty eight days. When doing 8mg of
Actemra
per kilogram weight I had all kinds of issues so for the last year and half it’s been 4mg.
Blackcatlover
in
PMRGCAuk
4 years ago
Scared of drugs. Take pred as no choice there. Now waiting for approval for actemra.
After much research I think the side effects are extreme and I am not willing to give it a try. Has anyone else rejected this treatment. ? I do ok on pred so I think over time the GCA will burn out As I think the PMR already has. Over the phone I also agreed to a yearly infusion of a biphosphonate as
After much research I think the side effects are extreme and I am not willing to give it a try. Has anyone else rejected this treatment. ? I do ok on pred so I think over time the GCA will burn out As I think the PMR already has. Over the phone I also agreed to a yearly infusion of a biphosphonate as
Chopin002
in
PMRGCAuk
4 years ago
I’m sort of back ....have missed you.
The rheumy took me off the
Actemra
. They put medicated packing in my knee and changed it daily at first, now 3 times a week. It is much more comfortable. Sadly I could not go to Canada to see my grands, I couldn’t take the chance of my knee blowing up there.
The rheumy took me off the
Actemra
. They put medicated packing in my knee and changed it daily at first, now 3 times a week. It is much more comfortable. Sadly I could not go to Canada to see my grands, I couldn’t take the chance of my knee blowing up there.
Grammy80
in
PMRGCAuk
4 years ago
GCA diagnosis, but no high dose steroids.
Pred and waiting for approval for
actemra
. Not sure what I would have to pay but 2 grand a month won’t be happening, I asked about high dose pred and apparently the new literatures discourages that. Live in Canada and have never heard anyone not given high dose pred .
Pred and waiting for approval for
actemra
. Not sure what I would have to pay but 2 grand a month won’t be happening, I asked about high dose pred and apparently the new literatures discourages that. Live in Canada and have never heard anyone not given high dose pred .
Chopin002
in
PMRGCAuk
4 years ago
Actemra querie
Hello Everyone, I saw my Rheumatologist today and she is a little concerned about my very low white blood cell count, (heading into neutropenia territory), and so she is changing my tocilizumab jabs to fortnightly. She doesn’t think it will make a difference to my inflammation, which is in “normal”
Hello Everyone, I saw my Rheumatologist today and she is a little concerned about my very low white blood cell count, (heading into neutropenia territory), and so she is changing my tocilizumab jabs to fortnightly. She doesn’t think it will make a difference to my inflammation, which is in “normal”
LemonZest11
in
PMRGCAuk
4 years ago
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