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Resuming Actemra... but now foot and leg pain. Any thoughts?
I had to stop
Actemra
for a month because of illness and have had a rough time resuming the injections.
I had to stop
Actemra
for a month because of illness and have had a rough time resuming the injections.
GratefulBailey
in
PMRGCAuk
4 years ago
Atemra injections
Hi, is anyone on the
Actemra
injection for PMR? I went from prednisone, to Embrel and now Atemra . I now can walk 2 to 3 miles with some pain and stiffness but have leg pain the next day. I do suffer at night with shoulder and arm pain. I never know how I will feel from one day to the next.
Hi, is anyone on the
Actemra
injection for PMR? I went from prednisone, to Embrel and now Atemra . I now can walk 2 to 3 miles with some pain and stiffness but have leg pain the next day. I do suffer at night with shoulder and arm pain. I never know how I will feel from one day to the next.
mpl615
in
PMRGCAuk
4 years ago
GCA & Shingrix vaccine
I am on 10 mg prednisone, boniva for osteoporosis,
Actemra
& Dexilant. Rheumatologist said he wants me to do the 2 part vaccine. He also said, "It could make you sick but I want you to do both parts anyway."
I am on 10 mg prednisone, boniva for osteoporosis,
Actemra
& Dexilant. Rheumatologist said he wants me to do the 2 part vaccine. He also said, "It could make you sick but I want you to do both parts anyway."
Spanky2019
in
PMRGCAuk
4 years ago
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Another Actemra question
I realize this is a question for my Dr but not seeing him for a month .Feeling heady and pressure in head and hopefully this side effect wanes .Has anyone who has been on
Actemra
has their dosage reduced to once every 2 weeks instead of once a week and if so So did it help with side effects .Definitely
I realize this is a question for my Dr but not seeing him for a month .Feeling heady and pressure in head and hopefully this side effect wanes .Has anyone who has been on
Actemra
has their dosage reduced to once every 2 weeks instead of once a week and if so So did it help with side effects .Definitely
Darcy2000
in
PMRGCAuk
4 years ago
Actemra side effects
Will check with my Rheumy in 3 weeks but just wondering if anyone had side effects from
Actemra
and wondering if the Med has an an accumulative affect . First 3 weeks had no signs but tonight real light headedness
Will check with my Rheumy in 3 weeks but just wondering if anyone had side effects from
Actemra
and wondering if the Med has an an accumulative affect . First 3 weeks had no signs but tonight real light headedness
Darcy2000
in
PMRGCAuk
4 years ago
PET CT Scans and what feels like 'interminable' GCA
I tried recently here in OZ to see if I might be eligible on our PBS for
Actemra
- BUT "NO !!"
I tried recently here in OZ to see if I might be eligible on our PBS for
Actemra
- BUT "NO !!"
Rimmy
in
PMRGCAuk
4 years ago
Actemra and reducing prednisone
Hi Everyone I have had my 5th
actemra
weekly injection. I reduced my pred. from 15mg to 14&1/2 mg. I have been on the 14&1/2 for 5 days and I started getting hip stiffness and pain. I took the 1/2 mg and within hours the pain subsided.
Hi Everyone I have had my 5th
actemra
weekly injection. I reduced my pred. from 15mg to 14&1/2 mg. I have been on the 14&1/2 for 5 days and I started getting hip stiffness and pain. I took the 1/2 mg and within hours the pain subsided.
Linny3
in
PMRGCAuk
4 years ago
Actemra question
Started
Actemra
2 weeks ago on a weekly basis for GCA/PMR .My CRP which was hovering between 30 to 40 has dropped to 2.7 ...does this appear normal? I Am on 15 mg Pred with plans to start tapering .
Started
Actemra
2 weeks ago on a weekly basis for GCA/PMR .My CRP which was hovering between 30 to 40 has dropped to 2.7 ...does this appear normal? I Am on 15 mg Pred with plans to start tapering .
Darcy2000
in
PMRGCAuk
4 years ago
Another Actemra question
Not seeing my Rheumy til September so thought I would ask this question After you finish your year with
Actemra
does the CRP start To climb again if your GCA is not in remission? In regards to GCA I am pretty symptom free so just wondering how they determine if the GCA is in remission
Not seeing my Rheumy til September so thought I would ask this question After you finish your year with
Actemra
does the CRP start To climb again if your GCA is not in remission? In regards to GCA I am pretty symptom free so just wondering how they determine if the GCA is in remission
Darcy2000
in
PMRGCAuk
4 years ago
Medicare coverage question!
They informed me that
Actemra
infusion is not paid by Part B.. It is paid by Part D (pharmacy)??? Huh? My out of pocket cost could be up to 33% of the
Actemra
infusion? $14,000 my cost monthly? What? Makes no sense! I called Medicare.. They told me it covered by Part B..
They informed me that
Actemra
infusion is not paid by Part B.. It is paid by Part D (pharmacy)??? Huh? My out of pocket cost could be up to 33% of the
Actemra
infusion? $14,000 my cost monthly? What? Makes no sense! I called Medicare.. They told me it covered by Part B..
Swannrise
in
PMRGCAuk
4 years ago
Funny Actemra experience
Last night was my third
Actemra
shot. This morning I was in less pain and had a lot more energy than usual. I went out early this morning and washed my car windows. Then I took windex cleaner (that you attach to a garden hose) and cleaned all but 2 of my house windows on the outside.
Last night was my third
Actemra
shot. This morning I was in less pain and had a lot more energy than usual. I went out early this morning and washed my car windows. Then I took windex cleaner (that you attach to a garden hose) and cleaned all but 2 of my house windows on the outside.
Linny3
in
PMRGCAuk
4 years ago
Actemra
My doctor has been trying to get me on
Actemra
for months. I finally agreed to try it IF I could get a blood test for possible IL-6 involvement. I am sitting in the lab at this moment waiting for the blood draw.
My doctor has been trying to get me on
Actemra
for months. I finally agreed to try it IF I could get a blood test for possible IL-6 involvement. I am sitting in the lab at this moment waiting for the blood draw.
Manchild
in
PMRGCAuk
4 years ago
Actemra twist
Looking into weekly
Actemra
injections that I can give myself. Wondering if there is a knack to this or if anyone has a some helpful info.
Looking into weekly
Actemra
injections that I can give myself. Wondering if there is a knack to this or if anyone has a some helpful info.
Blackcatlover
in
PMRGCAuk
4 years ago
Question To those taking Actemra
I am wondering how long you were on
Actemra
before decreasing the prednisone? Thanks
I am wondering how long you were on
Actemra
before decreasing the prednisone? Thanks
Linny3
in
PMRGCAuk
4 years ago
Starting Actemra
On Wednesday I am starting
Actemra
and I realize that ideally no alcohol is the right prescription. I do like a couple of glasses of wine with dinner any real issues with that ? Googled it but nothing really negative to say
On Wednesday I am starting
Actemra
and I realize that ideally no alcohol is the right prescription. I do like a couple of glasses of wine with dinner any real issues with that ? Googled it but nothing really negative to say
Darcy2000
in
PMRGCAuk
4 years ago
Ro-Actemra/Tocilizumab Patients advice/ experiences please.
I am on Tocilizumab ( for GCA with Pred) ( 13th self administered injection due Friday). I have had a cold type virus for a week that seems to have eased off now. For some weeks I have had a swollen watering right eye and an infection in one nostril ( same side). I have now developed an ulcer type sore
I am on Tocilizumab ( for GCA with Pred) ( 13th self administered injection due Friday). I have had a cold type virus for a week that seems to have eased off now. For some weeks I have had a swollen watering right eye and an infection in one nostril ( same side). I have now developed an ulcer type sore
SheffieldJane
in
PMRGCAuk
4 years ago
REMISSION!
I was one of of the first to take
Actemra
and really fought with myself about doing so. Thank God I did.
Actemra
allowed me quickly taper down Prednisone to 7MG then I continued with the "Dead slow and nearly stop reduction plan".
I was one of of the first to take
Actemra
and really fought with myself about doing so. Thank God I did.
Actemra
allowed me quickly taper down Prednisone to 7MG then I continued with the "Dead slow and nearly stop reduction plan".
Marie1479
in
PMRGCAuk
4 years ago
Starting Actemra this week
I was Wondering
Actemra
can also help the PMR. I am currently on 15 mg of Prednisone for the PMR.
I was Wondering
Actemra
can also help the PMR. I am currently on 15 mg of Prednisone for the PMR.
Darcy2000
in
PMRGCAuk
4 years ago
Preventing Heart Disease When You Have Rheumatoid Arthritis: Which Tests Do You Need?
IL-6 inhibitors include such as tocilizumab (
Actemra
) and sarilumb (Kevzara).
IL-6 inhibitors include such as tocilizumab (
Actemra
) and sarilumb (Kevzara).
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Rheumatoid Arthritis and Heart Disease: Why You’re at Increased Risk
adalimumab (Humira), certolizumab pegol (Cimzia), etanercept (Enbrel), golimumab (Simponi and Simponi Aria), and infliximab (Remicade), Other medications like JAK inhibitors [such as tofacitinib (Xeljanz), baricitinib (Olumiant), and upadacitinib (Rinvoq) and IL-6 inhibitors [such as tocilizumab (
Actemra
adalimumab (Humira), certolizumab pegol (Cimzia), etanercept (Enbrel), golimumab (Simponi and Simponi Aria), and infliximab (Remicade), Other medications like JAK inhibitors [such as tofacitinib (Xeljanz), baricitinib (Olumiant), and upadacitinib (Rinvoq) and IL-6 inhibitors [such as tocilizumab (
Actemra
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
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