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Acetic acid
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GCA confirmed after Ear pain
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
Just to let you know that the result of my temporal artery biopsy has been confirmed as positive today. I had the biopsy on monday, just 3.5 weeks after initially going to the GP with earache. I am amazed actually as it was a result of knowledge on this forum that prompted me to go back to my GP, after
kalgoorlie
in
PMRGCAuk
7 months ago
Alendronic Acid and Methotrexate
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
I've had PMR for about two years. All symptoms vanished completely as soon as I was put on Prednisolone (15mg per day), but I had a bad experience with trying to reduce, as advised by both GPs and my rheumatologist, by large cliff-edge steps--from 15mg to 12.5mg, then 10mg, all in a very few weeks.
PressBarVet
in
PMRGCAuk
7 months ago
Osteoporosis
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
I had PMR from 2016-2019. Took Alendronic Acic for about 6 weeks but stopped because it was affecting my throat. Had bone density scan around 2017 which showed some osteoporosis and some osteopenia (record has been lost due to GP/house move). I was offered an Infusion of AA which I had in 2017/2018.
Urtica
in
PMRGCAuk
7 months ago
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Alendronic acid
I’ve just achieved the slow taper down to 3mg and am feeling fine. But I’m just wondering about how long to stay on the AA for. (I’m taking into account the trauma of snapping a tooth off last night (a front one) when biting into a square of chocolate and not being able to see a dentist until Wednesday
I’ve just achieved the slow taper down to 3mg and am feeling fine. But I’m just wondering about how long to stay on the AA for. (I’m taking into account the trauma of snapping a tooth off last night (a front one) when biting into a square of chocolate and not being able to see a dentist until Wednesday
Doraflora
in
PMRGCAuk
7 months ago
Alendronic acid
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Hello So I’ve had another telephone consultation from the latest GP saying my bloods are fine (not raised) 🙄 yes I know!! I’m tapering myself DDS and on 12.5mgs at present . I was initially diagnosed Dec 21 - and had got down to 9mg but Nov 22 had a flare and had to go back up to 15mgs - I’ve now been
Mercat
in
PMRGCAuk
7 months ago
severe osteoporosis and op drugs
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
is there people on here with L5 t12 who don't take any op drugs and take the risks of fractures, when I was dx I was told I must have zoledronic acid infusion to help me followed by prolia, I thought I was doomed unless I had treatment, I asked for another dexa scan before my 2nd infusion on the 25th
Radars
in
Bone Health and Osteoporosis UK
7 months ago
Update: Tooth Extraction delayed because of risks while on Alendronic Acid
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
my dentist now informs me that having digitised my tooth X-ray and reconsidered, it could be saved with root canal treatment by a specialist, cost £800 to £1000, starting with a consult of £100. Alternatively I could proceed with extraction, however he will not do it, he would refer me to an NHS hospital
Thiago1396
in
PMRGCAuk
7 months ago
Revisiting the Zoledronic acid pros & cons
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
Hi folks, I was offered zoledronic acid two years ago and was so freaked out by possible side effects that I declined. At the time I was at a much lower dose of Pred and naively thought I would be off it by now, that my calcium absorption would return to normal and I'd be able to rebuild my bones naturally
strawclutching
in
PMRGCAuk
8 months ago
worst fears seem to be coming true.
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Angelicspirit
in
Bone Health and Osteoporosis UK
8 months ago
trypsin & Parkinson
I have been diagnosed with Parkinson 2 years now. In 2019 i did a food intolerance test and it was low in trypsin. Trypsin is a protease enzyme that’s produced in the pancreas. It helps to break down proteins into amino acids, which issues an important part of the digestion process. Could this be
I have been diagnosed with Parkinson 2 years now. In 2019 i did a food intolerance test and it was low in trypsin. Trypsin is a protease enzyme that’s produced in the pancreas. It helps to break down proteins into amino acids, which issues an important part of the digestion process. Could this be
Edge999
in
Cure Parkinson's
11 days ago
Could two amino acids be the missing link?
I posted this in a reply but to me this information was exciting so I wanted to post on a new post also. I have posted before that Fish oil Supplement triggered me off after almost a year of no AF. Everything I read says Fish Oil should be taken, so why does it trigger me? I am currently
I posted this in a reply but to me this information was exciting so I wanted to post on a new post also. I have posted before that Fish oil Supplement triggered me off after almost a year of no AF. Everything I read says Fish Oil should be taken, so why does it trigger me? I am currently
Peacefulneedshelp
in
Atrial Fibrillation Support
12 days ago
Would Amino Acids Help?
This popped up on Facebook this morning. I know it's an ad but a lack of amino acids affecting the liver's processing ability makes sense to me. Has anybody tried amino acid supplements? I'd be grateful for any views on this. https://www.naturalmedicine.blog/blogs/news/solution-for-hypothyroidism
This popped up on Facebook this morning. I know it's an ad but a lack of amino acids affecting the liver's processing ability makes sense to me. Has anybody tried amino acid supplements? I'd be grateful for any views on this. https://www.naturalmedicine.blog/blogs/news/solution-for-hypothyroidism
Canta
in
Thyroid UK
12 days ago
Interesting Alzheimer's paper provides alternative explanation regarding the mode of action of monoclonal antibodies such as lecanemab.
"For decades, the prevailing theory in the field has stated that a protein made up of 42 amino acids called amyloid-beta 42 (Aβ42) hardens into clumps called amyloid plaques, and those plaques damage the brain, causing Alzheimer's disease." "Led by UC's Alberto Espay, MD, the team have hypothesized
"For decades, the prevailing theory in the field has stated that a protein made up of 42 amino acids called amyloid-beta 42 (Aβ42) hardens into clumps called amyloid plaques, and those plaques damage the brain, causing Alzheimer's disease." "Led by UC's Alberto Espay, MD, the team have hypothesized
jeffreyn
in
Cure Parkinson's
13 days ago
Drug combinations
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
Hi all, I wonder if anyone on the forum is taking both Thyroxine and Alendronic Acid (AA)? I am taking a cocktail of drugs, as so many of us are, but have put off taking AA since diagnosed with PMR in 2022 - cannot believe where those 2 years went... I've been on Thyroxine (150 mcg/daily) for nigh
tempusfugi
in
PMRGCAuk
8 months ago
Tooth Extraction delayed because of risks while on Alendronic Acid
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Went for a molar tooth extraction yesterday. It had cracked at the side of an old filling and extraction is the only option. When I told the Dentist I was on Riveroxyban, Steroids and Alendronic Acid, he immediately told me that my extraction will have to be delayed for at least several months while
Thiago1396
in
PMRGCAuk
8 months ago
Well at least that’s one less thing to worry about.
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
I’m so pleased to learn that my recent dexa scan after seven years of prednisolone is normal and unchanged from three years ago. Not being a pill popper before diagnosis I have struggled to take the calcium and Vit D supplement and Alendronic Acid which were prescribed as routine by my GP. A dexa scan
Zebedee44
in
PMRGCAuk
8 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
8 months ago
is everyone else not getting diagnosed or much treatment?
I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the pad which did nothing. I took naproxen 500mg which used to completely block my pain but now only stops it being severe. More recently I’ve been
I’ve had severe period pain for years, when I wasn’t taking painkiller in time I would be sick and feel faint. I have tried paracetamol and ibuprofen in the pad which did nothing. I took naproxen 500mg which used to completely block my pain but now only stops it being severe. More recently I’ve been
pinkie25
in
Endometriosis UK
8 months ago
Vitamine C and a flare-up?
Hello to everyone. I feel that a very large dose of vitamine C has caused my present flare and I'm just wondering if anyone else has been in this situation. I've had RA for over 30 years and after the first year or two in has settled in my hands, wrists, feet and ankles, so I consider myself lucky.
Hello to everyone. I feel that a very large dose of vitamine C has caused my present flare and I'm just wondering if anyone else has been in this situation. I've had RA for over 30 years and after the first year or two in has settled in my hands, wrists, feet and ankles, so I consider myself lucky.
Mardie
in
NRAS
2 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
8 months ago
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