Raynauds in tongue?

[Lupdaloop]

I am just waiting for blood tests to confirm but I have Raynauds in my fingers and also my tongue,very interested to hear from others as I'm finding it hard to get any info on the tongue ,many thanks

[lynbw]

Hi Lupdaloop ,yes this is quite common myself and daughter have it

[Lupdaloop]

Hi, than you for reply lynbw , I'm sorry to hear that both you and your daughter have this, I have only started getting it in my tongue this winter, it's painful and quite scary , it paralyses my tongue and I can't talk and swallow. Do you only get it in winter or when you are exposed to cold weather, or does it occur any time? My finger went yesterday and I didn't even feel cold? Thanks again for replying, I've looked on the www and can't seem to find much out.

[MikefromsouthNZ]

Hi Lupdaioop, I have ray's in feet and hands all year, but I also get ray's in my lips in the colder months.. I wrap a warm scarf over my mouth and nose if I go out in cold conditions, as keeping my face warm does help tremendously.. I also have Cerebral Palsy so both my chewing and swallow are affected and poorly coordinated too (it's called Dysphagia), So I often bite my tongue while eating, so I can sympathise with your tongue having ray's.. Oral hygiene is extremely important, as is mouthwashes after meals.. My speech therapist has taught me heaps of tips on safe eating and swallowing techniques, plus help on drinking hot & cold drinks.. She's also very helpful showing me ways of talking better.. So if you are finding it difficult to get your tongue to work properly, it may be worth your while talking with a speech therapist..

Please, If you have any specific questions you would like to ask I'm only too pleased to help..

[AngelaO46]

The only medications I've found that stops my Raynaud's in my tongue is Captopril. I still get it in my hands & feet, yet not as nearly as much or as bad as without taking the meds but never get it any more in my tongue unless I run out of the Captopril. (I take 12.5mg 3 to 4 times a day depending on the weather)

I hope this is of some help for you.