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Scleroderma & Raynaud's UK (SRUK)

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Raynauds

Lisa_Lovatt profile image
11 Replies

Does anyone with raynauds know how I can keep my legs abit warmer when I go out as the cold seems to affect my legs more, I do get pains in my hands and arms aswel but my legs seem to hurt more I went out Friday night for a few hours kept going in the cold and back in the warm and soon a I got home my legs started killing me even more, I couldn't sleep and was just wondering if anyone has any clues on how to keep them abit warmer. Thanks!

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Lisa_Lovatt profile image
Lisa_Lovatt
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11 Replies

Try wearing thermal long john's or thick wool tights. I have an electric blanket which i turn on for an hour before getting into bed. It keeps me really warm. Wishing you well. Nuala

Lisa_Lovatt profile image
Lisa_Lovatt in reply to

Do you know where I can get them thermal long johns from? Ohright do you that sounds like a good idea think I need to get one of them to keep me warm at night now it's winter as my heating don't work I have to use a fan heater to keep me warm and thanks.

uknlv profile image
uknlv

I get mine online from Damart, their web address is damart.co.uk They have a really nice selection and they are well made and comfortable.

Irene55 profile image
Irene55

Marks and Spencer's has some good ones too. Also, camping shops have them and they are not all bulky and ugly.

cookie74 profile image
cookie74

asda ave them for 6 quid,, also aldi was selling them vest,,leggins,,gloves,,hats,,boots, brought from germany, which was good price for the make,,x

Yorky profile image
Yorky

Hello, cold legs are a major problem with me. I wear thermal leggings all year, 2 pairs in winter under wool lined trousers. I like the "heat retaining" ones from

M&S, not that I find them particularly heat retaining, but they are a good fit, don't go baggy or slide down, They are also quite silky, so easy to pull other layers over. I even wear them at night. I mentioned my cold legs to my consultant, who thought I should see a vascular surgeon, my appointment is on Friday. I saw one about 10 years ago, who just felt the pulses in my feet and said I was OK, so I'm really expecting the same again. I have noticed that when I have my monthly Iloprost, I get the restless legs which many other sufferers have, so I suppose the Iloprost must be having some effect.

Roamer profile image
Roamer

I picked up some Helly Hansen "Warm" Base Layer leggings from Cotswold Outdoor a couple of weeks ago. They're merino wool and suitable for use to minus 30 degrees. They just look like black leggings and are very comfy :-) ...they were half price as well which is always a bonus!

pcokfarm profile image
pcokfarm

I love my thermal lined jeans from Cabellas.

milliemooga63 profile image
milliemooga63

Hi I always wear thick woolly tights, thermal socks and trousers during the coldest months of the year, when I've been out in the cold I usually have a warm bath to relax my muscles and often wear bed socks in bed. I hope this advice helps you as it has me.

Strauser2 profile image
Strauser2

I also have recently been diagnosed with Raynauds. Like Yorky, my legs and feet are the biggest problem. I am always cold and I live in Hawaii and I use an electric blanket in 80 degree weather. People think I am crazy but it is the only thing that keeps me warm. There are times when I am so cold that every bone in my body aches and nothing seems to help the pain. I went to the grocery store where the air conditioner was set too low tonight and within two minutes the pain was unbearable, I ended up leaving the groceries and since coming home I have been in so much pain. I have a rheumatologist visit on Jan 21st as I have seen a neurologist and she suspects possible lupus and my PCP doctor has run a battery of tests ,all of which came back normal with the exception of a slightly elevated ANA titwr. so I am praying for some answers on how to relieve this problem as it can be debilitating. I saw a post about seeing a vascular specialist and I wanted to know what other vascular issues and symptoms others have had ?I am beginning to think my PCP doctor thinks I am crazy as he prescribed me cymbalta. He said this would help with the pain and anxiety I have been having, but I am hesitant on taking this type of medication due to the serious side effects. Does anyone else take this for raynauds?

MNJones76 profile image
MNJones76

I would suggest thermal underwear as well. L.L. Bean has some great ones. Also try under armour, they retain heat and wick away moisture.

At night use a heating mattress pad and an electric blanket on top of you. That way you get heat from both sides. Good luck

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