I was diagnosed with severe Raynauds several years ago and was diagnosed with schleroderma about 2 years ago. The scleroderma hit my internal organs more than it did my skin. My rheumatologist recommened that I set up an appt with Dr. Robert Simms at the Boston Medical Center as his team specializes in only scleroderma. He spends several hours with you on your first visit and for every visit thereafter he spends as much time with you as you need re: discussing options, or any questions you may have. Again, this is all his team specializes in so you know you are getting the best as this is his number one focus. He works with all of your doctors making sure every complaint, ailment, etc. is being recognized. The scleroderma hit my upper and lower GI as well as my lungs. I have been on chemo for almost two years with great results. There are several types of chemo treatment and the one I went on had no real side-affects to complain about and it also stopped the progression of the disease and even reversed some of the damage. I live a normal life - with the exception of all the meds I take - but I can't complain as I was able to get back to my normal daily activities again.
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