I have been suffering with Raynauds since I was about 12 and I am 21 now. I was diagnosed when I was 15 but never told much about it and I have never had a good rapport with my doctors for understanding the condition or giving any information about it. Its now getting to a point where I get attacks alll the time now its cold and as I am an art university student, I am under a lot of pressure to create work, this involves putting my hands under stress pretty much 24/7.
I am currently finding it very hard to create work as my hands are my tools and they are flaring up all the time, I suffered from 14-16 with multiple chillblains on my fingers and toes which has left my little fingers crooked as I was unable to bend my fingers properly. Fortunately I have been lucky for this stopped when I put on weight and perhaps somethign to do with hormonal changes. But since September this year, my raynauds has been increasingly harder to control and I feel its taking it out on my body when I am asleep as finding I am very stiff in the morning, my joints crack and I wonder if this is to do with I am tensing my muscles to retain heat?
I havent ever found anyone who understands raynauds, I havent really spoken out about it so I hope by me joining the RSA site will give me an opputunity to communicate with others who suffer and also to stop me feeling like I am so alone in this. I recently had blood tests to check my inflammatory levels as I have begun over the last year to have increasing 'pain', only describe it as dull aches that radiate through the joints. These have come back negative and I was relieved but now its like where do i go from here, I havent told my tutors about my condition and suffer in silence with true British spirit, I grit my teeth and get on with it but now feel its my time to step out the shadows, fed up with getting on with it, its not working, I had a 10 hour attack today, watched my hands go from their most normal colour to bluish mauves with tints of orange like fish skin then like normal when i get attack, my hands are freezing but clammy and I was in a 4 hour critique of work produced in my printmaking class and I wanted to cry. It was so uncomfortable, I was trying to relieve the pressure by raising my hands a bit to let the blood drop but like an egg timer, the colour flows back to an angry red, fingers feel swollen and burn, that horrible burning sensation that makes me want to stick my hands in cold water, the idea ironic as that starts process again.
So I have tried ginkgo biloba but it didnt do anything and I felt I was just popping pills so next step for me is trying ginger treatment again..cant stand the taste but if it works it works, going home for christmas and looking forward to trying a black pepper massage Any feedback appreciated, just needed to voice