Scleroderma & Raynaud's UK (SRUK)
7,048 members3,354 posts

Scleroderma

Reaching out to everyone in the UK with scleroderma

Hello all

I want to get as many people with scleroderma together as I can for a meeting/support session. The session should enable everybody to discuss their journeys so far and talk to people who are going through the same as you. Once I have a list of people's location, I can try and find a suitable meeting point and hopefully be able to book a room somewhere for us to meet in for the day.

If you are interested in meeting, please email: memyselfsclero@hotmail.com with your name and location and we will go from there.

Thank you for your support

15 Replies
oldestnewest

Sounds good to me.

Reply

Sounds interesting will do.

Reply

Sounds good to me

Reply

Sounds like a plan! I am Nottingham/East Midlands region.

Reply

Sounds good I am in the east Midlands region

Reply

Hello am Joan i have Scleroderma i have it for about 6 years now,,i live in BISHOP AUCKLAND CO ,DURHAM.I would like to join ...thank you joan please let me no..

Reply

proffishopper

Hello my name is Linda I was diagnosed with Scleroderma about three years ago. I live in North Nottinghamshire, interested in your suggestion

Reply

Hi I'm in Leeds Yorkshire. I would like to join in too. I'll email

Reply

I live near Tamworth in the Midlands. I am in.

Reply

I have emailed you but as others have replied on this site I will add my county is in Cheshire, or Lancashire pre 1974.

Reply

Hi all. We think it is a wonderful thing that you would all like to meet up. We would be grateful if gucci_17 could email lucy@raynauds.org.uk to chat about this please and we can help support you to take this further. We do have regional groups so can put you in touch with other scleroderma patients as we fully encourage patient support groups.

The RSA would like everyone to bear in mind personal safety if and when meeting up.

Thanks

1 like
Reply

Good idea

I have limited and live in south wales

Reply

Hello

I am very interested and live in the West Midlands

Reply

I am in castleford in West Yorkshire. And would love to hear how other people cope with it

Reply

I live in castleford west yorkshire

Reply

You may also like...