Spikes in blood pressure anyone else?

[JuliannaGrandinetti]

I have been trying to ignore symptoms of a pounding heart rate, slight headache, random muscle tension/cramps, dizziness, fever (>99), and fatigue. To be honest this has been going on (onset late evening lasting 6 hours) for a few months. I had no idea all that added up to a spike in blood pressure. My specialist at Emory has made clear to the importance of monitoring my oxygen levels, pulse and blood pressure. All three are all over the place.Seriously I am ashamed- I had been blaming the weather/change of season. To be frank I’m used to feeling bad.

I had a total colectomy in 2018 due to ulcerative colitis. Currently on Fansera for asthmatic bronchitis. History of extremely high liver enzymes. Thyroid inconsistency since age 7.

[positivedaybyday]

You shouldn't feel ashamed! It's part of the disease. Try not to panic although I know its easy to do. I found beginners Yoga really good as you learn to control your breathing.Try to look on the positives each day. What have you achieved which you feel good about. Give yourself a good pat on the back, no matter how small. It really does help.

Little steps, don't expect too much. Congratulate yourself each time you achieve something. Try not to be hard on yourself. You are fighting this awful disease. Don't give up!! Xx

[Davinal1-UK]

Hi Julianna, I seem to have been experiencing the same symptoms as you since February. Which I have tried to ignore, as my mother in law was ill, who then passed away and problems with her estate. Which led to me thinking it was stress related. I had not wanted a label of high blood pressure as it then affects everything and more so travel insurance. I had also started to ignore other random things, vertigo occasionally, the brain fog, the slight change in hearing, sight and lastly the overwhelming fatigue, which I was putting down to a flare. However last week, I ended up in hospital as my husband thought I was having a stroke, slurred speech, muscle fatigue and thinking that I had broken my right forearm, was assessed in A&E, who seemed to think the same and sent to the Stroke assessment, who noticed my tongue.

My tongue has been changing colour from pink to red I put it down to my sjogrens as its been slightly sore, and lack of spit alters things a lot in my mouth. The doctor believed it to be a B12 deficiency and this is the what is causing all of the symptoms. Stroke was ruled out and I was sent home.

I am currently having multiple tests and will be seeing more of my GP over the next couple of weeks or so, as they tell me, it requires a few injections to get levels right. You may well be going through the same Julianna and it maybe adviseable getting your Vitamin B12 and folate checked. Fingers crossed we both start to feel better soon x

[JuliannaGrandinetti in reply to Davinal1-UK]

Yes, your response and experiences are right on. The tongue can also point to a thyroid inconsistency, I have read and had since before I was 10. Also, I am sorry for your loss. Especially when ‘things’ and other family members are involved with their own agendas; things are, to say the least, tense. Ultimately grief doesn’t even start until ‘things’ are settled. I find my family members that know my diagnosis are incapable of understanding my limits. That’s always frustrating. Seems like you have that ‘I’m okay everything is OKAY’ personification as I do. Sometimes wonder if it’s a two edge sword because I want everyone to know I’m not okay and mainly their not helping!

Just venting and I am so grateful for this platform because sometimes that’s the only thing that can help. Example like going to church and checking it off the weekly tasks or getting involved in fellowship. As we both know there is no fix it resolution for us.

I have had two seizures in the recent past. Basically, all of the periodic table crashes at once. No potassium, iron , magnesium, b12 you understand. I did forget about B12 levels as they haven’t been checked since I had covid. It is scary because I am so used to feeling bad I don’t know the warning signs. So thank you for responding.

[Patr1c1a]

It could point to low iron and /or low B12 so may be worth getting blood tests. I have these symptoms when my levels are low.