can any one help

[lynbw]

Hi all , can any body tell me if they have fiber myopathy , i was refer d to a neurological Dr and this is what he said i have . i also suffer with limited scleroderma and sojgrens plus fibromyalga thankyou lyn

[suzierwp330]

hi sorry to hear that whats fiber myopathy ?what symtoms do you have ?

[lynbw]

Hi suzie , although the doctor was really good , i am still not a lot wiser . it seems to affect my feet really badly they get very red very painful i cant walk any distance . he has asked my GP to provide wraps for my feet during the night . my rheumatoid Dr sent me to him , my blood pres-her is different lying down to standing up. i have the shakes all the time but! he said this is due to the medication i take , in fairness he is sending my GP , rheumy , and myself letters explaining what it is . . thank you for your reply best wishes lyn

[Crystalcindy]

Aw bless you. Yes, I certainly suffer from Rheumatoid, Sjogren's syndrome, Raynards as well as IBS, fibromyalgia and then the genetic markings for Primary Biliary Cirrhosis. Its not a nice combination and being in touch with my rheumatologist, pains clinic and physiotherapy, it is certainly helping me. I hope you get all the help you can and please let us know how you go. Take care and god bless you.

love Cindy xxxxxxxxxxx

[lynbw in reply to Crystalcindy]

Hi Cindy , thank you for you'r reply ,i wont know any more information until i see my GP. my heart goes out to you with all that you suffer .it isn't easy is it , i also worry a lot about my daughter she has a lot of the symptoms i have, she is only in her thirty's she also has a rheumatologist in a diffierant hospital .i don't know when they are going to stop telling me i have more things wrong with me when you have scleroderma the list seems endless . thank you once again i will let you know how things go , it helps when you know you are not on your own . best wishes to you love and god bless you lyn