Raynards and Bowel complications can anyone advise ?

[thegaul]

Hi

I am an Antiphospholipid patient but my son has Raynards unfortunately my whole faimly have blood conditions one way or another

But I am really worried about my son !!!!!!!!!!!!

His Raynards is REALLY bad and as a child he was diagnosed as lactose intolerant (not too sure this was a correct diagnosis now although definatley problems with milk produce)

He is now 23 and has has chronic stomach pains has an extremely bloated stomach I thought he had put on weight going from a 32" wasit to a 36" I put him on the scales he is still 12 and a half stone 6' tall and bowel bleeds for over 18 months he was refered to our local hospital who are RUBBISH - they ignored him for a long while and eventually did a colonoscopy took a biopsy then promptly lost his notes and biopsy

The pain was so bad one day I made him go to my hospital london based and they carried out am abdo CT and found nothing

In the end they were of the opinion this was related to his raynards effecting his bowel

He has since had an endoscopy which found ospehagial hernia blood in his stomach and bile waste in his stomach as yet unexplained (no ulcers) he had a repeat colonoscopy yesterday and they took many biopsies from his colon

So in short Is this common how does Raynards effect the bowel has anyone else suffered like this ?

[zenabb]

Has your son seen a rheumatologist? He may have scleroderma as well as Raynaud's disease. I have scleroderma and Ranaud's and have a lot of trouble with my digestive system. I suggest he asks his GP to refer him to a rheumatologist. It can't be cured but it can be helped in many ways.

Best wishes.

[SandraM]

I have to agree with Zenabb. I too have raynauds and scleroderma and have bowel problems. I am careful with what I eat as I am finding certain foods affect me. I would definately ask your GP for a referral to a rheumatologist.

Good luck.

[wartsandall]

Hi, me too !!!!, I have raynauds, scleroderma and suffer from bowel problems Therefore, .I would definitely insist on your son having further investigations and a review by a rheumatologist.

[wartsandall]

I'm sorry thegaul, I forgot to mention. I too have have problems with blood clots. All of my investigations into clotting problems have been inconclusive. I also have bile reflux into my stomach ????

[thegaul]

Warts and all

In my family we have Lupus APS Lieden 5 & Heamachromatosis so not short of clotting disorders !

He shhould have been refered to Rheum in house at hospital instead they have sent letter to GP for him to refer him (funding issue I wonder) I am going to ask my GP to refer him to my rheum that way he will be fully aware of family history first hand.

Good Idea ?

[SandraM]

Very good idea, hope you get answers, Best wishes