I am an Antiphospholipid patient but my son has Raynards unfortunately my whole faimly have blood conditions one way or another
But I am really worried about my son !!!!!!!!!!!!
His Raynards is REALLY bad and as a child he was diagnosed as lactose intolerant (not too sure this was a correct diagnosis now although definatley problems with milk produce)
He is now 23 and has has chronic stomach pains has an extremely bloated stomach I thought he had put on weight going from a 32" wasit to a 36" I put him on the scales he is still 12 and a half stone 6' tall and bowel bleeds for over 18 months he was refered to our local hospital who are RUBBISH - they ignored him for a long while and eventually did a colonoscopy took a biopsy then promptly lost his notes and biopsy
The pain was so bad one day I made him go to my hospital london based and they carried out am abdo CT and found nothing
In the end they were of the opinion this was related to his raynards effecting his bowel
He has since had an endoscopy which found ospehagial hernia blood in his stomach and bile waste in his stomach as yet unexplained (no ulcers) he had a repeat colonoscopy yesterday and they took many biopsies from his colon
So in short Is this common how does Raynards effect the bowel has anyone else suffered like this ?