Hello, I live in New Jersey with my boyfriend & our 2 month old son. My boyfriend was diagnosed with Scleroderma & Raynaud's at about age 9. He is now age 28, far exceeding the doctor's initial expectations on mortality. Upon diagnosis, which was not easy to come by, he was treated quite aggressively by the top doctors here in the states. He has battled calcium deposits his entire life, had countless surgeries all over his body, & has suffered from numerous ulcers. As a boy he DUs so bad that they had no option but to amputate the top half of his finger. He also went through a peripheral sympathectomy shortly thereafter. His hands are a mess, for lack of a better word. Fortunately, as he has gotten older, he is far better at understanding his body & the disease which allows for him to take the necessary precautions resulting in far less ulcers. However, life has been rather stressful & busy with the new baby & the weather here has been unpredictable at best. About a month or so ago he developed an awful ulcer on his index finger. It is the first one he has had in a couple of years & it is a particularly bad one. It encompasses his entire tip, all around the nail. In fact, the nail is loose & looks about ready to fall off. He has been on antibiotics this entire time & is also on Amlodipine 5mg. As you can imagine, he has tried every available medication here in the states at least twice. Most all of them cause major migraines & other awful side effects. He has participated in a number of drug trials run by his doctor. Nothing ever seems to work. He is in so much pain he is unable to sleep. Going to work is next to impossible on no sleep & when you can't type. His entire arm is in tremendous pain & throbs relentlessly. Nothing seems to heal this ulcer or help with the pain. The worst part is that he is unable to hold our son because of the pain. It is so difficult to watch the man I love suffer this way. I spend as much time as possible researching alternate treatments & therapies. I simply cannot imagine the pain & agony these diseases bring. If anyone has any further suggestions on different remedies you have tried we are all ears. He really needs to get some sleep & get this ulcer healed. Thank you so very much.
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