Bev in hospital again...
Beverly6 days ago
In case you are wondering why Bev hasn’t been commenting the last week or so - it’s because she had her toe operation and that all healed up...
4 Replies2 Likes
Sister and sjogrens
greenfingers6 days ago
My sister has just experienced vaginal bleeding and I was wondering if it could be associated with Sjogrens. She is 64 years old and has no ...
Annodomini7 days ago
Hello, I am new to this forum. I was glad to discover its existence!
Sjogren's was diagnosed last year, secondary to polymyalgia rheumatica. ...
FiLuSj12 days ago
I have a trifecta of subacute cutaneous lupus diagnosed 30yrs ago, fibromyalgia diagnosed 25yrs ago and recently having a ‘flare’ and now...
7 Replies1 Like
Blood results normal.
bones-bones19 days ago
I'm afraid you might think this is a silly post but here goes .
I have had Sjogrens / MCTD for some time. I am taking Hydroxychloroquine and ...
4 Replies1 Like
Viral onset (newbie) lots of questions
Rhon-1956a month ago
I have cfs. SS. Hashemotos.
I have Chronic Lingual tonsilittis. I had paletine tonsils removed at 5 ) The pain is not controlled by trama...
Mindfulness for Sjogrens pain
DBillingsa month ago
Has anyone tried a Mindfulness workshop for Sjogrens pain? I am in week 3 of an 8 week course in Auckland NZ and believe it will be helpful...
Sinus pressure from sjogrens?
wsjkcj1a month ago
Does anyone with SS or RA have horrible sinus problems? I never had allergy or many colds before SS. I've had fluid in my left ear, stuffy s...
17 Replies2 Likes
BarbaraRossella month ago
I live in Gt Britain and was only diagnosed 3 years ago after experiencing a myriad of symptoms for the previous 48 years. In many ways it w...
How do I deal with Extreme debilitating fatigue?
WK10102 months ago
Hello. I experience symptoms such as severe body aching all over and fatigue, along with other issues. I will be seeing a rheumatologist in ...
7 Replies4 Likes
Prednisone and Sjogerns
hiandri2 months ago
I have had Polymyalgia for about a year and learnt a lot about this auto immune disease from the healthunlock site, however, this is my firs...
Undiagnosed newbie - autonomic symptoms.
Jaydee15072 months ago
My health has been terrible for many years but I will try and be brief! I've had many tests and my definite diagnoses are Hashimotos...
fairygrandmother2 months ago
Hi, I suffer from several auto immune syndromes, but find now the Sjogren's is giving me a bad time.I have severe pain in my legs & feet. Ha...
Do you experienced hairloss?
Babymilo2 months ago
Hi! Im new to this. I have lupus but Im not sure I have sjrogen or not. But i have dry skin, dry mouth, and dry eyes. I also experienced hai...
wsmith3 months ago
Interesting...just found this but don't have vertigo at the moment but would be curious to try this. Anyone else tried this? m.youtube.com/watch?time_co......
3 Replies1 Like
Berninakate3 months agoPOPULAR
Hi all I'm at the early stages of being investigated for Sjogrens and I am finding it difficult to find much information or support groups. ...
25 Replies2 Likes
Red, tingling feet
wsjkcj13 months ago
Today while walking the top of my right foot started hurting and felt somewhat numb and tingling. When I stopped I took my shoe and sock off...
5 Replies2 Likes
An interesting link for those with with pSS related autonomic dysfunction
Twitchytoes3 months ago
8 Replies2 Likes
Hi all, I am new here.
WindyT3 months ago
My name is Wendy. I live in Tropical North Queensland. I had a suspicion of SS for about 10 years. Final diagnosis about 5 years ago. I have...
7 Replies3 Likes
"Significant wear and tear in the lumbar spine", Pilates and neuropathic pain.
Very confused by pain at top of thigh and other night time aches and pains I've been having. I started Pilates class about five weeks ago an...
16 Replies1 Like
itsmeBetty3 months ago
Hi my names Betty and I have sjogrens syndrome since 2012 Icame on to hear other peoples stories and see if there were any new things that m...
2 Replies4 Likes
Annodomini3 months ago
Good morning, I am new to this community but quite well known on the Polymyalgia one. I have just come off steroids (prednisolone) after six...
ear swelling with SS?
Does anyone with Sjogren's have problems with fluid not draining in the ears or lymph node swelling behind the ear? My left ear has been blo...
13 Replies1 Like
Sjogren's ab-nd Ear Oain
GrammyTweetie3 months ago
Anyone else have ear pain, ringing and hearing loss? My left ear hurts all the time. The pain is sharp and often severe. I have high range h...
Lorraineelgar3 months ago
How long will I have to put up with my hip feet ankle knee hand and wrist and arm muscle and joint pain. It never stops. Taking Panafon os...
Sjorgens and Fibromyalgia?
Macberts3 months ago
Can anyone help! Does anyone have both conditions and how do you cope with dry mouth etc also my snoring is getting so loud and waking my po...
Debbweb014 months ago
Hi I'm a bit new to this forum! I find it very informative! I read something somewhere about autonomic Sjogrens! I have a problem with sweat...
Sadiemay4 months ago
Hi I am new to this group, I am interested in hearing others experiences with sjogrens and fibromyalgia. How to deal with sever swallowing p...
19 Replies1 Like
Retinal holes !!
Samaka4 months ago
Retinal tears (holes ) bilaterally could be due to :
Hydroxychloroquine, dehydration or malnutrition ?
I think you are hilarious and upbeat as I am and live my life from when I was able to understand at 6 years old the saying DO UNTO OTHERS AS...
3 Replies3 Likes
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