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The Australian Sjögren's Syndrome Association

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Burning sensation in digestive system approx 3 hours after taking Cymbalta - advice please?

Hi Im new to the forum. I was diagnosed with ME/CFS approx 8 years ago and also have Sjogrens, restless legs and osteoarthritis. I am 57 and can no longer work...

Hi Im new to the forum. I was diagnosed with ME/CFS approx 8 years ago and also ...

Sals1•

1 Reply

Rituximab and Covid vaccine

Hi Has anyone had any advice on timings of Rituximab and the covid vaccine? I have been told that Rituximab cannot be given until a month after the second...

Hi Has anyone had any advice on timings of Rituximab and the covid vaccine? ...

autowhen•

4 Replies

Sjogren's or kidneys?

I have finally got a date for my salivary gland ultrasound - but whilst I was waiting I had to see my GP as I was getting really weird dents appearing in my...

I have finally got a date for my salivary gland ultrasound - but whilst I was wa...

meggiemog•

11 Replies

Treatment for dry, peeling lips

What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been...

What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years,...

roxanne67•

21 Replies

Dry flaking eyelids

Hi everyone and Happy New Year. I use Hyloforte 2mg from my dry eyes which has been working very well for me but I've recently been having some trouble with...

Hi everyone and Happy New Year. I use Hyloforte 2mg from my dry eyes which has ...

wsmith•

4 Replies

Tear test - normal range

I am wondering if someone can help. I am being investigated for Sjorgrens and today I had tear test however was in normal range. I have to go for lip biopsy...

I am wondering if someone can help. I am being investigated for Sjorgrens and t...

Macberts•

1 Reply

What are these red bumps over my knuckles

Hello Everyone, Please help:( I’ve been getting these small bumps over my knuckles for a while now. I’m 26 and have no health issues that I know of. I really...

Hello Everyone, Please help:( I’ve been getting these small bumps over my knuckl...

Barkeral•

3 Replies

Lip biopsy results

I recieved the results of my lip biopsy it shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas...

I recieved the results of my lip biopsy it shows features consistent with sjogre...

Kels1974•

3 Replies

Lip biopsy

I'm having my lip biopsy this afternoon, I'm quite nervous 😕. I've had it done now, it wasn't as bad as I thought it would be. I've added a photo.

I'm having my lip biopsy this afternoon, I'm quite nervous 😕. I've had it done ...

Kels1974•

1 Reply

Saw my optician on Thursday and been told I've got Sjorgen's

I've had eye problems for the past 9 years, sore, very dry all the time, and more recently extremely light sensitive. I've been on so many different...

I've had eye problems for the past 9 years, sore, very dry all the time, and mor...

Kimi9•

7 Replies

Does anyone understand these results

Letter I recieved after ultrasound but I don't understand it

Kels1974•

7 Replies

I Need advice

Hi all I’m new to this group. I’ve decided to join to get some advice since I’m so confused I’m only 17 and I’ve had something wrong with me for 8 months now...

Hi all I’m new to this group. I’ve decided to join to get some advice since I’m...

PeachyBlossom•

6 Replies

Do you find things happen in a cycle?

I just want to see if anyone else thinks they have symptoms in a cycle? I only ask as I find my symptoms are cyclonic. Sometimes I am very dry throughout my...

I just want to see if anyone else thinks they have symptoms in a cycle? I only a...

meggiemog•

1 Reply

Is this a positive lip biopsy?

I suffer from nonspecific autoimmune myositis, small fiber/autonomic neuropathy and dysautonomia. My autonomic doctor I just started seeing sent me for a lip...

I suffer from nonspecific autoimmune myositis, small fiber/autonomic neuropathy ...

Goldyukr•

5 Replies

Flare up

I think I'm having some kind of flare up,I'm still undiagnosed at the moment but have had several tests and waiting for others which keep being rearranged due...

I think I'm having some kind of flare up,I'm still undiagnosed at the moment but...

Kels1974•

6 Replies

Ultrasound on salivary glands to check for Sjogren's

I am based in the UK - and have had a negative blood test for Sjogren's - but have been offered an ultrasound scan of my salivary glands. Just wondered if...

I am based in the UK - and have had a negative blood test for Sjogren's - but ha...

meggiemog•

28 Replies

SS Autonomic dysfunction & specialists NSW

Hi everyone I am hoping for suggestions of a neurologist in NSW with a speciality in autonomic dysfunction associated with Sjogren’s disease. I have had SS...

Hi everyone I am hoping for suggestions of a neurologist in NSW with a speciali...

Caz2017•

7 Replies

Red bump on my middle finger

Hi would anyone know what it is on my finger I been having it for over 4 months now at first it was super red and swollen and it started to bleed a little but...

Hi would anyone know what it is on my finger I been having it for over 4 months ...

Rose9001•

7 Replies

Do I have Sjögren’s?

Can you have Sjögren’s without having a positive blood test or positive lip biopsy? I have an extremely dry mouth, dry eyes, all over pain/aching, fatigue, and...

Can you have Sjögren’s without having a positive blood test or positive lip biop...

Missspringsummer•

20 Replies

Red bumps

Red bumps in hands

Sn290794jakedog•

3 Replies

Us parotid salivary gland

I have an appointment coming up for an ultrasound of salivary glands.has anyone ha done and what does it involve please?

I have an appointment coming up for an ultrasound of salivary glands.has anyone ...

Kels1974•

4 Replies

Weight loss

Is unintentional weight loss a normal symptom of Sjogrens?

Pyxie•

3 Replies

Negative bloods

Hi I am new here and new to these symptoms of extremely dry mouth and dry eyes, I have weight loss and fatigue also. I recently had blood tests which came back...

Hi I am new here and new to these symptoms of extremely dry mouth and dry eyes, ...

Pyxie•

3 Replies

Burnt tongue from salt

I have sjogrens and ate hot chips with salt. The salt burnt my tongue and mouth. Any suggestions to help soothe the burn and pain. There are no visible marks...

I have sjogrens and ate hot chips with salt. The salt burnt my tongue and mouth....

Stumpy01•

2 Replies

Diagnosis difficulties

Hi I'm in the UK.. Struggling to get diagnosed... Ibs, dry eye, dry mouth, fatigue, breathless... Mother ra, brother lupus, Aunty sjogren's.. No antibodies.....

Hi I'm in the UK.. Struggling to get diagnosed... Ibs, dry eye, dry mouth, fati...

ladyjedi•

5 Replies

Sjögren’s lip biopsy testing

Hi everyone, My GP and I think I may have Sjögren’s syndrome, but so far have been seronegative for antibody testing. I would like to pursue other forms of...

Hi everyone, My GP and I think I may have Sjögren’s syndrome, but so far have be...

Blue-eyes79•

4 Replies

Puffy eyes help

Hi I’m so annoyed my doctor told me to wear a warm compress 6 times a day as my eyelids are puffy. He also sold me cleansing wipes. I did this for around three...

Hi I’m so annoyed my doctor told me to wear a warm compress 6 times a day as my ...

Mylove1111•

11 Replies

How long ago were you diagnosed with Sjögren's Syndrome?

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The Australian Sjögren's Syndrome Association

Home

About

Members

Dry mouth

Painful bumps on hands

Random bumps on my hand

Burning sensation in digestive system approx 3 hours after taking Cymbalta - advice please?

Rituximab and Covid vaccine

Sjogren's or kidneys?

Treatment for dry, peeling lips

Dry flaking eyelids

Tear test - normal range

What are these red bumps over my knuckles

Lip biopsy results

Lip biopsy

Saw my optician on Thursday and been told I've got Sjorgen's

Does anyone understand these results

I Need advice

Do you find things happen in a cycle?

Is this a positive lip biopsy?

Flare up

Ultrasound on salivary glands to check for Sjogren's

SS Autonomic dysfunction & specialists NSW

Red bump on my middle finger

Do I have Sjögren’s?

Red bumps

Us parotid salivary gland

Weight loss

Negative bloods

Burnt tongue from salt

Diagnosis difficulties

Sjögren’s lip biopsy testing

Puffy eyes help

Search posts

Latest poll

How long ago were you diagnosed with Sjögren's Syndrome?

Topics

Archive

Posts - The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

Home

About

Posts

Members

Dry mouth

Painful bumps on hands

Random bumps on my hand

Burning sensation in digestive system approx 3 hours after taking Cymbalta - advice please?

Rituximab and Covid vaccine

Sjogren's or kidneys?

Treatment for dry, peeling lips

Dry flaking eyelids

Tear test - normal range

What are these red bumps over my knuckles

Lip biopsy results

Lip biopsy

Saw my optician on Thursday and been told I've got Sjorgen's

Does anyone understand these results

I Need advice

Do you find things happen in a cycle?

Is this a positive lip biopsy?

Flare up

Ultrasound on salivary glands to check for Sjogren's

SS Autonomic dysfunction & specialists NSW

Red bump on my middle finger

Do I have Sjögren’s?

Red bumps

Us parotid salivary gland

Weight loss

Negative bloods

Burnt tongue from salt

Diagnosis difficulties

Sjögren’s lip biopsy testing

Puffy eyes help

Search posts

Latest poll

How long ago were you diagnosed with Sjögren's Syndrome?

Topics

Archive