Angellealea123 days ago
Hey! Anyone else taking Hydroxychlorquine for Sjogren's? I'm starting the new med in 2 weeks, at one a day & will be increasing meds as I go...
resa24 days ago
Hi does any one have a lot of problems with eyes like hole in mackerel and cateract just out of no we’re is this related ? To be part of co...
Amalgam fillings in teeth
rosserk25 days ago
Hi all, does anyone have any knowledge about amalgam fillings and Sjögrens? I read somewhere that if you suffer from Sjögrens and have amalg...
Sjogrens or allergies ❓❓❓
Bettyboop7134525 days ago
I wonder if anyone with SS experiences nasal issues ? I'm on Plaquenil and the paresthesia is better ! Good days, bad days. My eyes are stil...
12 Replies3 Likes
awaiting ENT referall
gj1996a month ago
I'm new to this site but I signed up because I wanted to ask the Sjögren's sufferers out there what they think about my symptoms. I f...
19 Replies1 Like
Two Vimeo’s which may be of interest to others here.
Twitchytoesa month ago
Where do I go from here?
Eeve2 months ago
Do I just take my Dr's diagnosis? If I had more faith in her I'd be happy, but I'm not so sure.
I've had dry eye since very young (maybe sinc...
Do I have Sjogrens ?
Bettyboop713452 months ago
So now it's my taste glands Nothing tastes right 😳 Nothing ever tastes sweet or salty ‼️Water tastes awful...metallic 🙁 YUCK !!!
Do you think I could have Sjogrens?
FoggyMoggy2 months ago
The thing that has made me wonder is because of all the dental problems I've been having although that may be fixed when they extract a toot...
Hello. I only found an old thread on this subject so thought I'd start a new thread instead as I don't think anybody saw my latest replies o...
15 Replies1 Like
rosserk2 months ago
Hi all, I’m new to posting on this forum. I’ve been posting on thyroid UK for a while.
I have hashimotos, ehlers danlos and sjogrens. I’m re...
10 Replies2 Likes
Do I have Sjogrens ??
So, I saw my Rheumatologist today. She doesn't think I have Sjogrens. Positive ANA, but blood work for Sjogrens was negative. Lip Biopsy sug...
SuzanneMaree1232 months ago
Hi Everyone I have been told by my oral specialist that I have Sjogrens. She wants to do a lip biopsy to confirm. I also have oral lichen pl...
An interesting link for those with seronegative Sjögren’s
Twitchytoes2 months ago
6 Replies3 Likes
Annodomini2 months ago
I have secondary SS, having previously had Polymyalgia Rheumatica and taken prednisolone for 6 years. I was able to give that up a year ago....
goodymommy2 months ago
Does anyone get a lot of face swelling ? If so what do you do about it ?
17 Replies1 Like
About dilated ascending aorta
Xiao3 months ago
Hi, I just got my heart check report which said that I have got dilated ascending aorta. Is anyone who know about it cennected with SS or M...
6 Replies1 Like
Hashimotos and Hydroxy?
mistygrey3 months ago
Does anybody take Hydroxychloroquine and have Hashimotos?
Does it affect Hashimotos in any way?
Be the first to reply
BubbleMonkey3 months ago
Hi. I'm new around these parts, but I was hoping some people might be able to help me with some questions.
I currently have something up and...
Lip biopsy suggests Sjogrens !!
Bettyboop713453 months agoPOPULAR
Had the lip biopsy done one week ago. Got results this morning. Suggests Sjogrens !! Now waiting to hear from Rheumatologist.
23 Replies4 Likes
Protocolo VIT D alternative treatment
Gmacedo4 months ago
Cassiecat4 months agoPOPULAR
Is anyone with Sjogrens having a problem with food intolerance
25 Replies1 Like
Anyone have any ideas ,Trouble with lip sores ! I have Sjogren’s Syndrome, Lupus & Arthritis
Mellisa10664 months agoPOPULAR
I’m after some advice I have Sjögren’s Syndrome, Lupus & Arthritis.
I’ve had sores , cracks etc around mouth for a couple of m...
21 Replies1 Like
Do I have Sjogrens ??
Bettyboop713454 months agoPOPULAR
Symptoms so many !! Multiple positive
ANA'S, severe paraesthesia (skin), extreme dry eyes, mouth, skin...Been going on now since January. Saw...
31 Replies1 Like
Megansheart4 months ago
With some fear and trembling I started Methotrexate, last week. I put off starting for a week, then, when I was well psyched up I took first...
5 Replies2 Likes
Is it Sjogens or is Mast Cell Disease
LauraZ4 months ago
I was diagnosed with Sjogens 6 years ago, after literally waking up to a mouth full of cavities. Upon xray, the dentist said they started at...
1 Reply2 Likes
What now.. ? (7 year old -follow up questions)
Rubix4 months ago
My 7year old daughter has had keratoconjunctivitis sicca for over 18 months with permanent scarring on one eye.
She has joint aches mostly i...
I'm new here.
vivacall4 months ago
Could anyone suggest a Doctor in Geelong or Melbourne who could definitely give me a diagnosis on whether I have Sjorgens or not? My curren...
8 Replies2 Likes
Mouth and lip soreness
janetfmauk5 months agoPOPULAR
I have Sjogrens for many years but for the last 3 years my mouth has become very sore now that has been added to by my lips gradually becomi...
33 Replies2 Likes
Wearing eye makeup
Banshee5 months ago
This may seem like a frivolous question. Does anyone have any tips on how to wear makeup without the eyes reacting so painfully. I have be...
4 Replies1 Like
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