“Yay I’m finally out of hospital!!”
Beverly4 days ago
After the last post of Bev in hospital basically learning to walk again - she was in rehab for 2 1/2 weeks - and came home this week. She ha...
3 Replies1 Like
HOW MANY SYMPTOMS DO I NEED FOR DIAGNOSIS??
Bee101110 days ago
Hi all, I am yet to be diagnosed but feel totally confused and upset with the length of time it is taking and how slow the consultant is in ...
Punctuate Epithelial Erosions
Megansheart17 days ago
Last Thursday morning I woke at 4am with an extremely painful eye. I figured I must have had a foreign body in there. I promptly fell back t...
bones-bones20 days ago
Following my last post about surgery and Mycophenolate I have been diagnosed with breast cancer. I still don't know whether I can continue t...
Excess saliva after lip biopsy
Maggiet22 days ago
I know this sounds odd, but 2 days ago I had a lip biopsy to test for sjogren's as I was suffering from all the symptoms including a really ...
Systemic itching - no rash. Sjogren's??
hashiB12sjogrens22 days ago
I am a 57 year female with long standing Hashimotos, B12 deficiency and Sjogren's syndrome. I am treated with combo T3/t4 (very good endocri...
Sjogren's or Sicca syndrome
Maggiet25 days ago
Hi all. I've had various tests ordered by my consultant neurologist as I have neuropathy and 3 autoimmune conditions along with fibro. My mo...
8 Replies1 Like
Silver-Ladya month ago
I’m due to have this soon and getting rather anxious as I’ve only been using artificial tears and no other prep. There had been an admin m...
bones-bonesa month ago
Has anyone here had any kind of surgery while having Sjogrens ? If so any hints ? I am wondering if I will have to stop taking Mycophenolate...
Castor oil for relief of dry eyes (and other bits)
Psychodeliaa month ago
Hello fellow sufferers,
Wanted to tell you about something that MAY help you, at least in regard to dry eyes. I was googling treatments to g...
18 Replies5 Likes
Dysphagia(difficulty in swallowing) with Sjogren's syndrome.
ROBERT_CARMICHAELa month ago
I am a long retired doctor who has had SS for about 30 years and besides the rheumatoid arthritis, dry eyes and mouth, also have a very inte...
13 Replies2 Likes
I have primary Sjögren’s only recently diagnosed. Live in UK.
I have problems with ears as Wax has gone quite suddenly and ears ar...
Three weeks and bruising...
Beverly2 months ago
Bev is still improving after three weeks in hospital now. The Rituximab needle/drip from last week (see last week’s post) still seems to be ...
5 Replies4 Likes
Bev - 2nd rehab session
The Physio nurse arrived while I was there and Bev insisted on a photo - to show how far she has come - which is wonderful but it isn’t that...
2 Replies4 Likes
Visited Bev again...
A week ago she had been in hospital for a week already with the kidney failure and Lupus Nephritis diagnosis. For the first week Bev was ta...
8 Replies4 Likes
Bev in hospital again...
In case you are wondering why Bev hasn’t been commenting the last week or so - it’s because she had her toe operation and that all healed up...
Sister and sjogrens
greenfingers2 months ago
My sister has just experienced vaginal bleeding and I was wondering if it could be associated with Sjogrens. She is 64 years old and has no ...
Annodomini2 months ago
Hello, I am new to this forum. I was glad to discover its existence!
Sjogren's was diagnosed last year, secondary to polymyalgia rheumatica. ...
FiLuSj2 months ago
I have a trifecta of subacute cutaneous lupus diagnosed 30yrs ago, fibromyalgia diagnosed 25yrs ago and recently having a ‘flare’ and now...
7 Replies1 Like
Blood results normal.
bones-bones2 months ago
I'm afraid you might think this is a silly post but here goes .
I have had Sjogrens / MCTD for some time. I am taking Hydroxychloroquine and ...
4 Replies1 Like
Viral onset (newbie) lots of questions
Rhon-19563 months ago
I have cfs. SS. Hashemotos.
I have Chronic Lingual tonsilittis. I had paletine tonsils removed at 5 ) The pain is not controlled by trama...
Mindfulness for Sjogrens pain
DBillings3 months ago
Has anyone tried a Mindfulness workshop for Sjogrens pain? I am in week 3 of an 8 week course in Auckland NZ and believe it will be helpful...
5 Replies2 Likes
Sinus pressure from sjogrens?
wsjkcj13 months ago
Does anyone with SS or RA have horrible sinus problems? I never had allergy or many colds before SS. I've had fluid in my left ear, stuffy s...
17 Replies2 Likes
BarbaraRossell3 months ago
I live in Gt Britain and was only diagnosed 3 years ago after experiencing a myriad of symptoms for the previous 48 years. In many ways it w...
How do I deal with Extreme debilitating fatigue?
WK10104 months ago
Hello. I experience symptoms such as severe body aching all over and fatigue, along with other issues. I will be seeing a rheumatologist in ...
7 Replies4 Likes
Prednisone and Sjogerns
hiandri4 months ago
I have had Polymyalgia for about a year and learnt a lot about this auto immune disease from the healthunlock site, however, this is my firs...
Undiagnosed newbie - autonomic symptoms.
Jaydee15074 months ago
My health has been terrible for many years but I will try and be brief! I've had many tests and my definite diagnoses are Hashimotos...
fairygrandmother4 months ago
Hi, I suffer from several auto immune syndromes, but find now the Sjogren's is giving me a bad time.I have severe pain in my legs & feet. Ha...
Do you experienced hairloss?
Babymilo4 months ago
Hi! Im new to this. I have lupus but Im not sure I have sjrogen or not. But i have dry skin, dry mouth, and dry eyes. I also experienced hai...
wsmith4 months ago
Interesting...just found this but don't have vertigo at the moment but would be curious to try this. Anyone else tried this? m.youtube.com/watch?time_co......
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