Hydroxychloroquine Reaction possibly??😲
weathervane20 hours ago
Hi everyone, im feeling a bit low lately , my joints (hips and hands) are more inflammed, lymph nodes sore again , head is foggy and increa...
DBillingsa day ago
Hi I am a seronegative Sjogrens sufferer from Auckland, NZ seeking support from fellow Sjoggies. The NZ Sjogrens support group seems to be o...
18 Replies2 Likes
Comfy or not ?
Persiankiwi5 days ago
Our Best Selling Body Pillow On Sale Today At 45% OFF.
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Lindylou6712 days ago
Hi there, looking for some advice as to what can help me with a painful, dry nose. Was at my GP earlier today who didn't have any idea what ...
7 Replies1 Like
Persiankiwi12 days ago
I wanted ask if it was normal for your eyes to deteriorate slightly, I was diagnosed in UK in December then GP, optician & dentist here i...
Queensland Eye Institute
Beverly13 days ago
"Nine out of ten people with Sjogren's Syndrome are women."
You can find a PDF of this two page Queensland Eye Institute flyer on our website
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Dry eye treatment
Aussielouisea month ago
Hi. Just wanted to say I had a great appointment with a wonderful lady at a optician in southport Gold Coast yesterday. I had a stream gogg...
6 Replies4 Likes
Seeking recommendation for Newcastle NSW Immunologist
SueR42a month ago
Hi all, I'm new to this site. Been diagnosed for years and years. Was initially diagnosed by Dr David Sutherland in Newcastle. Am looking ...
6 Replies1 Like
Persiankiwia month ago
My gp diagnosed me with Sjogrens in January after seeing a Dr in the UK while visiting my parents last year, he suggested I visit my gp & me...
16 Replies1 Like
On A Sjogrens Awareness Mission
webar47802 months agoPOPULAR
Well, I've been managing very nicely for a number of weeks now. (At times, I even thought, oh, I'm ok now, over whatever attacked my well-be...
36 Replies8 Likes
Black seed oil for scalp?? 🤕
weathervane2 months ago
Hi there , i have been trouble by a burning, itchy scalp for a while now , my gp has had a look and can see no cause . I have tried hair oil...
Hi, I'm new here.
BRENDA_LAKELAND2 months ago
I have not as yet been dignosed with Sjogrens, but I feel that I have it, and will be discussing it with my Rheumy next visit in Ma...
5 Replies1 Like
Fisherman012 months ago
Hi nice to find this site I was diagnosed last year with sjorens and about 7 or8 other autoimmune diseases I take plaqunil and immuran and ...
8 Replies3 Likes
Bells Paulsy / face paralysis....anyone ? Worried about my eye....
25clai2 months ago
Why is it every illness seems to bring complications with sjorgens? on top of Shingles, I've now got Bells Paulsy. Was pulled in dram...
Shingles and Sjorgens
I thought I had an insect bite, but it developed over a couple of days, into shingles. Spent Easter Sunday at out of hours GP service...
6 Replies2 Likes
Room spinning- help!
weathervane3 months ago
Woke up this morning and when i moved my ear went dead for 2-3 seconds and everything started shifting and spinning. I put my head down agai...
fpas81473 months ago
I have sleep apnea. CPAP gave me dry mouth and ringing ears.
I am looking for a product that keeps my mouth dry
Red dry skin patches with SS.
wsjkcj13 months agoPOPULAR
Does anyone with SS or RA get red dry patches on skin that isn't Psoriasis? My derm says it not that and just some type of inflammation bu...
62 Replies2 Likes
LUPUS NEPHRITIS - stage 4 (kidneys)
Beverly3 months ago
I went to the doctor (kidney specialist) in December and he told me I was recovering but I would never be off my medication. 8 weeks later (...
8 Replies7 Likes
Maybe kidney problems, always feel so thirsty and dehydrated, anything i should ask or say to my Dr to get him to actually help
Inmyfeels293 months ago
Hi all, i went to the ER for low potassium, and have weird blood and urine results that suggest kidney problems though the ER didn't say any...
Help in South Australia
lbries014 months ago
Hello all, I am looking for a recommendation for a doctor who might help me. I live in regional SA but can drive to Adelaide. Not getting an...
Sjogrens, Behcets, both?
Chad014 months ago
Hi, a couple of years ago I was given a diagnosis of Behcets. My main symptoms were night sweats, aches, dizziness and exhaustion. After go...
15 Replies1 Like
Whats going on here??
Inmyfeels294 months ago
Hello friends, i have been having a LOT of strong symptoms of hypothyroidism since taking latuda, i always symptoms but never heard of hypot...
11 Replies1 Like
Muscle weakness, yopathy or myositis-like symptoms?
Jar19734 months ago
I am just starting on the diagnostic roller coaster but i am convinced i have had autoimmune symptoms for many years. With regards to posd...
Swollen and painful parotid glands...
Su30004 months ago
Hello, I have just been diagnosed with Sjogren's. At the moment I have fatigue, stomach issues with nausea, and painful, swollen parotid gl...
17 Replies1 Like
Hoping for Advice
Billychloe4 months ago
Hi I am new have been diagnosed with Sjogrens for 2 years. I am 61 have suffered with dry eyes dry mouth pressure in throat and glans but no...
Electric shock pain
Persiankiwi4 months ago
Has anyone had a nerve conduction test thatt showed up in the test. I have neuropathy in 24+ areas & it's getting worse & more frequent ( 18...
stringstudio4 months ago
Does anyone else have bad days when they feel so weak they can hardly talk? I had one of those today with no particular trigger. My throat f...
2 Replies1 Like
How succesful is lyrica for sjogrens sufferers out there?
bambino44 months ago
Hi everyone, as a sjogrens sufferer for the past 5 years i have a lot of joint and back pain which is getting worse over time, so my doctor ...
11 Replies2 Likes
CaerylUSA4 months ago
Hi Everyone. My apologies if you have answered this a thousand times, but there is so much information on here that I finally decided to ju...
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