Neuropathy & treatments
moisture4 days ago
Does anyone else know whether there's any connection with Peripheral Neuropathy.?If so I'd like to know about drug free treatments?
2 Replies1 Like
Hydroxy and Levothyroxine
mistygrey5 days ago
Does anybody have Hashimotos and Sjogrens and take both Hydroxy and Levo?
Have you been well on these medications and do they affect each ...
Treatment for and coping with flares
Banshee5 days ago
I have had a flare from early December 2018. Exhausted, no energy, muscle weakness, shakes, sudden temperature increases. I have some good ...
3 Replies1 Like
Gastro Issues w/ SS
Bettyboop713456 days ago
Can someone please help me understand what types of gastro symptoms one might experience with SS ?
Chronic back pain
SuzanneMaree12312 days ago
Hi everyone and happy new year.
Can sjogrens cause chronic back pain. Have been struggling with back pain for a number of years now. Would ...
Steroids and parathesia !!
Bettyboop71345a month ago
Have been sick since Friday.. Bronchitis and some sort of bug. Wheezing and nose will not stop running profusely. I'm being treated with ant...
Parotid removal and Hydroxychloroquine
MajorToma month ago
Hi everyone, thanks for having me.
I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland...
16 Replies1 Like
Does anyone with sjrogrens get red, sore eyes like this?..
Warrior152 months agoPOPULAR
I constantly have dry, gritty, light sensitive eyes and over the summer had blood shot, sore, gunky eyes week after week ho...
Painful Swelling under my tongue
Danielleb332 months ago
I have something protruding out from under my tongue. I am in horrible pain. Any ideas?
6 Replies3 Likes
Anyone have a dystonic tremor?
wsmith2 months ago
Hi peeps, was curious to see if anyone on this site has a dystonic tremor ? Have ruled out a few nasties including lupus at the top of the ...
Sjögren diagnosis no sicca
Pinkpiggy13 months ago
I have just been diagnosed by my rheumatologist as having SS. I’ve had positive bloods over the past 2+ years and symptoms of fatigue, achin...
9 Replies1 Like
Bettyboop713453 months ago
Omg, the pricks are devastating today..My scalp, face, eyes, arms and legs. EVERYWHERE😩 My Plaquenil was increased to 400mg. daily. Seems l...
Lambert-Eaton myasthenic syndrome!
Angellealea13 months ago
Hi guys, has anyone else heard of Lambert-Eaton myasthenic syndrome? by mistake I came across on a forum & a few people were discussing Sjog...
Nousernames3 months ago
I am wondering if anyone has experienced hair loss? I used to be recognized by my thick hair. ( I guess that's the only reason I still have ...
Hi I recently had an EMG test because of my blood work & symptoms & inflammatory, I have Sjogren's Syndrome too.
I have a positive Anti-Ro an...
Why, oh why, does my Paresthesia come back so severely each day in late afternoon to evening ❓I take my Plaquenil in the morning. Wonder if ...
Hi all, I am starting treatment, now on a different meds called Azathiprine, anyone else take these & what are your experiences of taking th...
New symptom ???
Bettyboop713454 months ago
Not certain but appears I may have cellulitis right foot. Very painful!! Difficulty bending big toe, some numbness. Anyone recognize this as...
“Functional Overlay” and Sjögren’s fatigue?
Twitchytoes4 months ago
Bearing in mind that the medical profession have (mis)appropriated the word functional to mean no organic cause has been found - do we think...
Angellealea15 months ago
Hey! Anyone else taking Hydroxychlorquine for Sjogren's? I'm starting the new med in 2 weeks, at one a day & will be increasing meds as I go...
resa5 months ago
Hi does any one have a lot of problems with eyes like hole in mackerel and cateract just out of no we’re is this related ? To be part of co...
Amalgam fillings in teeth
rosserk5 months ago
Hi all, does anyone have any knowledge about amalgam fillings and Sjögrens? I read somewhere that if you suffer from Sjögrens and have amalg...
Sjogrens or allergies ❓❓❓
Bettyboop713455 months ago
I wonder if anyone with SS experiences nasal issues ? I'm on Plaquenil and the paresthesia is better ! Good days, bad days. My eyes are stil...
12 Replies3 Likes
awaiting ENT referall
gj19965 months ago
I'm new to this site but I signed up because I wanted to ask the Sjögren's sufferers out there what they think about my symptoms. I f...
19 Replies1 Like
Two Vimeo’s which may be of interest to others here.
Twitchytoes5 months ago
Where do I go from here?
Eeve6 months ago
Do I just take my Dr's diagnosis? If I had more faith in her I'd be happy, but I'm not so sure.
I've had dry eye since very young (maybe sinc...
Do I have Sjogrens ?
Bettyboop713456 months ago
So now it's my taste glands Nothing tastes right 😳 Nothing ever tastes sweet or salty ‼️Water tastes awful...metallic 🙁 YUCK !!!
Do you think I could have Sjogrens?
FoggyMoggy6 months ago
The thing that has made me wonder is because of all the dental problems I've been having although that may be fixed when they extract a toot...
Hello. I only found an old thread on this subject so thought I'd start a new thread instead as I don't think anybody saw my latest replies o...
15 Replies1 Like
rosserk6 months ago
Hi all, I’m new to posting on this forum. I’ve been posting on thyroid UK for a while.
I have hashimotos, ehlers danlos and sjogrens. I’m re...
10 Replies2 Likes
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