Posts - The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

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Salivary gland pain

Can anyone give advice on how to treat swollen and painful Carotid/ Salivary glands

Can anyone give advice on how to treat swollen and painful Carotid/ Salivary gla...

Biddy47

•2 months ago

6 Replies

Preservatives in eyedrops

hello I have been using Ilube eye drops for years. ( Acetylcysteine 5% )I have recently discovered it contains preservative benzalkonium chloride which is...

hello I have been using Ilube eye drops for years. ( Acetylcysteine 5% )I have ...

fluffmonkey

•3 months ago

2 Replies

Help with air conditioning and dry mouth

My sister is going on a coach trip and the coach has air conditioning, she is struggling with a dry nose and mouth with Sjogrens also she has earache with it....

My sister is going on a coach trip and the coach has air conditioning, she is st...

greenfingers

•3 months ago

7 Replies

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Sjogren's and Inflammation

Having read some of the comments about specialist I'm not going there.I have had autoimmune issues since I was 18, I'm 73 now and found information about this...

Having read some of the comments about specialist I'm not going there.I have had...

BETUCAN

•5 months ago

1 Reply

Sjogrens

Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited...

Hi I have had many changes to my health/body etc since I last sent a post. I n...

Heritage1961

•6 months ago

2 Replies

Sjrogens discomfort

I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use...

I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My ful...

Love2fish2

•6 months ago

22 Replies

Digestive issue.

Hi all, have had sjogren's since 2012 but been managing okay. It's now going through my body and causing digestive problems. Food is taking longer to pass...

Hi all, have had sjogren's since 2012 but been managing okay. It's now going th...

Cassiecat

•7 months ago

8 Replies

Diagnosis?

How do you get rheumatologists to take you seriously? I am almost convinced I have Sjogrens, but after seeing threee rheumys, they say no, because all my...

How do you get rheumatologists to take you seriously? I am almost convinced I h...

peachtreepiggy

•9 months ago

6 Replies

Please consider signing this petition for better understanding and funding of thyroid conditions. 🙏

Hello all, I am posting this on behalf of J972 You’ll normally find her lurking on the Thyroid UK forum. I hope you don’t mind me popping over to ask...

Hello all, I am posting this on behalf of J972 You’ll normally find her lurki...

Jillymo

•1 year ago

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Effective deodorant or antiperspirant that doesn’t “burn”

has anyone found a gentle and effective deodorant or antiperspirant? I cannot find one that is effective without giving me a burning sensation on my arm pits

has anyone found a gentle and effective deodorant or antiperspirant? I cannot fi...

harmony2

•1 year ago

10 Replies

Sjogren's Syndrome and Coeliac disease.

I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with...

I've had Sjogren's for over 20 years now and am having issues with bloating, IBS...

maxie4969

•1 year ago

15 Replies

Chronic over heating and night sweats anyone?

I have various autoimmune conditions but it's the stage two Sjogrens that is of concern. I stopped sweating under my arms some time ago but I were profusely...

I have various autoimmune conditions but it's the stage two Sjogrens that is of ...

Jillymo

•1 year ago

10 Replies

gastro problems

Hi everyone, was diagnosed with sjogrens in 2012 and after trial and error have been able to manage it most of the time. 2019 began to get heartburn etc. was...

Hi everyone, was diagnosed with sjogrens in 2012 and after trial and error have ...

Cassiecat

•2 years ago

5 Replies

Angular Cheilitis

Does anyone have this please? My sister has Sjogrene’s and has developed sores in the corner of her mouth along with spots. She wonders if it’s connected.

Does anyone have this please? My sister has Sjogrene’s and has developed sores i...

greenfingers

•2 years ago

8 Replies

ILD and pulmonary hypertension caused by sjogrens

sjogrens and lung disease. I have alveolitis, asthma and now interstitial lung disease (ILD). My doc has now diagnosed pulmonary hypertension. My doc can...

sjogrens and lung disease. I have alveolitis, asthma and now interstitial lun...

Xxxxxxx

•2 years ago

11 Replies

Pressure, tightness in the lower throat area, does anyone suffer with this condition? Ive now had it for 6 months and suffering daily.

If anyone else has experienced this condition i would be soo grateful to chat.

GJGJ33

•2 years ago

4 Replies

Seeking a good Rheumatologist in Melbourne ?

Hello, I am looking for a rheumatologist who is knowledgeable about treating Sjogren's, or at least care about hie/her patiens. I would appreciate any...

Hello, I am looking for a rheumatologist who is knowledgeable about treating S...

rosegardens

•2 years ago

2 Replies

Sjogrens etc

I would be very grateful for advice...it's probably something I should know already. I have Sjogrens, probably Lupus (or some sort of overlap) and...

I would be very grateful for advice...it's probably something I should know alre...

puffyface

•2 years ago

8 Replies

suffering a flare up of symptoms

hi I’m suffering a flare up of symptoms and feel isolated and lonely after being seen by medics 3 times in 3 days I would appreciate anyone sharing their...

hi I’m suffering a flare up of symptoms and feel isolated and lonely after bein...

WhatSayU

•2 years ago

12 Replies

Connecting with someone with similar diagnoses

I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome

I am wanting to connect with anyone who has been diagnosed with both generalised...

Led_zepplin

•2 years ago

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Sjogrens specialist recommendations for Perth WA

Hi Looking for recommendations for a specialist in Perth who has a good understanding of Sjogrens. Diagnosed in March but felt lack of confidence in...

Hi Looking for recommendations for a specialist in Perth who has a good underst...

FloraM

•3 years ago

2 Replies

Sjoegrens journey

Hi., I would love some tips on how to minimise coughing due to dry throat

SJWS

•3 years ago

9 Replies

Mystery bumps

My NP has no idea what this is. They come and go hurt really bad and get very itchy when they are healing. I have raynauds and my mother has fibromalcia. I...

My NP has no idea what this is. They come and go hurt really bad and get very it...

Sk8realthing

•3 years ago

6 Replies

High inflammation

Hoping to get some suggestions on what to do as last few months have been getting flare-ups and problem lately is heartburn whenever I eat. Spoke to rheumy and...

Hoping to get some suggestions on what to do as last few months have been gettin...

Cassiecat

•3 years ago

5 Replies

What is itchy thing?

It itches so much. I got one bump in left hand and another on right. Help

Krk_fob

•3 years ago

2 Replies

Lip biopsy results

Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under...

Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm s...

Nellies47

•3 years ago

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Help… burning lips!

HELP… had SS for 20 year mostly affects my eyes… but post covid… OMG… my lips feel like they are on fire… nothing helps… 🥲🥲🥲 best things to try???

HELP… had SS for 20 year mostly affects my eyes… but post covid… OMG… my lips fe...

MawMawM

•3 years ago

12 Replies

Cepharanthine

Hi I have had some success with Cepharanthine (or Cepharan) reducing inflammation, swollen glands, sore throats and loss of my voice. I was taking 10-20mg per...

Hi I have had some success with Cepharanthine (or Cepharan) reducing inflammatio...

Caz2017

•3 years ago

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Possible sjorgrens

Hi . I have,PBC and possible sjorgrens as per rheumatologist. I have joint pain and mucle pain. Numbness in lower arms and hands. Dry eyes and mouth, and now...

Hi . I have,PBC and possible sjorgrens as per rheumatologist. I have joint pain...

Nellies47

•3 years ago

13 Replies

My fibro and rheumatism have been more severe since my second pfizer shot. It's been a month with no let up. Is this my new normal?

I have had Sjogrens for 13 years and have never taken any pain meds or anti-inflammatory or immuno-suppressant. The rheumy and fibro have restricted me but...

I have had Sjogrens for 13 years and have never taken any pain meds or anti-infl...

grahamb

•3 years ago

7 Replies

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Posts - The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

Salivary gland pain

Preservatives in eyedrops

Help with air conditioning and dry mouth

Sjogren's and Inflammation

Sjogrens

Sjrogens discomfort

Digestive issue.

Diagnosis?

Please consider signing this petition for better understanding and funding of thyroid conditions. 🙏

Effective deodorant or antiperspirant that doesn’t “burn”

Sjogren's Syndrome and Coeliac disease.

Chronic over heating and night sweats anyone?

gastro problems

Angular Cheilitis

ILD and pulmonary hypertension caused by sjogrens

Pressure, tightness in the lower throat area, does anyone suffer with this condition? Ive now had it for 6 months and suffering daily.

Seeking a good Rheumatologist in Melbourne ?

Sjogrens etc

suffering a flare up of symptoms

Connecting with someone with similar diagnoses

Sjogrens specialist recommendations for Perth WA

Sjoegrens journey

Mystery bumps

High inflammation

What is itchy thing?

Lip biopsy results

Help… burning lips!

Cepharanthine

Possible sjorgrens

My fibro and rheumatism have been more severe since my second pfizer shot. It's been a month with no let up. Is this my new normal?

Search posts

Latest poll

How long ago were you diagnosed with Sjögren's Syndrome?

Topics

Archive