Do you experienced hairloss?
Babymilo4 days ago
Hi! Im new to this. I have lupus but Im not sure I have sjrogen or not. But i have dry skin, dry mouth, and dry eyes. I also experienced hai...
wsmith14 days ago
Interesting...just found this but don't have vertigo at the moment but would be curious to try this. Anyone else tried this? m.youtube.com/watch?time_co......
Berninakate18 days agoPOPULAR
Hi all I'm at the early stages of being investigated for Sjogrens and I am finding it difficult to find much information or support groups. ...
Red, tingling feet
wsjkcj119 days ago
Today while walking the top of my right foot started hurting and felt somewhat numb and tingling. When I stopped I took my shoe and sock off...
An interesting link for those with with pSS related autonomic dysfunction
Twitchytoesa month ago
Hi all, I am new here.
WindyTa month ago
My name is Wendy. I live in Tropical North Queensland. I had a suspicion of SS for about 10 years. Final diagnosis about 5 years ago. I have...
"Significant wear and tear in the lumbar spine", Pilates and neuropathic pain.
Very confused by pain at top of thigh and other night time aches and pains I've been having. I started Pilates class about five weeks ago an...
itsmeBettya month ago
Hi my names Betty and I have sjogrens syndrome since 2012 Icame on to hear other peoples stories and see if there were any new things that m...
Annodominia month ago
Good morning, I am new to this community but quite well known on the Polymyalgia one. I have just come off steroids (prednisolone) after six...
ear swelling with SS?
wsjkcj1a month ago
Does anyone with Sjogren's have problems with fluid not draining in the ears or lymph node swelling behind the ear? My left ear has been blo...
Sjogren's ab-nd Ear Oain
GrammyTweetiea month ago
Anyone else have ear pain, ringing and hearing loss? My left ear hurts all the time. The pain is sharp and often severe. I have high range h...
Lorraineelgara month ago
How long will I have to put up with my hip feet ankle knee hand and wrist and arm muscle and joint pain. It never stops. Taking Panafon os...
Sjorgens and Fibromyalgia?
Macbertsa month ago
Can anyone help! Does anyone have both conditions and how do you cope with dry mouth etc also my snoring is getting so loud and waking my po...
Debbweb012 months ago
Hi I'm a bit new to this forum! I find it very informative! I read something somewhere about autonomic Sjogrens! I have a problem with sweat...
Sadiemay2 months ago
Hi I am new to this group, I am interested in hearing others experiences with sjogrens and fibromyalgia. How to deal with sever swallowing p...
Retinal holes !!
Samaka2 months ago
Retinal tears (holes ) bilaterally could be due to :
Hydroxychloroquine, dehydration or malnutrition ?
I think you are hilarious and upbeat as I am and live my life from when I was able to understand at 6 years old the saying DO UNTO OTHERS AS...
I'm new to this forum, but I read slit about it! I have Hughes Syndrome which I have secondary Sjögren's syndrome! I also have RA! Had Juvin...
Hydroxychloroquine Reaction possibly??😲
weathervane2 months ago
Hi everyone, im feeling a bit low lately , my joints (hips and hands) are more inflammed, lymph nodes sore again , head is foggy and increa...
DBillings2 months agoPOPULAR
Hi I am a seronegative Sjogrens sufferer from Auckland, NZ seeking support from fellow Sjoggies. The NZ Sjogrens support group seems to be o...
Comfy or not ?
Persiankiwi2 months ago
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Lindylou672 months ago
Hi there, looking for some advice as to what can help me with a painful, dry nose. Was at my GP earlier today who didn't have any idea what ...
I wanted ask if it was normal for your eyes to deteriorate slightly, I was diagnosed in UK in December then GP, optician & dentist here i...
Queensland Eye Institute
Beverly2 months ago
"Nine out of ten people with Sjogren's Syndrome are women."
You can find a PDF of this two page Queensland Eye Institute flyer on our website
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Dry eye treatment
Aussielouise3 months ago
Hi. Just wanted to say I had a great appointment with a wonderful lady at a optician in southport Gold Coast yesterday. I had a stream gogg...
Seeking recommendation for Newcastle NSW Immunologist
SueR423 months ago
Hi all, I'm new to this site. Been diagnosed for years and years. Was initially diagnosed by Dr David Sutherland in Newcastle. Am looking ...
Persiankiwi3 months ago
My gp diagnosed me with Sjogrens in January after seeing a Dr in the UK while visiting my parents last year, he suggested I visit my gp & me...
On A Sjogrens Awareness Mission
webar47803 months agoPOPULAR
Well, I've been managing very nicely for a number of weeks now. (At times, I even thought, oh, I'm ok now, over whatever attacked my well-be...
Black seed oil for scalp?? 🤕
weathervane3 months ago
Hi there , i have been trouble by a burning, itchy scalp for a while now , my gp has had a look and can see no cause . I have tried hair oil...
Hi, I'm new here.
BRENDA_LAKELAND4 months ago
I have not as yet been dignosed with Sjogrens, but I feel that I have it, and will be discussing it with my Rheumy next visit in Ma...
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