Meganshearta day ago
With some fear and trembling I started Methotrexate, last week. I put off starting for a week, then, when I was well psyched up I took first...
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Is it Sjogens or is Mast Cell Disease
LauraZa day ago
I was diagnosed with Sjogens 6 years ago, after literally waking up to a mouth full of cavities. Upon xray, the dentist said they started at...
What now.. ? (7 year old -follow up questions)
Rubix13 days ago
My 7year old daughter has had keratoconjunctivitis sicca for over 18 months with permanent scarring on one eye.
She has joint aches mostly i...
I'm new here.
vivacall13 days ago
Could anyone suggest a Doctor in Geelong or Melbourne who could definitely give me a diagnosis on whether I have Sjorgens or not? My curren...
8 Replies2 Likes
Mouth and lip soreness
janetfmauka month agoPOPULAR
I have Sjogrens for many years but for the last 3 years my mouth has become very sore now that has been added to by my lips gradually becomi...
27 Replies2 Likes
Wearing eye makeup
Bansheea month ago
This may seem like a frivolous question. Does anyone have any tips on how to wear makeup without the eyes reacting so painfully. I have be...
4 Replies1 Like
sjogren's is serious!
Markergwa month ago
When I was first was diagnosed with Sjogren's, it seemed just a 'nuisance' disease...you know, dry eyes, dry mouth etc. I had no idea it c...
8 Replies9 Likes
Pregnancy and sjogrens
Nat983a month ago
Hi my name is natalie. I have recently been diagnosed (losely) doing a biopsy today. But my rhumey has put me on suflarsalazine. I was wonde...
1 Reply1 Like
Battered but blessed
honeybug2 months agoPOPULAR
Hi. I am 66. Have 60 diagnoses. Overwhelmed by shared conditions. Happy others understand Sjogrens. Willing to share what I know.
Red bumps on hands
Shoad2 months ago
Does anyone else get red bumps on the backs of your knuckles and fingers, I assume it's an autoimmune thing ( I have had primary sjorg...
6 Replies2 Likes
7 year old being tested for Sjogren’s
Rubix2 months ago
Hi, I was wanting some advice.
My 7 year old daughter has just been to a paediatrician and he is testing her for Sjogren’s and rheumatoid ar...
Sjogren's Pain, arthritis, Pilates, core strengthening
evie992 months ago
Hi, Living with Sjogren's, I have been doing pilates at the physio for many years now, 1-2 x weekly on the spring loaded machines, reformers...
1 Reply2 Likes
Steroids, should I take them?
timmysmom2 months ago
I live in the UK. I was diagnosed with sjogrens about 4 years ago now but have never really had much of a problem with any dryness. My big p...
5 Replies1 Like
Dry eye, mouth, skin. Sjrogens Syndrome
Lucyand2 months ago
Im new here but I am also diagnosed with Sjorgens Syndrome.
I have dry skin, chronic dry eye and nasal passages - and most other cavities ...
7 Replies9 Likes
very dry eyes
Cassiecat2 months ago
last year my eyes have become much dryer and I no longer feel comfortable in my own body. Use the warm compresses and Hylo Forte drops but b...
15 Replies2 Likes
If not sunburn then what is it?
Jar19733 months ago
I had to be out in the sun yesterday for under 30 mins and it wasnt until late afternoon hubby commented on me being sunburnt.
10 Replies1 Like
Abou allergy and aspirin
Xiao3 months ago
Hi all ladies who have been suffered allergic rhinitis, I am glad to tell you that I seemed found my allergy which was my dietitian told me....
Swelling / Weight Gain Lyrica
Gidgee4 months ago
I'm getting severe enlargement of my stomach and abdomen on Lyrica for the severe Sciatic-like jolting nerve pain at night. Weight was stab...
Xiao4 months ago
Hi every friends, any idear about Oestriol? I need do cervical pap smear then the GP given me Oestriol to put in vagina before the do the ...
Sjogrens and pancreas pain
Chad014 months ago
Hi Everyone, I last posted on here a while back. I've been in a bit of a diagnostic limbo on and off for the last 6 months. After very sever...
14 Replies1 Like
Hi I have been on Sulfasalazine for over 6 mths now and my symptoms have improved so much, most of my markers are normal except crp, why?
Jacquiwitt4 months ago
Why would my crp still be increasing any advise please on how to bring it down. What could be causing it to be so high
1st Appointment with Rheumatologist is next week, Any Advice?
Mach134 months ago
Hi all, I'm in the UK and I have my 1st appointment with a Rheumatologist next week.
I gather than my symptoms indicate Sjogrens, but I don't...
16 Replies1 Like
Sjogren's Syndrome and allergies
Hi everyone, I have diagnosed Sjogren's Syndrome, and allergic rhinitis. But cannot find what I am allergic to.I eliminated gluten , sugar ,...
12 Replies2 Likes
How manage breathing and gain weight without gluten sugar dairy and eggs.
Xiao5 months ago
Hi i am a new number here. I have diagnosed Sjogren's Syndrome May 2017. I have got RA on my left hand. Immune attacked my airpassge way wh...
weathervane5 months ago
Wishing everyone a happy Christmas, enjoy a break after all the fuss is over 🎄⛄️🎄
3 Replies4 Likes
“Yay I’m finally out of hospital!!”
Beverly5 months ago
After the last post of Bev in hospital basically learning to walk again - she was in rehab for 2 1/2 weeks - and came home this week. She ha...
7 Replies6 Likes
HOW MANY SYMPTOMS DO I NEED FOR DIAGNOSIS??
Bee10116 months ago
Hi all, I am yet to be diagnosed but feel totally confused and upset with the length of time it is taking and how slow the consultant is in ...
Punctuate Epithelial Erosions
Megansheart6 months ago
Last Thursday morning I woke at 4am with an extremely painful eye. I figured I must have had a foreign body in there. I promptly fell back t...
12 Replies1 Like
bones-bones6 months ago
Following my last post about surgery and Mycophenolate I have been diagnosed with breast cancer. I still don't know whether I can continue t...
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