If not sunburn then what is it?
Jar19739 days ago
I had to be out in the sun yesterday for under 30 mins and it wasnt until late afternoon hubby commented on me being sunburnt.
Abou allergy and aspirin
Xiao14 days ago
Hi all ladies who have been suffered allergic rhinitis, I am glad to tell you that I seemed found my allergy which was my dietitian told me....
Swelling / Weight Gain Lyrica
Gidgee19 days ago
I'm getting severe enlargement of my stomach and abdomen on Lyrica for the severe Sciatic-like jolting nerve pain at night. Weight was stab...
Xiao19 days ago
Hi every friends, any idear about Oestriol? I need do cervical pap smear then the GP given me Oestriol to put in vagina before the do the ...
Sjogrens and pancreas pain
Chad01a month ago
Hi Everyone, I last posted on here a while back. I've been in a bit of a diagnostic limbo on and off for the last 6 months. After very sever...
Hi I have been on Sulfasalazine for over 6 mths now and my symptoms have improved so much, most of my markers are normal except crp, why?
Jacquiwitta month ago
Why would my crp still be increasing any advise please on how to bring it down. What could be causing it to be so high
1st Appointment with Rheumatologist is next week, Any Advice?
Mach13a month ago
Hi all, I'm in the UK and I have my 1st appointment with a Rheumatologist next week.
I gather than my symptoms indicate Sjogrens, but I don't...
9 Replies1 Like
Sjogren's Syndrome and allergies
Xiaoa month ago
Hi everyone, I have diagnosed Sjogren's Syndrome, and allergic rhinitis. But cannot find what I am allergic to.I eliminated gluten , sugar ,...
12 Replies1 Like
How manage breathing and gain weight without gluten sugar dairy and eggs.
Xiao2 months ago
Hi i am a new number here. I have diagnosed Sjogren's Syndrome May 2017. I have got RA on my left hand. Immune attacked my airpassge way wh...
weathervane2 months ago
Wishing everyone a happy Christmas, enjoy a break after all the fuss is over 🎄⛄️🎄
3 Replies4 Likes
“Yay I’m finally out of hospital!!”
Beverly2 months ago
After the last post of Bev in hospital basically learning to walk again - she was in rehab for 2 1/2 weeks - and came home this week. She ha...
7 Replies6 Likes
HOW MANY SYMPTOMS DO I NEED FOR DIAGNOSIS??
Bee10113 months ago
Hi all, I am yet to be diagnosed but feel totally confused and upset with the length of time it is taking and how slow the consultant is in ...
Punctuate Epithelial Erosions
Megansheart3 months ago
Last Thursday morning I woke at 4am with an extremely painful eye. I figured I must have had a foreign body in there. I promptly fell back t...
bones-bones3 months ago
Following my last post about surgery and Mycophenolate I have been diagnosed with breast cancer. I still don't know whether I can continue t...
Excess saliva after lip biopsy
Maggiet3 months ago
I know this sounds odd, but 2 days ago I had a lip biopsy to test for sjogren's as I was suffering from all the symptoms including a really ...
Systemic itching - no rash. Sjogren's??
hashiB12sjogrens3 months ago
I am a 57 year female with long standing Hashimotos, B12 deficiency and Sjogren's syndrome. I am treated with combo T3/t4 (very good endocri...
Sjogren's or Sicca syndrome
Hi all. I've had various tests ordered by my consultant neurologist as I have neuropathy and 3 autoimmune conditions along with fibro. My mo...
8 Replies1 Like
Silver-Lady3 months ago
I’m due to have this soon and getting rather anxious as I’ve only been using artificial tears and no other prep. There had been an admin m...
Has anyone here had any kind of surgery while having Sjogrens ? If so any hints ? I am wondering if I will have to stop taking Mycophenolate...
Castor oil for relief of dry eyes (and other bits)
Psychodelia4 months ago
Hello fellow sufferers,
Wanted to tell you about something that MAY help you, at least in regard to dry eyes. I was googling treatments to g...
18 Replies5 Likes
Dysphagia(difficulty in swallowing) with Sjogren's syndrome.
ROBERT_CARMICHAEL4 months ago
I am a long retired doctor who has had SS for about 30 years and besides the rheumatoid arthritis, dry eyes and mouth, also have a very inte...
16 Replies2 Likes
Silver-Lady4 months ago
I have primary Sjögren’s only recently diagnosed. Live in UK.
I have problems with ears as Wax has gone quite suddenly and ears ar...
Three weeks and bruising...
Beverly4 months ago
Bev is still improving after three weeks in hospital now. The Rituximab needle/drip from last week (see last week’s post) still seems to be ...
5 Replies4 Likes
Bev - 2nd rehab session
The Physio nurse arrived while I was there and Bev insisted on a photo - to show how far she has come - which is wonderful but it isn’t that...
2 Replies4 Likes
Visited Bev again...
A week ago she had been in hospital for a week already with the kidney failure and Lupus Nephritis diagnosis. For the first week Bev was ta...
8 Replies4 Likes
Bev in hospital again...
In case you are wondering why Bev hasn’t been commenting the last week or so - it’s because she had her toe operation and that all healed up...
Sister and sjogrens
greenfingers4 months ago
My sister has just experienced vaginal bleeding and I was wondering if it could be associated with Sjogrens. She is 64 years old and has no ...
Annodomini4 months ago
Hello, I am new to this forum. I was glad to discover its existence!
Sjogren's was diagnosed last year, secondary to polymyalgia rheumatica. ...
FiLuSj5 months ago
I have a trifecta of subacute cutaneous lupus diagnosed 30yrs ago, fibromyalgia diagnosed 25yrs ago and recently having a ‘flare’ and now...
7 Replies1 Like
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