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The Australian Sjögren's Syndrome Association
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Omega 3 for blepharitis?
I have dry everything including eyes. My optician recommended taking O-3 supplements. But not sure how much Epa/dha is beneficial. Bought some capsules which...
I have dry everything including eyes. My optician recommended taking O-3 supplem...
Does Plaquenil Hydroxychloroquine) help with Sjorgens
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (Hydroxychloroquine) I read some studies that seem to suggest that there is no...
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (...
Punctal plugs?
Hi just had punctal plugs fitted and I’m finding them uncomfortable! Anyone else had similar problems and are they likely to settle down?
Hi just had punctal plugs fitted and I’m finding them uncomfortable! Anyone else...
Sjogrens and weather-related fatigue
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue before it rains; the barometer falls? And if so, how do you deal with it? In...
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue b...
Pericarditis and sjogrens
Hi does anyone on here suffer with recurrent pericarditis with their sjogrens? I do not have dry eyes but suffer with dry mouth. The recurrent pericarditis can...
Hi does anyone on here suffer with recurrent pericarditis with their sjogrens? I...
Optimel Manuka eye drops and gels
Hi all, Just wondering if anyone’s tried these and had any success with their eye symptoms? I’ve just had both the drops and gel delivered after seeing a...
Hi all, Just wondering if anyone’s tried these and had any success with their e...
Could the genetic variation MTHFR be behind many of these weird problems sjorgrens
Raynauds torticullis dystoniam blue toes I won’t keep going on! Anyone had luck with naturopathy Chinese medicine or other alternatives . Interested to hear
Raynauds torticullis dystoniam blue toes I won’t keep going on! Anyone had luck...
Burning Mouth syndrome.
Can anyone help with Burning mouth syndrome? My sister has developed this problem. She has had secondary S.S for many years along with thyroid and pancreas...
Can anyone help with Burning mouth syndrome? My sister has developed this proble...
Sicca Symptoms
Hi there everyone, I recently went to a rheumatologist because my GP suspected sjogrens syndrome, as far as I know the blood tests are not back yet but from...
Hi there everyone, I recently went to a rheumatologist because my GP suspected s...
what kind of meds would take my pain away- nerve pain
I don't have sjogrens syndrome but a lot of the problems. they call in atypical face pain. I was hit in the face by left eye and did not realize my nose broke...
I don't have sjogrens syndrome but a lot of the problems. they call in atypical...
Can anybody relate to stomach and bowel issues ?
I have various auto-immune conditions such as Sjogren's, Lupus, Antiphospholipid syndrome ( sticky blood ) and thyroid and parathyroid issues. I have a very...
I have various auto-immune conditions such as Sjogren's, Lupus, Antiphospholipid...
Foot drop
Hi all! Has anyone experienced foot drop as a neuropathy symptom? Just wondering if it's all connected with SS somehow and also if anyone found it to be long...
Hi all! Has anyone experienced foot drop as a neuropathy symptom? Just wonderin...
Sjogrens and Botox
Hi all Has anyone had Botox to help with tear production? I’ve been reading it helps increase tear production and is really beneficial for people with...
Hi all Has anyone had Botox to help with tear production? I’ve been reading it h...
Hydroxychloroquine side effects... is it worth it?
Hi all 🤗 Recently diagnosed with Sjogrens after a 4 yr battle to get here (that’s a whole other story) I’ve been on hydroxychloroquine for nearly 3 weeks...
Hi all 🤗 Recently diagnosed with Sjogrens after a 4 yr battle to get here (tha...
Throat pain and choking sensation and shortness of breath
Hi , I am having fatigue, tingling in hands and legs, pain at back of eyes. My ANA is positive and my neurologist suspected it’s Sjogrens . I am scheduled to...
Hi , I am having fatigue, tingling in hands and legs, pain at back of eyes. My A...
Overwhelming Fatigue please help
Hi all I have overwhelming fatigue I can barely walk ten metres without having to sit down. I currently take Hydroxychloroquine and pilocarpine but neither...
Hi all I have overwhelming fatigue I can barely walk ten metres without having t...
Lost Voice
Hello I am seronegative Sjogren's. Since October I have lost my voice 7 times for about 10 days at a time. I am also experiencing throbbing pain in my ears and...
Hello I am seronegative Sjogren's. Since October I have lost my voice 7 times fo...
Severely dry eyes and awful light sensitivity
Hi All, am new here, having just been diagnosed with SS. Just wondered if there's anyone here with dry/light sensitive eyes as their worst symptom. Mine is so...
Hi All, am new here, having just been diagnosed with SS. Just wondered if there'...
Narrow Angle Glaucoma
Hiya all, I'm just wondering if anyone else ever suffered from Narrow Angle Glaucoma? I went for a routine eye check up & now I'm being referred to a...
Hiya all, I'm just wondering if anyone else ever suffered from Narrow Angle Glau...
Update On Burning Outhitting Syndrome PLEASE
Hello and thanks for all your responses to BMS! I just want to tell all of you I suffered badly for 5 months! Doc after Doctors! Finally I went to ENT & She...
Hello and thanks for all your responses to BMS! I just want to tell all of you I...
Prescription Pilocarpine U.K.?
I’ve finally been prescribed pilocarpine here in the U.K. only to be told the pharmacy’s can’t get it! Is there anyone else on Pilocarpine here in the U.K.?...
I’ve finally been prescribed pilocarpine here in the U.K. only to be told the ph...
Burning Mouth Syndrome From Sjogrens
Hi I’ve been on this post a while ago! Unfortunately life has not gone me the time to post! Taking care of my husband with Alzheimer’s for 2&1/2 years! Have...
Hi I’ve been on this post a while ago! Unfortunately life has not gone me the ti...
Is it Sjorgrens?
I already struggle with Hashimoto's, Psoriasis and Polymyalgia Rheumatica, - for which I am on Prednisolone (Cortisone) - 2 years. in Dec last year I had...
I already struggle with Hashimoto's, Psoriasis and Polymyalgia Rheumatica, - for...
Itchy dry blister on my knuckles
What can I do to remove those bump on my hand
What can I do to remove those bump on my hand
Sore nose
Does anyone diagnosed with Sjogrens have issues with a sore nose? Not from blowing your nose too much, or as far as I know, from nasal dryness. The fleshy...
Does anyone diagnosed with Sjogrens have issues with a sore nose? Not from blow...
Daughter with stage 3 kidney disease
My daughter is 21 with stage 3 kidney disease. Blood pressure stared to rise for the first time this summer. She sees her kidney Doctor regularly and is...
My daughter is 21 with stage 3 kidney disease. Blood pressure stared to rise fo...
Paresthesia is back, even with Plaquenil !!
Hi everyone... Lucky you, get Trump today 😅 Anyway I haven't complained in a while...Paresthesia is back...RLS is back...Pain in joints a tad better but still...
Hi everyone... Lucky you, get Trump today 😅 Anyway I haven't complained in a wh...
Sjögren’s specialist in NSW or VIC, Australia
Hi everyone Can anyone recommend a good specialist in NSW or VIC for Sjögren’s disease? Thanks Caz
Hi everyone Can anyone recommend a good specialist in NSW or VIC for Sjögren’s ...
Red palms sjogrens?
Hi does anyone else have red palms and sjogrens? I feel the two are related. I have noticed that when my palms are really red my sjogrens symptoms are really...
Hi does anyone else have red palms and sjogrens? I feel the two are related. I ...
Drugs to treat Sjögren’s
Hi all I’m currently taking Hydroxychloroquine 400mcg I have been offered Azathioprine or Mycophenolate. My Consultant is concerned that my enzymes are a bit...
Hi all I’m currently taking Hydroxychloroquine 400mcg I have been offered Azath...
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