Painful Swelling under my tongue
Danielleb3310 days ago
I have something protruding out from under my tongue. I am in horrible pain. Any ideas?
4 Replies3 Likes
Anyone have a dystonic tremor?
wsmith14 days ago
Hi peeps, was curious to see if anyone on this site has a dystonic tremor ? Have ruled out a few nasties including lupus at the top of the ...
Sjögren diagnosis no sicca
Pinkpiggy121 days ago
I have just been diagnosed by my rheumatologist as having SS. I’ve had positive bloods over the past 2+ years and symptoms of fatigue, achin...
9 Replies1 Like
Bettyboop7134523 days ago
Omg, the pricks are devastating today..My scalp, face, eyes, arms and legs. EVERYWHERE😩 My Plaquenil was increased to 400mg. daily. Seems l...
Lambert-Eaton myasthenic syndrome!
Angellealea1a month ago
Hi guys, has anyone else heard of Lambert-Eaton myasthenic syndrome? by mistake I came across on a forum & a few people were discussing Sjog...
2 Replies1 Like
Nousernamesa month ago
I am wondering if anyone has experienced hair loss? I used to be recognized by my thick hair. ( I guess that's the only reason I still have ...
Hi I recently had an EMG test because of my blood work & symptoms & inflammatory, I have Sjogren's Syndrome too.
I have a positive Anti-Ro an...
Bettyboop71345a month ago
Why, oh why, does my Paresthesia come back so severely each day in late afternoon to evening ❓I take my Plaquenil in the morning. Wonder if ...
Hi all, I am starting treatment, now on a different meds called Azathiprine, anyone else take these & what are your experiences of taking th...
New symptom ???
Bettyboop713452 months ago
Not certain but appears I may have cellulitis right foot. Very painful!! Difficulty bending big toe, some numbness. Anyone recognize this as...
“Functional Overlay” and Sjögren’s fatigue?
Twitchytoes2 months ago
Bearing in mind that the medical profession have (mis)appropriated the word functional to mean no organic cause has been found - do we think...
Angellealea13 months ago
Hey! Anyone else taking Hydroxychlorquine for Sjogren's? I'm starting the new med in 2 weeks, at one a day & will be increasing meds as I go...
resa3 months ago
Hi does any one have a lot of problems with eyes like hole in mackerel and cateract just out of no we’re is this related ? To be part of co...
Amalgam fillings in teeth
rosserk3 months ago
Hi all, does anyone have any knowledge about amalgam fillings and Sjögrens? I read somewhere that if you suffer from Sjögrens and have amalg...
Sjogrens or allergies ❓❓❓
Bettyboop713453 months ago
I wonder if anyone with SS experiences nasal issues ? I'm on Plaquenil and the paresthesia is better ! Good days, bad days. My eyes are stil...
12 Replies3 Likes
awaiting ENT referall
gj19963 months ago
I'm new to this site but I signed up because I wanted to ask the Sjögren's sufferers out there what they think about my symptoms. I f...
19 Replies1 Like
Two Vimeo’s which may be of interest to others here.
Twitchytoes3 months ago
Where do I go from here?
Eeve4 months ago
Do I just take my Dr's diagnosis? If I had more faith in her I'd be happy, but I'm not so sure.
I've had dry eye since very young (maybe sinc...
Do I have Sjogrens ?
Bettyboop713454 months ago
So now it's my taste glands Nothing tastes right 😳 Nothing ever tastes sweet or salty ‼️Water tastes awful...metallic 🙁 YUCK !!!
Do you think I could have Sjogrens?
FoggyMoggy4 months ago
The thing that has made me wonder is because of all the dental problems I've been having although that may be fixed when they extract a toot...
Hello. I only found an old thread on this subject so thought I'd start a new thread instead as I don't think anybody saw my latest replies o...
15 Replies1 Like
rosserk4 months ago
Hi all, I’m new to posting on this forum. I’ve been posting on thyroid UK for a while.
I have hashimotos, ehlers danlos and sjogrens. I’m re...
10 Replies2 Likes
Do I have Sjogrens ??
So, I saw my Rheumatologist today. She doesn't think I have Sjogrens. Positive ANA, but blood work for Sjogrens was negative. Lip Biopsy sug...
SuzanneMaree1234 months ago
Hi Everyone I have been told by my oral specialist that I have Sjogrens. She wants to do a lip biopsy to confirm. I also have oral lichen pl...
An interesting link for those with seronegative Sjögren’s
Twitchytoes4 months ago
6 Replies3 Likes
Annodomini4 months ago
I have secondary SS, having previously had Polymyalgia Rheumatica and taken prednisolone for 6 years. I was able to give that up a year ago....
goodymommy4 months ago
Does anyone get a lot of face swelling ? If so what do you do about it ?
17 Replies1 Like
About dilated ascending aorta
Xiao4 months ago
Hi, I just got my heart check report which said that I have got dilated ascending aorta. Is anyone who know about it cennected with SS or M...
6 Replies1 Like
Hashimotos and Hydroxy?
mistygrey5 months ago
Does anybody take Hydroxychloroquine and have Hashimotos?
Does it affect Hashimotos in any way?
Be the first to reply
BubbleMonkey5 months ago
Hi. I'm new around these parts, but I was hoping some people might be able to help me with some questions.
I currently have something up and...
Start a Community