Posts - The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

2,431 members • 779 posts

All posts for January 2015

Anyone here with experience of pilocarpine (salagen)?

hello all Some background: Am 61, living in the UK, with infant onset systemic lupus (probably due mainly to inutero DES exposure). That early diagnosis of...

hello all Some background: Am 61, living in the UK, with infant onset systemic ...

Barnclown

•9 years ago

9 Replies

Hi, Iv had sjogrens &lupas since I was 26, I'm now 41. Has anyone had problems with their heart and what symptoms were there...I'm scared.

Over the years iv had problems with some of my organs struggling to function. Iv learnt to recognise the symptoms. But now these symptoms are new different and...

Over the years iv had problems with some of my organs struggling to function. Iv...

ronel

•9 years ago

9 Replies

Hi all, This may seem trivial but with my dry mouth the skin on lips has changed. Lipsticks do not stay on and the painted ones go blotchy.

Is this happening to anyone else and if so is there a solution. Regards, Cassiecat

Is this happening to anyone else and if so is there a solution. Regards, Cassiec...

Cassiecat

•9 years ago

21 Replies

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Sjogrens Solutions - Module 7

While the medical system is good for diagnosis and crisis situations, Module 7 looks at the most impactful way to address Sjögren's - holistically - using...

While the medical system is good for diagnosis and crisis situations, Module 7 l...

Beverly

•9 years ago

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What was your first symptom of Sjogrens and how did symptoms develope?

I think I may have Sjogrens but it would be interesting to know other peoples stories like starting symptoms and how long it took to get a diagnosis as I've...

I think I may have Sjogrens but it would be interesting to know other peoples st...

Ctb567

•9 years ago

1 Reply

heads up pls Sjogrens symptoms?

im hypothyroid...supposedly have mild lupus....but think they are still guessing on the lupus... I have new symptom just lately....might not be the right kind...

im hypothyroid...supposedly have mild lupus....but think they are still guessing...

dgleds

•9 years ago

4 Replies

Siezures

I am 61 years old and have just started having full blown siezures I`m waiting to have an MRI brain scan but living in the U.K this could take some time,I have...

I am 61 years old and have just started having full blown siezures I`m waiting t...

Butterfly54

•9 years ago

2 Replies

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Posts - The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

All posts for January 2015

Anyone here with experience of pilocarpine (salagen)?

Hi, Iv had sjogrens &lupas since I was 26, I'm now 41. Has anyone had problems with their heart and what symptoms were there...I'm scared.

Hi all, This may seem trivial but with my dry mouth the skin on lips has changed. Lipsticks do not stay on and the painted ones go blotchy.

Sjogrens Solutions - Module 7

What was your first symptom of Sjogrens and how did symptoms develope?

heads up pls Sjogrens symptoms?

Siezures

Search posts

Latest poll

How long ago were you diagnosed with Sjögren's Syndrome?

Topics

Archive