Posts - The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

2,431 members • 779 posts

All posts for February 2017

Hoping for Advice

Hi I am new have been diagnosed with Sjogrens for 2 years. I am 61 have suffered with dry eyes dry mouth pressure in throat and glans but now the aches and...

Hi I am new have been diagnosed with Sjogrens for 2 years. I am 61 have suffered...

•7 years ago

Electric shock pain

Has anyone had a nerve conduction test thatt showed up in the test. I have neuropathy in 24+ areas & it's getting worse & more frequent ( 18 months now)...

Has anyone had a nerve conduction test thatt showed up in the test. I have neuro...

•7 years ago

No voice

Does anyone else have bad days when they feel so weak they can hardly talk? I had one of those today with no particular trigger. My throat feels extra dry and...

Does anyone else have bad days when they feel so weak they can hardly talk? I ha...

•7 years ago

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How succesful is lyrica for sjogrens sufferers out there?

Hi everyone, as a sjogrens sufferer for the past 5 years i have a lot of joint and back pain which is getting worse over time, so my doctor has recommended i...

Hi everyone, as a sjogrens sufferer for the past 5 years i have a lot of joint a...

•7 years ago

Sjogren's Medications?

Hi Everyone. My apologies if you have answered this a thousand times, but there is so much information on here that I finally decided to just ask. I've been...

Hi Everyone. My apologies if you have answered this a thousand times, but there...

•7 years ago

Brisbane Dentist

Does anyone know of a Sjogrens friendly dentist in South Brisbane. My GP said I need to find one before any more of my teeth break off, my dentist was aware of...

Does anyone know of a Sjogrens friendly dentist in South Brisbane. My GP said I ...

•7 years ago

Sjrogens TMJ and eating difficulties...

Does anyone else have severe eating difficulties associated with this disease? I've been on a Pureed diet for 3 years now whereas the food has to be smooth and...

Does anyone else have severe eating difficulties associated with this disease? I...

•7 years ago

Thick stringy saliva theory?

I would love to hear ideas about this , dry mouth ▶️ Thick saliva ▶️ Difficulty clearing throat = increased risk of throat / chest infection?? I know our white...

I would love to hear ideas about this , dry mouth ▶️ Thick saliva ▶️ Difficulty ...

•7 years ago

Hi, I have sjograns , but do you guys also feel this way...

I have pain all over my body if not one part there is another, i have very dry skin ,very very dry mouth and eyes , I have rashes on my hands,fingers toes...

I have pain all over my body if not one part there is another, i have very dry s...

•7 years ago

Newly diagnosed need help from experienced people

I'm newly diagnosed with Sjorgens having symptoms like dry eyes, dry mouth, a lot of joint pain and swelling especially in my hands and inner elbows, legs and...

I'm newly diagnosed with Sjorgens having symptoms like dry eyes, dry mouth, a lo...

•7 years ago

Morning pain and fatigue.

Curious how many of you are tired and sore when getting out of bed in the morning? I personally feel like rest and recovery is not happening. Have any of you...

Curious how many of you are tired and sore when getting out of bed in the mornin...

•7 years ago

Blood test negative

Ok, so been back to GP I see to manage my fibro & cfs, he said optometrist report suggests could be sjogrens due to very dry eyes etc but because my blood...

Ok, so been back to GP I see to manage my fibro & cfs, he said optometrist repor...

•7 years ago

Kidney problems

I have sjogrens with positive ro and La antibodies i have had blood and protein i my urine , i am on hydroxy chloroquine aleady my renal function and...

I have sjogrens with positive ro and La antibodies i have had blood and protein ...

•7 years ago

Do these really work

Ok so saw optometrist who agree with GP that my dry eyes is down to tear production not oil glands. Recommended Thera tears capsules, vita-pod ointment, lid...

Ok so saw optometrist who agree with GP that my dry eyes is down to tear product...

•7 years ago

Does this sound like Sjorgens? I do NOT have dry eyes nor a dry mouth. Is that common?

Hello everyone. I'm a 19 year old male. Not too long ago my blood test showed RF latex test > 450, which I have read indicates advanced disease. I've read a...

Hello everyone. I'm a 19 year old male. Not too long ago my blood test showed RF...

•7 years ago

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