Posts - The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

2,431 members • 779 posts

All posts for October 2018

Sjögren diagnosis no sicca

I have just been diagnosed by my rheumatologist as having SS. I’ve had positive bloods over the past 2+ years and symptoms of fatigue, aching joints etc. I...

I have just been diagnosed by my rheumatologist as having SS. I’ve had positive ...

•5 years ago

PARESTHESIA ‼️

Omg, the pricks are devastating today..My scalp, face, eyes, arms and legs. EVERYWHERE😩 My Plaquenil was increased to 400mg. daily. Seems like has always been...

Omg, the pricks are devastating today..My scalp, face, eyes, arms and legs. EVER...

•5 years ago

Lambert-Eaton myasthenic syndrome!

Hi guys, has anyone else heard of Lambert-Eaton myasthenic syndrome? by mistake I came across on a forum & a few people were discussing Sjogren's Syndrome, but...

Hi guys, has anyone else heard of Lambert-Eaton myasthenic syndrome? by mistake ...

•6 years ago

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Hair loss

I am wondering if anyone has experienced hair loss? I used to be recognized by my thick hair. ( I guess that's the only reason I still have some). I've take...

I am wondering if anyone has experienced hair loss? I used to be recognized by m...

•6 years ago

Hi all

Hi I recently had an EMG test because of my blood work & symptoms & inflammatory, I have Sjogren's Syndrome too. I have a positive Anti-Ro antibody & my EMG...

Hi I recently had an EMG test because of my blood work & symptoms & inflammatory...

•6 years ago

Parathesia ‼️

Why, oh why, does my Paresthesia come back so severely each day in late afternoon to evening ❓I take my Plaquenil in the morning. Wonder if I should take it at...

Why, oh why, does my Paresthesia come back so severely each day in late afternoo...

•6 years ago

Azathiprine

Hi all, I am starting treatment, now on a different meds called Azathiprine, anyone else take these & what are your experiences of taking this med? many...

Hi all, I am starting treatment, now on a different meds called Azathiprine, any...

•6 years ago

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