Hi everyone, just saying a warm hello to the community. I'm in the Stage 4C incurable platinum refractory club - a really rubbish subdivision of a club that in any event no-one wants to be member of! I was diagnosed with my 3rd hit of OC in December 2017 following emergency hospitalisation due to a collpased lung at work. I spent most of last year on various chemotherapy regimes, interspersed with a second chest drain and pleurodesis procedure which so far has stopped the cavity refilling. I have disease on my liver capsule, diaphragm, outer stomach lining, various spots in my abdomen & a large tumour in my ileum. My weirdest 'friend' is a large chest well lesion which has invaded one of my ribs and causes me more actual pain than all the others. I'm now on Letrozole as well as pain medication. I also have psychological support from my palliative care team to help with my feelings about what is now a very, very short life. I veer between being obsessively active and fun-orientated (I am mercifully still on two legs at the moment) and utterly devastated, tearful, heartbroken and terrified. Today is very much the latter - hence my visit here, to reach out to some online potential friends and send warm thoughts to you all. Xx
Just saying hello: Hi everyone, just... - SHARE Ovarian Can...
From the way your post is written, you have a great sense of humor. That's a big step in the wellness battle. I hate what you have been through and what you are going through. I was diagnosed with OC 1 day before Thanksgiving 2015. In Feb. 2017 I found out I had a recurrence. With more chemo and now on a targeted therapy drug, I'm claiming total healing for my body. I don't know if you are a believer in Christ, but I believe in the power of prayer and in a God who heals. I've experienced many miracles in my life, and my friend's and family's lives to believe otherwise. But I also know that not everyone is healed while on this earth. If you need someone to reach out to about what you can have on the other side of life on this earth, I would be happy to talk with you.
I don't think my first reply went through but I want to tell you that I am so very sorry that this is happening to you and you must feel like you are in a nightmare at times. I was absolutely frantic just getting the initial diagnosis and to top it off my Aunt was dying with ovarian cancer during my chemo. I am sending you love and care. I hope you are using your palliative care team to the utmost. I am a hospice nurse and I know how important it is that patients are given the care and support they need. I will be returning to work in a couple of weeks and I am anxious to do so. I received truly wonderful care at the cancer center I chose. So far so good. We will see. I am anxious to give back and glad that for now I can. I hope that you remain as free of pain as possible and that you can find some peace in the midst of all you are going through. It really is a very nasty disease..and I am not taking anything for granted❤
You sound like a remarkable woman. Then again, I guess we never realize how strong we are until we’re tested. I truly believe, long before we make our entrance into this world, that we’re shown a view of the path laid out before us, and then given a choice. Do we take it, knowing the cost? Or do we turn away from it, sacrificing even the good we see out of fear for how our stories may end? It takes a brave soul to jump into a body that culminates with this diagnosis. We are all brave souls headed home to report what we’ve learned. And it’s important news. I pray your spirit remains light, your body pain-free, and your comfort vast. Ty for checking in. Please keep us posted when you feel up to it. Is there anything in particular you need to hear that will help you?