Ok. So, here goes. I'm really scared of having ovarian cancer. My paternal grandmother passed away quite young from ovarian cancer. I believe she was in her 20s. 2 years ago my Mom was diagnosed with breast cancer. She had been taken estrogen replacement for 15 years. Which is 10 years too long. Along with that she has the chek2 gene mutation. I also have this but do not have the brca mutations.
A week before my period I have to pee alot, almost like I've drank alot of water. I do drink coffee and tea which may contribute to this. After my period, pretty much back to normal I guess. But I still think I pee more than anyone I know. 🤔 also. I have a poochy belly, I've had 3 pregnancy, one miscarriage and 2 live births. Occasionally I have issues with low right back pain that I've always attributed to my SI joint.
I was at my gyno appointment and this is probably the 3rd or 4th time I've told him I'm concerned about ovarian cancer because of my grandma, my bloating, my peeing alot, etc. He said ok, we'll just do a ca125 and an ultrasound. Well, obviously the ultrasound is over a week away and the ca125 came back elevated at 55. He said he is wanting an ultrasound to see if it's just uterine fibroids. But all I can think is the absolute worst. And now I feel cramping on my right side and the low back pain and I'm seriously scared. Is there a possibility this is just something easily treated? Or an I looking at being diagnosed with ovarian cancer???
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Momma3LSC
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I'm glad you found this group. We can all feel for the anxiety you are going through. You are smart to alert your doctors to your family history and to be vigilant. The fact that your CA125 is 55 doesn't confirm you have ovarian cancer by any means. You are pre-menopausal and CA125 can vary throughout your cycle. Having said that, it was appropriate that your doctor scheduled an ultrasound. That will give him another piece of data to help identify what is going on. Waiting for doctor appointments, test results, and next steps are particularly trying when you are waiting to see if it is a serious situation or not. Whether it is a benign condition or cancer, know that we are here for you. I encourage you to be persistent in finding answers. You know your body best and you are your own best advocate. If it turns out to be cancer, please know there are lots of new drugs and advancements in treatment options since your grandmother was diagnosed. Please feel free to call the SHARE helpline (866-537-4273) if you would like to speak directly with one of us who have walked in similar shoes.
Best wishes,
Gwen
19 year survivor, Stage 3C high grade serous ovarian cancer.
I'm so sorry that you're feeling so anxious but I'm sure we've all been the same. Firstly a high ca125 isn't a diagnosis and it's only slightly raised, you're doing everything right now, the ultrasound will hopefully put your mind at rest and take away your worries 🙏, will keep you in my thoughts
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Bloated belly
First Ca125 Blood test tomorrow,
CA125 stress 
Chance of Ovarian Cancer immediately following completed Breast Cancer treatments. 
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